- Joined
- Dec 3, 2010
- Messages
- 796
Hello everyone,
My name is Kayleigh and have been diagnosed with crohn's disease for about a year but had the symptoms for longer ( as is the case with most I think). I live in a little house outside of the new forest with my lovely boyfriend who has been my hero through all of this. I currently work, when im well enough, as a Biomedical support worked in the lab of Southampton General Hospital, which i really enjoy. I came to the forum to chat to people who have been through similar things and hopefully make some friends along the way
A bit about my IBD so far.....
I first started getting very bad stomach pains and increasing frequency to go to the loo when I got back from a holiday in spain, I went to the doctors who thought it might be an infection from being abroad. It turned out it wasn't and he told me to see how it went for a couple of weeks. It didn't get better and went back again and was diagnosed with what they thought then was IBS and was given colofac. This didn't help and I got progressively worse more pain , weight loss, mouth ulcers and so many other things I cant remember.
After about a year of going backwards and forwards to the doctors surgery they referred me to a GI consultant who did the usual questioning and exams. He decided it would be good to for a colonoscopy and was started on prendisolone (not sure on spelling sorry).
I was then diagnosed with crohn's.
Ive tried most medications now and with very little improvement only when I was on steroids prendisolone/budesonide. I was put on aza but this caused pancreatitis and was admitted to hospital for a week. They then tried me with 6mp with the same outcome as the aza but a lot worse had to call and ambulance out to my mums house , had to give me gas and air to get me out of bed that was then followed by tonnes of morphine and over another week in hospital before they thought I was ok to go home and rest. Have to say its the most painful things I have felt in my life.
I am now on (remicade ) infliximab and have been for a few months was working fine but then started getting lots of pain in my ankles, knees and hips where it got to the point I couldn't walk and my boyfriend was lifting me in and out of bed as and when I needed to as I was having a flare at the time aswell. I have been told now I have got a type of arthritis because of my crohn's disease. The last time I had my infusion about 4 weeks ago now I had a bad reaction and went into anapylactic shock, not being able to breath, passing out, back pain and fitting enough to scare all the other poor people on their infusions that were watching. Which was funny looking back at it especially as when I came round I could smell something not very nice and the first thought was oh no have I had an accident and kept on asking my boyfriend If I smelt.... luckily I hadn't but it made for some good jokes afterwards.
I have been a bit ill since then having a lot of pain in my legs and constantly feeling like Im going to be sick and occasionally doing so, and constant need to go to the toilet which is just getting sore.
Trying to stay as positive as I can and try and carry on as normal, Thank you for reading my story sorry if its a bit long did try and keep it as short as possible
My name is Kayleigh and have been diagnosed with crohn's disease for about a year but had the symptoms for longer ( as is the case with most I think). I live in a little house outside of the new forest with my lovely boyfriend who has been my hero through all of this. I currently work, when im well enough, as a Biomedical support worked in the lab of Southampton General Hospital, which i really enjoy. I came to the forum to chat to people who have been through similar things and hopefully make some friends along the way
A bit about my IBD so far.....
I first started getting very bad stomach pains and increasing frequency to go to the loo when I got back from a holiday in spain, I went to the doctors who thought it might be an infection from being abroad. It turned out it wasn't and he told me to see how it went for a couple of weeks. It didn't get better and went back again and was diagnosed with what they thought then was IBS and was given colofac. This didn't help and I got progressively worse more pain , weight loss, mouth ulcers and so many other things I cant remember.
After about a year of going backwards and forwards to the doctors surgery they referred me to a GI consultant who did the usual questioning and exams. He decided it would be good to for a colonoscopy and was started on prendisolone (not sure on spelling sorry).
I was then diagnosed with crohn's.
Ive tried most medications now and with very little improvement only when I was on steroids prendisolone/budesonide. I was put on aza but this caused pancreatitis and was admitted to hospital for a week. They then tried me with 6mp with the same outcome as the aza but a lot worse had to call and ambulance out to my mums house , had to give me gas and air to get me out of bed that was then followed by tonnes of morphine and over another week in hospital before they thought I was ok to go home and rest. Have to say its the most painful things I have felt in my life.
I am now on (remicade ) infliximab and have been for a few months was working fine but then started getting lots of pain in my ankles, knees and hips where it got to the point I couldn't walk and my boyfriend was lifting me in and out of bed as and when I needed to as I was having a flare at the time aswell. I have been told now I have got a type of arthritis because of my crohn's disease. The last time I had my infusion about 4 weeks ago now I had a bad reaction and went into anapylactic shock, not being able to breath, passing out, back pain and fitting enough to scare all the other poor people on their infusions that were watching. Which was funny looking back at it especially as when I came round I could smell something not very nice and the first thought was oh no have I had an accident and kept on asking my boyfriend If I smelt.... luckily I hadn't but it made for some good jokes afterwards.
I have been a bit ill since then having a lot of pain in my legs and constantly feeling like Im going to be sick and occasionally doing so, and constant need to go to the toilet which is just getting sore.
Trying to stay as positive as I can and try and carry on as normal, Thank you for reading my story sorry if its a bit long did try and keep it as short as possible
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