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May 15, 2010
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Hey everyone. My name's Bryce, I'm 22, and I was unofficially diagnosed with Crohn's about 2 months ago.

Since November I've been having really bad cramping and pain in my gut. Over the next four months it got much worse, so much that I had to make four or five trips to the emergency room over that period. At the end of March it got so bad that I was referred to a GI Doc who told me that I probably have Crohn's, although he couldn't be sure until I had a colonoscopy.

The doc put me on Flagyl and Cipro to keep the inflammation down, and they helped so much that I was able to go ahead with a trip to Cuba I had planned with my girlfriend at the start of May. The pain was really only unbearable for a short part of the time we were down there thankfully, but two days after I got back I landed in the emergency room again, this time staying in the hospital for ten days.

We're now up to May 12th. The doctors put me on 50mg of prednisone (more on that later) and I didn't eat anything solid for the next ten days. Over these days my stomach pains slowly went away for the first time in nearly six months, partly because of the drugs and partly because I wasn't eating anything. They decided to give me that colonoscopy since I was already in the hospital, but they had to stop partway through because, despite my improvements, I was too inflamed for them to get in without risk of causing damage.

I've been out of the hospital for a few days, back to eating solid foods but only experiencing relatively minor pain, a bit pissed off that I don't have a solid diagnosis yet and that I have to undergo another colonoscopy when I'm healthy enough to endure it. As I'm sure many of you know, it's not the procedure itself that bothers me, it's the 4 litres of shit they make you drink the day before!

So that's basically where I am now. I didn't intend for this post to be this long! I'm still taking 50mg of prednisone a day as well as the antibiotics, but my experience with it has been relatively good. I usually suffer from horrible seasonal/cat allergies and the steroid seems to have completely repressed them. Furthermore, I get huge boosts of energy that I can use to do whatever I want. On the other hand, it makes me really irritable and kind of a dick. Another negative side effect is that I'm barely sleeping, but I guess there's an upside to that too: I'm getting more done throughout the course of a day than I ever could before.

I'll post updates when I know more! It's great to have people that have gone through/are going through the same thing. I can't wait to get to know some of you and hear some of your stories!

:) Bryce
 
I feel your pain on not having an actual diagnosis, but it is good that they have you on some sort of medicine in advance to help with your symptoms. Glad to hear you are doing better...Pred has its ups and downs!

Best of luck!

Kari
 
Hi Bryce! Welcome.

Yup, prednisone does wonders... I've had 6 flares treated with rounds of prednisone. Enjoy the energy while you have it - when you taper prednisone it can make you very sore and tired.

Have fun checking out all the threads; don't worry about TMI, we've all been there and will answer your questions the best we can.
 
Welcome to the forum Bryce....about the Prednisone...make sure you take it as early in the day as you can so that you can manage a few hours of sleep at night. My doctor neglected to tell me that on my first go round with it and I was taking it at night....omg...I was up for days straight....when I complained about insomnia she said "I told you to take it in the morning, didn't I?" Ummmmm...no!! It was much better after I started taking it at 6:30am. Just my 2 cents worth :)

Again, welcome....and enjoy the forum...lots of good advice and stories on here...
 
Hey Bryce...Welcome. I too get so frustrated at docs....Ive been suffering with disease for over 10 years, in March after months in the hospital, i was told its presumed crohns disease. Ive been on steroids and pentasa for months. The pain is much better, but I still go to the bathroom frequently and feel sore down there all the time. Anyway, Im not a perfect picture of cd, but I match some of the characteristics and treatment seems to help....so its presumed crohns disease for me.....and its so frustrating!! Good luck man~
 
Thanks for the warm welcome all. That's a good tip about when to take the pred - I didn't get to sleep until 2 last night and now here I am at 6:45 already wired. I'll take it right now! I'm also starting to notice other side effects like zits, but they're still definitely worth it.
 
hi Bryce
and welcome

hope you get something sorted and an official dx
enjoy the Pred!! Oh and don't forget your calcium supps too with Pred!
see you around the forum, glad you found us
lotsa luv
Joan xxx
 

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