F
firepixie
Guest
Hi my name is Nicole!
Let me just begin by saying I am a VERY Stubborn person.....
I was diagnosed with Crohns August of 2007.
I have always been a healthy person; by heathy I mean the worst for me was the common cold and sometimes the seasonal flu. Allergic to nothing.
Starting in May of 2007 my symptoms started brewing. For 4 months I was having constant diarrhea which gradually lead on to bleeding, sharp pains throughout my abdomen, and intense pain with bowel movements (felt like shards of glass). At first I thought that it was something I ate, but as bleeding persisted and increased dramatically and the condition continued to worsen I made an appointment with a GI doctor.
My weight had dropped from 120 to 108.... I'm 5'8. I have always been thin, but this was too thin.
My first GI doctor had scheduled a flex sigmoid scopy.
They made the preparation seem like it was easy but it felt like pure torture.
For the actual procedure, I informed my GI doctor about the pain of preparation and she had an IV started just incase and gave me a little bit of medication. I watched on the screen a partial portion of the procedure, until I could not take it anymore. They had to put me fully under.
Biopsy showed positive for Crohns.
Blood results showed positive for Crohns. Negative for gluten allergy.
Medication the GI gave me was not responding, and GI was difficult to work with so I changed my GI.
I then had a colonoscopy with my new GI to see more of what was going on, and results had shown that my Crohns was where my large and small intestines meet.
Doctor placed me on prednisone I was hoping for weight gain, but no luck.
I was ready to get off of it as soon as I was put on it.
After I was placed on prednisone twice, I was put on Asacol.
Asacol did not work well for me.
Now on Lialda... was kind of skeptical about it because it is new.
Its pretty good, it took about a month and a half for it to kick in.
Doesnt work perfect, works MUCH better than asacol did for me.
About 2 months ago I had an abscess, had no clue it was an abscess until I was in so much pain I could not sit or stand. It finally drained on its own, I went to the Dr and was placed on more pain killers and antibiotics. The Colorectal surgeon said that it was caused from a fistula, and the only way to fully heal it would be surgery where they cut from your anal sphincter up (ouch!), which is very risky for Crohns patients and could result in incontinence. Needless to say I am not going to do surgery. I will just watch and wait.
Thanks for listening.
Looking foward to meeting everyone
Let me just begin by saying I am a VERY Stubborn person.....
I was diagnosed with Crohns August of 2007.
I have always been a healthy person; by heathy I mean the worst for me was the common cold and sometimes the seasonal flu. Allergic to nothing.
Starting in May of 2007 my symptoms started brewing. For 4 months I was having constant diarrhea which gradually lead on to bleeding, sharp pains throughout my abdomen, and intense pain with bowel movements (felt like shards of glass). At first I thought that it was something I ate, but as bleeding persisted and increased dramatically and the condition continued to worsen I made an appointment with a GI doctor.
My weight had dropped from 120 to 108.... I'm 5'8. I have always been thin, but this was too thin.
My first GI doctor had scheduled a flex sigmoid scopy.
They made the preparation seem like it was easy but it felt like pure torture.
For the actual procedure, I informed my GI doctor about the pain of preparation and she had an IV started just incase and gave me a little bit of medication. I watched on the screen a partial portion of the procedure, until I could not take it anymore. They had to put me fully under.
Biopsy showed positive for Crohns.
Blood results showed positive for Crohns. Negative for gluten allergy.
Medication the GI gave me was not responding, and GI was difficult to work with so I changed my GI.
I then had a colonoscopy with my new GI to see more of what was going on, and results had shown that my Crohns was where my large and small intestines meet.
Doctor placed me on prednisone I was hoping for weight gain, but no luck.
I was ready to get off of it as soon as I was put on it.
After I was placed on prednisone twice, I was put on Asacol.
Asacol did not work well for me.
Now on Lialda... was kind of skeptical about it because it is new.
Its pretty good, it took about a month and a half for it to kick in.
Doesnt work perfect, works MUCH better than asacol did for me.
About 2 months ago I had an abscess, had no clue it was an abscess until I was in so much pain I could not sit or stand. It finally drained on its own, I went to the Dr and was placed on more pain killers and antibiotics. The Colorectal surgeon said that it was caused from a fistula, and the only way to fully heal it would be surgery where they cut from your anal sphincter up (ouch!), which is very risky for Crohns patients and could result in incontinence. Needless to say I am not going to do surgery. I will just watch and wait.
Thanks for listening.
Looking foward to meeting everyone
