Hello everyone, I'm a new one! This is all new to me so please bare with me.... and I'm nervous. I am a 28 year old single mother of two diagnosed with Crohns disease and ulcerative collitis on 02/05/12. I have never had any health problems or issues before. Always have been very active, played volleyball leagues weekly, worked out daily, i trained for a ultra marathon and then started getting sick. About mid december i started not feeling well, having cramps and frequent poo, which progressed through january to me having no intake for 9 days and still pooing every hour. I lost 32 lbs in a matter of about 3 weeks. At first I thought it was just a virus or something I caught due to working in a hospital. I went to a GI specialist and said it was a virus, less than a week later I was in ER. That ER trip I was sent home after hydrating me and just trying to treat the symptoms, 5 days later i was back in ER because the pain and still having nothing to eat or drink still. I was admitted then. I spent 11 days in the hospital, and after having a emergency colonoscopy the doctors had no clue how I was standing let alone functioning. Colon was lined with ulcers and lesions, inflamed inner and outter lining, on my way to infection. I have bad muscle atrophy, no strength, no energy, all these wonderful meds have me shaking and feeling like a space cadet.
I have never liked taking meds so this is a huge change. The doctors have no clue on how long it will take for me to heal.Right now we are trying to get approval for the remicade infusions because the oral meds are not working as they should. I have my bad days and my ok days. A very big emotional trip. I have always been the one to support my children and home, I cant work till they say im healed and I dont regress, which would be easy due to how bad it was. I am still on and will be on a no fiber, low residue diet along with the diet of the disease which is basically nothing, the nutritionist is very tough! Stress is NOT my friend!! I am trying to learn how to manage that, I start feeling bad and cramping. So basically its a day to day thing now, A totally life changing situation. If anyone can let me know about their recovery, help or advise I would really appreciate it!! Thank You and im glad to have joined!
I have never liked taking meds so this is a huge change. The doctors have no clue on how long it will take for me to heal.Right now we are trying to get approval for the remicade infusions because the oral meds are not working as they should. I have my bad days and my ok days. A very big emotional trip. I have always been the one to support my children and home, I cant work till they say im healed and I dont regress, which would be easy due to how bad it was. I am still on and will be on a no fiber, low residue diet along with the diet of the disease which is basically nothing, the nutritionist is very tough! Stress is NOT my friend!! I am trying to learn how to manage that, I start feeling bad and cramping. So basically its a day to day thing now, A totally life changing situation. If anyone can let me know about their recovery, help or advise I would really appreciate it!! Thank You and im glad to have joined!
