Hello to all

[stuart 51]

Hi all, just joined the forum, so here's a bit about me. I've had stomach problems for many years(hiatus hernia), been on meds of various kinds for many years, a couple of years ago I had to be off work with terrible abdominal pain, doctor thought it could be gallstones but ultrasound came back clear, so was put down to gastitis and had my meds changed several times, then they thought IBS and was put on alvervine(spasmonal) which seemed to help for a while. I just thought I'd have to put up with it for life by then. A few months later when my glands swelled in my neck I had blood tests, which showed aneamia, and that set the ball rolling, I went for the gastroscopy and of course colonoscopy at the same time which was awful but came back clear, then I had the capsule endoscopy, which did show mild inflammation, the pain has been steadily getting worse since then, my gastro doc didn't think it was serious, and was quite dismissive he even suggested that it looked like it could have been caused by me taking Ibuprofen, the cheek of the man, everyone knows you should never take them, he did mention IBD, he didn't think it was the cause of all the pain, sounds a familar story from what I've read. Anyway I was put on Entocort, which I've been taking for a month, starting to taper of now, and they haven't helped at all so far, I'm probably worse, I go for an MRI scan on Thurs, so hopefully that will show something. Sorry it's been so long, this is a great site, I will be well perpared when I go back to hospital. Regards Stu

 

[mRae85]

:welcome: I hate to hear you are having so many problems, but hey this place is very informative and everyone here is super supportive and your going to love it here, if you have any questions, never be afraid to ask, adventually 1 of us or all of us will give you some answers. Entocort worked ok with me, but when I started the taper things feel apart, found out today that the pred made me worse, if you ever hear the name "prednisone" seriously by all means ... just say "no"! that pill is the root of all evil here, and I for one will be ranting before the end of the night about it.... anyways, to get back on the subject more, dont give up on the fight with this, where there is pain there is a problem. If one Dr wont listen to you, get another! I went through many... as a nice little Crohns joke, guess you could say I went through Drs FASTER than I went through TP :lol: Seriously, print out everything you can that you find inforative and start handing it to Drs, tell them what test's you want , and dont stop fighting. Adventually you will find one that will diagnose you properly and be open to suggestions. It can be a long hard fight, but one worth it. Keep in mind, alot of us here have been there when it comes to "took years" for a Dr to get it right, the symptoms really do vary alot with this condition. Best of luck, keep us up to date.

 

[stuart 51]

Thanks Mrae85 for the welcome note, I've already learnt a lot from this forum, and it makes sense to find out as much as possible, because a few people have said the doctors can be quite arrgogant, I live in the Uk and a lot of the time the docs want to avoid tests because of the expense. I've just had a MRI scan done so I'm hoping this will help identify any problems, and hopefully get treatment, I'm down to two Entocort now and so far they haven't helped me much so I don't expect they will now, go down to one next weekend. Thanks Again Stuart 51