Hi, I'm a newbie

[Seaside Di]

Hi all, I am new to this forum, I found you while looking for information on Perianal Crohn's. I became ill with Terminal Ilius Crohn's 24 years ago aged 18 and was diagnosed pretty quickly. The disease was quite mild and I went into remission aged 25. This lasted for 12 wonderful years but returned with a vengeance 5 years ago. I now have Terminal Ilius and Perianal Crohn's.

I am currently waiting to go into hospital for an examination under anaesthetic as it too painful for the doctor to examine my butt while I am awake!!! I have fissures and skin tags and I am in constant pain. When I was like this back in 2008, the surgeon injected botox which helped for a while, he's planning to do this again. I think I may have to put up with the tags though, the surgeon won't remove then as he says it won't heal :yfrown:

I currently take Pentasa, Azothiaprine and Omeprazole, also codeine Phosphate for the pain (I rattle when I walk :ylol

 

[David]

Hi there and welcome!

Awwww, I'm so sorry to hear your Crohn's has come back with a vengeance You poor thing.

Can you explain the botox treatment? I haven't heard of that before and am quite interested.

I hope everything goes well for you! We're here for you anytime. Take care!

 

[meaculpa]

welcome

sorry to hear that things aren't going terribly well for you at the moment.
you will find heaps of great infomation and support here.
i also have perianal symptoms and are curious about the botox treatment???

 

[Seaside Di]

Hi

One of the reasons for fissures not healing is because the sphincter muscle goes into spasm. The botox is injected into the sphincter, effectively performing a chemical sphincterotomy as it relaxes the muscle. The effects last for about 3 months allowing the fissures time to hopefully heal.

It worked last time, I'm hoping it work again!

 

[David]

Very interesting, thank you for sharing! And I hope it works again as well. Good luck!

 

[xJillx]

Hi Seaside and welcome! I am sorry to hear your long remission had to come to an end! I sure hope you start to feel better soon.

I hope your second round of botox treatment is a success. Please let us know how it goes!