Well, hello,
I'm not quite sure why I'm here. I suppose this is my way of accepting that maybe I should start trying harder to get some answers.
I'm a little bit of an odd case. Most of the people I've seen here have been through so much. And I haven't. At least not yet. Hopefully not ever.
My mother had Chron's. She was misdiagnosed, screwed up by one really horrid doctor. She had a lot of complications, weight gain, pancreatis, necrotizing entrocolitis from the prednizone, etc. She died when I was still a kid from other complications.
Her sister was diagnosed with IBD a few years ago. She had one really, really bad flare-up, and since then, nothing.
I've been paranoid over the last few years that I'll start seeing symptoms. Oddly enough, my best friend from childhood was diagnosed too.
I haven't had any weight loss. In fact, I've gained a good 20-25 pounds over the last two years. I do have stomach pains sometimes, really bad ones. But not often at all. I don't have any serious bowel problems, though I have seen mild symptoms.
My main issue has been arthritis. I went to a doctor who tested me for rhuematoid, lupus, etc. All negative. She sent me to a rhuematologist. He saw nothing wrong with me. I had no symptoms that day--- Because I figured something out. If I stop eating processed food, I have absolutely no pain. It just goes away. I had the pain on and off for ten months. Started as a deep bone pain in my lower legs, then spread, and started jumping between joints. It moves quickly, and it can get really bad. At one point I thought I had physically injured my knee. Once I figured out the food thing, from an attempted diet, I tried to avoid processed food. But I was pretty stressed out around that time, and I love processed cheese. Grilled cheese or macaroni... delicious stuff...
At the end of that ten months, the arthritis stopped being connected to food. I could no longer avoid certain foods to keep it away. It just was. All the time. Then it disappeared. And two weeks ago, six months after the fact, it came back. So I started researching Chron's again...Because I know it could be connected. I just have no idea if it's worth trying to get diagnosed now. If I don't feel hardly any symptoms other than the joint pain, which comes on with bad exhaustion, I just don't know they can find anything. Also, I got glasses at 19, which I also thought was odd. I've seen that connected to.
Not really sure what replies I'm looking for here. I just wanted to get my story out there. Maybe someone else had symptoms that developed weirdly like this. My mom was diagnosed in her late twenties, so I am expecting it. Aunt was in late thirties.
I'm not quite sure why I'm here. I suppose this is my way of accepting that maybe I should start trying harder to get some answers.
I'm a little bit of an odd case. Most of the people I've seen here have been through so much. And I haven't. At least not yet. Hopefully not ever.
My mother had Chron's. She was misdiagnosed, screwed up by one really horrid doctor. She had a lot of complications, weight gain, pancreatis, necrotizing entrocolitis from the prednizone, etc. She died when I was still a kid from other complications.
Her sister was diagnosed with IBD a few years ago. She had one really, really bad flare-up, and since then, nothing.
I've been paranoid over the last few years that I'll start seeing symptoms. Oddly enough, my best friend from childhood was diagnosed too.
I haven't had any weight loss. In fact, I've gained a good 20-25 pounds over the last two years. I do have stomach pains sometimes, really bad ones. But not often at all. I don't have any serious bowel problems, though I have seen mild symptoms.
My main issue has been arthritis. I went to a doctor who tested me for rhuematoid, lupus, etc. All negative. She sent me to a rhuematologist. He saw nothing wrong with me. I had no symptoms that day--- Because I figured something out. If I stop eating processed food, I have absolutely no pain. It just goes away. I had the pain on and off for ten months. Started as a deep bone pain in my lower legs, then spread, and started jumping between joints. It moves quickly, and it can get really bad. At one point I thought I had physically injured my knee. Once I figured out the food thing, from an attempted diet, I tried to avoid processed food. But I was pretty stressed out around that time, and I love processed cheese. Grilled cheese or macaroni... delicious stuff...
At the end of that ten months, the arthritis stopped being connected to food. I could no longer avoid certain foods to keep it away. It just was. All the time. Then it disappeared. And two weeks ago, six months after the fact, it came back. So I started researching Chron's again...Because I know it could be connected. I just have no idea if it's worth trying to get diagnosed now. If I don't feel hardly any symptoms other than the joint pain, which comes on with bad exhaustion, I just don't know they can find anything. Also, I got glasses at 19, which I also thought was odd. I've seen that connected to.
Not really sure what replies I'm looking for here. I just wanted to get my story out there. Maybe someone else had symptoms that developed weirdly like this. My mom was diagnosed in her late twenties, so I am expecting it. Aunt was in late thirties.