- Joined
- Sep 16, 2011
- Messages
- 3
:ybatty: :sign0144:
I currently have no diagnosis.I feel lost, alone and like ****. Two years ago I had sudden, abdominal pain coupled with fever and diarrhea. I was hospitalized and given invasive ultrasounds, blood tests and jello. They thought it was either my appendix or my ovaries. Both checked out 'fine'.
I followed up with my doctor who ordered more blood test and a stool sample. Healthy. Still experiencing persistant pain and had horrible bowels. Now suffering from acid reflux, I can't lay down flat to sleep anymore. Had a scary, horrible bloody stool went to the ER, where the doctor did a fecal occult and said 'this measures blood cells and is sensitive enough to measure a fraction of a fraction of a blood cell, you have NOT had bloody stool" AND THEN SAID "Maybe you ate spaghetti? Are you on your period miss?" :ybatty::ybatty: No joke. I'm 32 I know what bloody stool looks like, i know what a menstrual cycle looks like you a**.:ymad: I digress...
Then I was sent to a Gastrointerologist, who ordered colonoscopy, after two attempts, the first liquidprep wasn't going down,caused uncontrollable vomiting, then the second pill prep worked. Had two polyps removed and tissue samples taken, tissue was 'normal', polyps were 'precancerous'. Sent to get a Celiac blood test and an Upper GI. I was told I looked healthy and that they test for celiac was 100% accurate. ( is anything 100 percent accurate?!)
I'm always exhausted, can hardly eat any food, no dairy, spices, fruits, veges, red meat, sodas, juices, coffee nothing. I can't. They make me almost instantly sick to my stomach. I eat chicken and rice mostly and even obstain from that occasionally when I'm feeling especially sick because I know the consequences. I sweat all night, I know it's summer but I don't remember this happening before. My joints hurt, My legs hurt, I want to put my feet up any chance I get.
Now I have flaky red patches about 2x2 inches mostly in a few different spots, and small bright red bumps that are on my breast, buttocks, thighs, shins and stomach. They look kind of like bug bites but don't itch or go away. If they 'go away' really they've just turned a weird purple color. I'm no web MD self-diagnosis seeker but I'm convinced its related.
I've had the pain in my 'stomach' for 2 years now. It's so bad sometimes and so sudden I've bent over and smacked my head on my desk from doubling over so fast. Normally I just go to the bathroom and cry for a few minutes while holding on to my gut. I have bloody stools 5-6 times a week and the frequency, urgency and pain of my bowel movements is increasing.
I went to the Gastrointerologist today who said maybe I have a lot of bacteria in my small intestine. There are few labs in California who test for it but he'll perscribe me a 20 pills in ten days antibiotic treatment and I'll be 'cured' YEAH he said cured. I'm thinking ...wait.... I don't even have a diagnosis but a cure is possible? why didn't we talk about this YEARS AGO? Oh, and when I asked about my skin problems he said "internal problems do not present externally". Oh, AND the miracle medication is not covered by insurance and cost something like $600.
I asked my regular doctor for a refferal to an acupuncturist because I've read some things on it, but insurance denied it because it's not joint pain. So frustrating. I want treatment possibilities. but no.
Back to the story.... Need-less to say I've made an appointment with my primary care physician (HMO) to get a referral for a second opinion. Am I doing something wrong, Is the medical field just like this? Is there a magic/code word to get help? Abra cadabra? Poop? No? I've asked, asked and asked for opinions on food choices, medicine for acid reflux, resources and have gotten no help. 'I can't give you meds for acid reflux, the scan didn't show that you suffer from that condition". UH but I DO SUFFER! IT BURNS.
Is it normal to not have a diagnosis because the test(s) is/are 'inconclusive' even though the symptoms are there? I know a diagnosis won't cure me, but I'm so over being told nothing is wrong.
p.s. I'm not in seattle. I just loved that movie and couldn't think of a title
I currently have no diagnosis.I feel lost, alone and like ****. Two years ago I had sudden, abdominal pain coupled with fever and diarrhea. I was hospitalized and given invasive ultrasounds, blood tests and jello. They thought it was either my appendix or my ovaries. Both checked out 'fine'.
I followed up with my doctor who ordered more blood test and a stool sample. Healthy. Still experiencing persistant pain and had horrible bowels. Now suffering from acid reflux, I can't lay down flat to sleep anymore. Had a scary, horrible bloody stool went to the ER, where the doctor did a fecal occult and said 'this measures blood cells and is sensitive enough to measure a fraction of a fraction of a blood cell, you have NOT had bloody stool" AND THEN SAID "Maybe you ate spaghetti? Are you on your period miss?" :ybatty::ybatty: No joke. I'm 32 I know what bloody stool looks like, i know what a menstrual cycle looks like you a**.:ymad: I digress...
Then I was sent to a Gastrointerologist, who ordered colonoscopy, after two attempts, the first liquidprep wasn't going down,caused uncontrollable vomiting, then the second pill prep worked. Had two polyps removed and tissue samples taken, tissue was 'normal', polyps were 'precancerous'. Sent to get a Celiac blood test and an Upper GI. I was told I looked healthy and that they test for celiac was 100% accurate. ( is anything 100 percent accurate?!)
I'm always exhausted, can hardly eat any food, no dairy, spices, fruits, veges, red meat, sodas, juices, coffee nothing. I can't. They make me almost instantly sick to my stomach. I eat chicken and rice mostly and even obstain from that occasionally when I'm feeling especially sick because I know the consequences. I sweat all night, I know it's summer but I don't remember this happening before. My joints hurt, My legs hurt, I want to put my feet up any chance I get.
Now I have flaky red patches about 2x2 inches mostly in a few different spots, and small bright red bumps that are on my breast, buttocks, thighs, shins and stomach. They look kind of like bug bites but don't itch or go away. If they 'go away' really they've just turned a weird purple color. I'm no web MD self-diagnosis seeker but I'm convinced its related.
I've had the pain in my 'stomach' for 2 years now. It's so bad sometimes and so sudden I've bent over and smacked my head on my desk from doubling over so fast. Normally I just go to the bathroom and cry for a few minutes while holding on to my gut. I have bloody stools 5-6 times a week and the frequency, urgency and pain of my bowel movements is increasing.
I went to the Gastrointerologist today who said maybe I have a lot of bacteria in my small intestine. There are few labs in California who test for it but he'll perscribe me a 20 pills in ten days antibiotic treatment and I'll be 'cured' YEAH he said cured. I'm thinking ...wait.... I don't even have a diagnosis but a cure is possible? why didn't we talk about this YEARS AGO? Oh, and when I asked about my skin problems he said "internal problems do not present externally". Oh, AND the miracle medication is not covered by insurance and cost something like $600.
I asked my regular doctor for a refferal to an acupuncturist because I've read some things on it, but insurance denied it because it's not joint pain. So frustrating. I want treatment possibilities. but no.
Back to the story.... Need-less to say I've made an appointment with my primary care physician (HMO) to get a referral for a second opinion. Am I doing something wrong, Is the medical field just like this? Is there a magic/code word to get help? Abra cadabra? Poop? No? I've asked, asked and asked for opinions on food choices, medicine for acid reflux, resources and have gotten no help. 'I can't give you meds for acid reflux, the scan didn't show that you suffer from that condition". UH but I DO SUFFER! IT BURNS.
Is it normal to not have a diagnosis because the test(s) is/are 'inconclusive' even though the symptoms are there? I know a diagnosis won't cure me, but I'm so over being told nothing is wrong.
p.s. I'm not in seattle. I just loved that movie and couldn't think of a title
