Help - Mom of 17 year old son

[momof17yearoldboy]

Hope someone can help. My 17 year old son was diagnosed with UC in March of 2017. It started with long multiple belches and then vomiting. I brought him to the dr who said it was a stomach virus and prescribed nausea meds. It continued so i brought him to ER room to be hydrated and stop his stomach from spasming. They did barium test and said it was colitis. I brought him to a gastro specialist, had a colonoscopy done and was diagnosed with UC. He was prescribed Lliada and was ok for about a month. Then the horrible long multiple belching and vomiting started again. Dr put him on Pentasa. He was ok for a couple of weeks. Horrible long belching vomiting started again. Dr acted as if he didn't remember this was why i brought him there in the first place and did an upper endoscopy. Biopsy didn't find anything but said there mild issue with stomach lining. Dr didn't think that was important. Put him on prednisone and back on Lliada. He now has the horrible long belching vomiting again. I do not think this is related to the UC but don't know what else to do.

Has anyone else had this issue with UC?

 

[my little penguin]

Has he had imaging (MRE /pill cam )?
Is he on a ppi ( Prevacid ) to help calm a stomach on prednisone?
What does his bloodwork look like ?

Is he seen at a major pediatric ibd university hospital ?
Can you get a second opinion at
Children's of Philadelphia
Boston children's
Cincinnati children's
Some will do records review or in person or both

Ds has Crohns
But when it was not controlled he would vomit
Spent one year vomiting
Tried lots of meds
Finally started remicade and the vomiting stopped

He was dx at age 7 and now is almost 14

 

[Maya142]

With the stomach lining - was it gastritis? Inflammation in the stomach? My daughter has had that and for her it causes pain and nausea, but it could be causing the vomiting. It is generally treated with a PPI and/or Carafate.

I also think you need a second opinion - it might help to get a second set of eyes to look at the situation. It could be related to his UC, but it may not be.

Have the done a Fecal Calprotectin recently to see if his UC is under control?

 

[kimmidwife]

My daughter has slowed motility due to her Crohn's disease. Nausea, vomiting, and constant belching are her main symptoms of this.
It took a long time for us to get it diagnosed.
I recommend you ask about having motility testing done.
I also recommend getting seen at an IBD center if you are not being seen at one yet.