Holy side effects?

[Manorexico]

So I started my loading dose last Friday, whilst also being on 100mg of Imuran, and 20 mg of pred.

I had also had a small bowel enteroscopy the day before my first injections that had been complicated by the prep getting stuck on a stricture. Well he couldnt get to where my stricture is because of inflammation lower in my illeum when the stricture is in my jejnum...but thats a whole different story!! I was in a bit of pain from that let me tell you.

My main question is this I am soooooo tired. I am slowly able to get out of bed again but for the first couple days after my injection I was really really exhausted. The imuran has made me tired for a while but nothing like this. Today I was able to get away with only a 3 hour nap, but completely unable to get out of bed before yesterday. Has anyone else had this happen? I am wondering if its from the procedure or the drugs. I go in to see my GI doc Thursday because he is concerned about more belly swelling but I just was curious if anyone else was like me.

I have had no injection site rashes or bruising nothing else just very very tired.

 

[Dunbar]

It could be both. You've been through a lot; crohns, meds, procedures and pain. I think your body needs the rest. lol I have been on Humira for two years and still require down time every day. Three or four hours of activity and I can power snooze for 20 minutes or drop for three hours, I never know which its going to be until I wake. My Dr. says (imagine scottish brogue) "My dear, you have a most terrible disease, of course you are tired-sleep". Hopefully when the inflammation and other symptoms subside your energy will return.

 

[Manorexico]

I hope it eases up so I can manage a short nap per day. I have two kids who are still to young for school so I have to try to get my energy level up somehow. Right now I have people coming to help me care for them and myself thankfully. I just cant keep this up forever though, I will have to come up with alternate arrangements for child care or something. I do hope it calms down a bit though.

 

[tots]

I had small kids during a few of my bad flares and my husband worked late at night. When I needed down time the kids and I would go into my room with books, crayons paper etc and a cartoon channel on low. I put the bed on the floor- easy for my baby to get up and down. Its amazing how much rest I was able to get!

I hope you can manage that and you feel better soon!

Lauren

 

[Manorexico]

The bed on the floor is a wonderful idea! I am going to do that this weekend; I never would have thought of that.

 

[TammyKathleen]

My Humira shots make me exhausted for about 2.5 days. It's the pits!

(And I love the bed on the floor! Doing this is almost as good as taking a vaction. I don't know why. Maybe it is like when we made forts in our living rooms as kids?)

 

[Manorexico]

My doc said that the exhaustion could be normal but he is running a bunch of blood work just in case. He wants to make sure the prednisone is not messing with my endocrine system. Crap.

 

[sammies]

You are somewhat reassuring me. I was doing so well last week until Thursday when crohns symptoms started sneaking in as they usually do a day or so before the shot. Had an MRI/MRE on Friday and did the humira injection on Saturday. Today is Wednesday and I still feel very funky, I fall asleep hard just about whenever, have bouts of nausea, my head is pounding, and my back is spasming and hurts like heck. Usually i have 2 days of foggy groggy head, fall asleep everywhere, and general malaise. When am I gonna feel better? Mb it is the combo of the barium swallow and the shot and needing the shot. I'm a teacher and worried about the shot during the fall.

 

[michaelearnest]

Have you tried taking the Imuran at night before you go to bed? I have done that for a year now and it helps. The only rule with the Imuran is your suppose to take it around the same time each day.

 

[Manorexico]

I am 150mg of imuran a day, I take 75 in the morning 75 at night as per my docs orders. I wish I could just take it at night. I am hoping that once I go into remission we can lower the imuran dose by a lot, but as nothing is working yet we still have out the big guns. I did feel better a week after my first loading dose though. I just did my second and had a rough two days.

 

[Aura]

I'm on 100mg Aza and Humira, I am buggered - totally stuffed the afternoon and day after the jab. I am pleased to here that I am not the only one - I do not feel so bad about sleep for 3 hrs during the day now. The nausea is driving me nuts - but I forgot I had pills for that. My crohns appears in remission - and I am left with some real good fatigue. Thanks for your posts, at least we are all in it together.:biggrin:

 

[Billk78]

I also get very tired for 1-2 days after my injection.

 

[Sugar]

Yup,not alone. Been on Humira 2years this October and the tiredness has pretty much just subsided in the last couple months. I was sleeping minimum of 12hours per day, t'was crazy! The one thing I have changed is, daily doses of Vit D, B12 complex with Folic Acid and Potassium. Maybe it's the vit's? I don't know but I have more energy now and don't sleep all day.