Hi. My name is Jack and I'm a Crohnie.

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I was raised in a small town and now live in Las Vegas , Nevada. I have been living with Crohn's since 1988 after 14 years of rarely even catching a cold. Prior to diagnosis, I was into soccer and was a competitive top state player, winning and starting on many all -star teams and regional teams.

It took many months, several doctors and even more days and nights of lying in the fetal position on my bed (or the floor) from the intense pain, before I was finally diagnosed properly and I've heard them all from, "It's all in your head" to "It's just gas". It was devastating news to fathom, especially when I asked the question, "How do I fix it?" and the doctor replied "Unfortunately there is no cure".
Since 1988, I have had numerous surgeries, resections, abscesses, fistulas, fissures, obstructions, fatigue, dehydration and many other "minor" complications. I, like many other after diagnosis, went through the "why me?!" phase, followed by the "wtf!!" phase and the "c'mon, really?!"phase.

The reason why I’m sharing my story is to promote health, wellness, nutrition, and fitness. I also compete in Men’s Physique fitness shows every year. Men’s Physique is a subclass of bodybuilding where contestants are judge on aesthetics , shape and symmetry. Where it differs from bodybuilding is contestants wear board shorts and do not display the typical bodybuilding pose. Men’s Physique competitors look more like fitness models than bodybuilders since extreme muscularity is marked against them. I personally like the idea behind Men’s Physique because contestants have more attainable look than a 280 pound bodybuilder. A more appealing and attainable look to the general public creates a larger following and provides opportunities to wider audience. I do not enter competitions to show everyone how good I look,….I want to get that straight.
The reason I want to do this is to raise awareness of Crohn’s Disease and motivate people while showing what is possible, despite having a debilitating disease. A lot of people with Crohn’s are extremely malnourished and look like I did 20 plus years ago at 160pounds. I would love to motivate and show others with Crohn’s that is possible to get your symptoms under control and live a healthy, fulfilling life. By competing , I have personal accomplishments to work towards every year I can be proud of. I don’t care whether I get last place or first place( although 1st would be nice). I enjoy challenging myself and completing something that I put my mind to. I’ve had to overcome more obstacles than most, so stepping on stage is extra special for me.
I want to show people with my disease what can be possible while pushing the limits of their body and mind even with a debilitating chronic disease. I have good days, and sometimes I have bad days, but I don not want anyone to feel sorry for me, it is not the point. I want to increase awareness to a relatively hidden disease that many people have not heard of before. People take one look at me and judge me based on physical appearance. All I can hope for is to make a difference in someone’s life, big or small,
My goal is to provide motivation and show what has helped me deal with it. I think of exercise as my natural antidepressant. That’s one of the reason it’s so important for me to stay physically active, since as a person living with Crohn’s disease, sometimes it’s hard to keep a positive outlook. Exercise can help you feel more upbeat, get better in tune with your body, and help prepare for your potential obstacles in your life with Crohn’s. Evan if a bad flare has exhausted you, or you feel especially drained following surgery, remember that resuming some form of enjoyable exercise is a sign that you are returning back to independence and your self-care routine. Even though finding time to exercise can be challenging, it might be good motivation to try recalling what it felt like to be sick and unable to exercise. Remember that feeling when you find yourself unenthusiastic about exercising. Any time that you can spend strengthening your body is a privilege, one that Crohn’s can sometimes deprive you of. Take advantage of those opportunities when you can work out!

“WHAT TYPE OF BODY DO YOU WANT TO LIVE IN?” You can decide to control your disease instead of letting it control you. It’s difficult at first but, as with everything, practice makes perfect. You will notice improvements both in the severity of symptoms and your enjoyment of life. ( I'm the one left on the end)
 

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physical activity has been associated with higher rates of maintenance of remission in IBD. Good for you! I had started sports, but again, another joint or tendon issue is stopping me right now. Hope to start soon again.
 
very nice!! most importantly let them/us know HOW you controlled your crohn's. But showing us THAT you controlled it, is also good.
 
Thank you... for the warm thoughts. I can control my Crohn's through a organic diet and gluten free food. I dont do beef, diary, and I eat high protein meals .My diet consist of foods such as fish, chicken, turkey ,oatmeal, brown rice, sweet potatoe , green beans, and broci. I keep my carbs low and intake high protein diet. Lots of water, VD, VC, and Vitamin B. This helps me maintain my strenght in the gym and keeps my crohn's relativity in check.
 
Have you read threads on this forums diet and fitness forum? The members who frequent that part of the forum may be particularly interested in your story and any advice you have to give. http://www.crohnsforum.com/forumdisplay.php?f=17

I'm the opposite of you in many ways, as I'm female and far too skiny, but I'm interested to hear about anyone's diet and weight and how they manage it with Crohn's disease. So I'm sorry if this is a nosy question, but is it hard for you to eat enough with the diet you described? Do you eat any high-fat foods? Most of the foods you listed are low calorie, and you must need a lot of calories to maintain your muscle?

Good luck in your contests!
 
I was raised in a small town and now live in Las Vegas , Nevada. I have been living with Crohn's since 1988 after 14 years of rarely even catching a cold. Prior to diagnosis, I was into soccer and was a competitive top state player, winning and starting on many all -star teams and regional teams.

It took many months, several doctors and even more days and nights of lying in the fetal position on my bed (or the floor) from the intense pain, before I was finally diagnosed properly and I've heard them all from, "It's all in your head" to "It's just gas". It was devastating news to fathom, especially when I asked the question, "How do I fix it?" and the doctor replied "Unfortunately there is no cure".
Since 1988, I have had numerous surgeries, resections, abscesses, fistulas, fissures, obstructions, fatigue, dehydration and many other "minor" complications. I, like many other after diagnosis, went through the "why me?!" phase, followed by the "wtf!!" phase and the "c'mon, really?!"phase.

The reason why I’m sharing my story is to promote health, wellness, nutrition, and fitness. I also compete in Men’s Physique fitness shows every year. Men’s Physique is a subclass of bodybuilding where contestants are judge on aesthetics , shape and symmetry. Where it differs from bodybuilding is contestants wear board shorts and do not display the typical bodybuilding pose. Men’s Physique competitors look more like fitness models than bodybuilders since extreme muscularity is marked against them. I personally like the idea behind Men’s Physique because contestants have more attainable look than a 280 pound bodybuilder. A more appealing and attainable look to the general public creates a larger following and provides opportunities to wider audience. I do not enter competitions to show everyone how good I look,….I want to get that straight.
The reason I want to do this is to raise awareness of Crohn’s Disease and motivate people while showing what is possible, despite having a debilitating disease. A lot of people with Crohn’s are extremely malnourished and look like I did 20 plus years ago at 160pounds. I would love to motivate and show others with Crohn’s that is possible to get your symptoms under control and live a healthy, fulfilling life. By competing , I have personal accomplishments to work towards every year I can be proud of. I don’t care whether I get last place or first place( although 1st would be nice). I enjoy challenging myself and completing something that I put my mind to. I’ve had to overcome more obstacles than most, so stepping on stage is extra special for me.
I want to show people with my disease what can be possible while pushing the limits of their body and mind even with a debilitating chronic disease. I have good days, and sometimes I have bad days, but I don not want anyone to feel sorry for me, it is not the point. I want to increase awareness to a relatively hidden disease that many people have not heard of before. People take one look at me and judge me based on physical appearance. All I can hope for is to make a difference in someone’s life, big or small,
My goal is to provide motivation and show what has helped me deal with it. I think of exercise as my natural antidepressant. That’s one of the reason it’s so important for me to stay physically active, since as a person living with Crohn’s disease, sometimes it’s hard to keep a positive outlook. Exercise can help you feel more upbeat, get better in tune with your body, and help prepare for your potential obstacles in your life with Crohn’s. Evan if a bad flare has exhausted you, or you feel especially drained following surgery, remember that resuming some form of enjoyable exercise is a sign that you are returning back to independence and your self-care routine. Even though finding time to exercise can be challenging, it might be good motivation to try recalling what it felt like to be sick and unable to exercise. Remember that feeling when you find yourself unenthusiastic about exercising. Any time that you can spend strengthening your body is a privilege, one that Crohn’s can sometimes deprive you of. Take advantage of those opportunities when you can work out!

“WHAT TYPE OF BODY DO YOU WANT TO LIVE IN?” You can decide to control your disease instead of letting it control you. It’s difficult at first but, as with everything, practice makes perfect. You will notice improvements both in the severity of symptoms and your enjoyment of life. ( I'm the one left on the end)


** My son suffered so much pain and is new to this diagnosis and has talked about suicide..would you be willing to be a friend to him because you have gone through so much? He is hospitalized right now, improving, I can have him contact you when he gets home..thanks
 
Interesting post. I agree with the positive attitude. We are all different and I wish you continuing success. Good luck.
 
That's great that you are now feeling so healthy and have found a hobby you enjoy.

I just wondered when you're raising awareness of Crohn's, what do you tell people about it?

When I've obviously stood out as someone with an illness - when I had an NG tube and now when I don't have any hair from the chemo - I've found that it puts me in the fortunate position of being able to talk to so many more people about Crohn's. It seems that almost everyone you meet knows someone with Crohn's - and yet true awareness of what it can mean to live with this disease is pretty low.

I'm glad to have the opportunity to talk about how differently this disease affects us all. So often it seems that people make the assumption that because the person they know with Crohn's had symptoms xyz and then had treatment A and feels better that it is like that for everyone.

Just last week I got talking to a woman whose uncle has Crohn's and she seemed a little unsympathetic as she viewed his lifestyle choices as likely to have caused his disease. It's nice to know that just by having the opportunity to explain to her that the cause of Crohn's is unknown and there is no reason to blame the food he ate for causing his disease that it may have helped his relatives be more supportive of him as he goes through a difficult time.

It seems like such an important thing for people with a largely invisible disease to have people understand that though they may look healthy that they may not be on the inside and that they can require serious interventions or face life threatening risks and that they aren't merely unwilling to make a few "lifestyle" changes to get better.

All the people who are raising awareness for Crohn's in their different ways are doing a much needed job. I'm sure your story will be just as inspiring for many to see that it is possible to come out the other side and look so healthy and in line with societal norms as it is to see those embracing their ostomies and scars by sharing photos on Instagram.

I just wondered, have you ever been self-conscious of your scars at contests? Do they affect the appearance of your abs in any way? (Can't really see from the photo!) That's a question someone, who was considering surgery, asked me on the forum and my only answer was that I didn't think it should but I don't know because my abs really aren't defined and I just wear a bikini anyway because I don't think the scar is (or should be) a big deal and if anyone else doesn't agree then that's their problem! But I guess you would actually know how to answer this question!
 
Wow... great questions! About 15 years ago I never talked about crohn's because nobody understood it and there reaction was like no big deal .....you look great. But today I expose it to everyone I talk to and there rection is ...Wow..... I heard of it and know someone that has it. Yes I do have a 12" scare from top of my belly button down. I was very self conscinece of the scare and it was deforming my lower abs a little, but with years of building and strengthing my abs they even out almost to 100 % . You can see my lower abs is a little off due to 4 surgeries in that area in 5yrs. But slowly I'm building the muscle around the incision and starting to even out. When I'm on stage I'm still insecure about it , but not to the point where it affects my over all look and feeling of being on stage .
 
Great post! I hope everyone here can get to a point of feeling in control. I too refuse to let the disease define who I am. Yes I have it, but I am so much more.
 
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