Hellow fellow crohnies

[noexcuses87]

hi fellow crohnies my name is Thomas and i have been along time lurker of this site and finally decided to join. I was diagnosed with Crohns in April of 2014 by that lovely camera lol (weighted 135lb at 4%bf at 6' tall). For the first couple of months they tryed me on entocort and it did nothin for me so after that they gave me the option of going on to remicade or humira of which i choose to do humira. been on that for a year and a half now and feeling alot better(weighted 168lb at 8%bf) . They also sent me for some ct scan and found arthritis in my lower back and they wanted me to go on methotrexate for that which i told them Hell No. I find the Crohns just drains me of energy everyday and i still do have crappy days but not that often anymore thx god. i have found that the gym has been a good place to help me feel better. Im also taking fish oils, probiotics, medical marijuana, some times b12 injections,and some supplements for the gym

 

[ronroush7]

Welcome to the group. This is a very supportive group. Feel free to vent or ask questions.

 

[LabRat9]

Welcome to the group. I was in a similar situation but was put on remicade. I am one of those unfortunate people who after 2 years of infusions and doing well from them, had horrible side effects catch up with me. I am one of the few but keep an eye out for weird pains that almost feel like they are in your chest as well as pain in your joints.

 

[tzvia]

Welcome! Glad you have found some things that help.. Have you had your iron checked? I get that fatigue feeling when my iron is low.

 

[ronroush7]

I agree

 

[noexcuses87]

Welcome! Glad you have found some things that help.. Have you had your iron checked? I get that fatigue feeling when my iron is low.

Forgot to say i also have thalassemia minor too

 

[David]

Welcome Thomas, I'm glad you decided to join

When you say you have crappy days, what are your symptoms?

 

[noexcuses87]

Welcome Thomas, I'm glad you decided to join

When you say you have crappy days, what are your symptoms?

thx you , well have the "big D", tired, cramps,bloated/gass

 

[David]

Have they conducted any scopes or scans or fecal tests to see how well the Humira is working?

 

[tots]

Welcome, I am sorry you need "us" but, glad you found us.
Great people here who understand what your going through!


Lauren

 

[noexcuses87]

Have they conducted any scopes or scans or fecal tests to see how well the Humira is working?

Yes they have the test have showed it is helping but i still have inflammation

 

[ronroush7]

Welcome to the group. I was in a similar situation but was put on remicade. I am one of those unfortunate people who after 2 years of infusions and doing well from them, had horrible side effects catch up with me. I am one of the few but keep an eye out for weird pains that almost feel like they are in your chest as well as pain in your joints.

I was on Remicade twice.. Ghr drvonf time I had a lesion that didn't respond to antibiotics.

 

[David]

Yes they have the test have showed it is helping but i still have inflammation

Your goal should be zero inflammation. Ask your doctor what needs to change to make that a reality.

 

[Justanothercp]

Your goal should be zero inflammation. Ask your doctor what needs to change to make that a reality.

David,
I'm having some bloodwork done next month. Is there a particular test that will measure inflammation that I can ask for?

 

[David]

David,
I'm having some bloodwork done next month. Is there a particular test that will measure inflammation that I can ask for?

CRP is the most common blood test. It's not perfect, but it can be useful. If it was me, I would want CRP and fecal calprotectin done at regular intervals so we could track my inflammatory state over time and see how I am, or am not, responding to various treatments.

 

[tots]

I think David, you would be great to have along for a Drs visit!
I have learned more here than from my Dr.

Lauren!

 

[ronroush7]

I think David, you would be great to have along for a Drs visit!
I have learned more here than from my Dr.

Lauren!

I agree.