Hospitalizations

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
May 19, 2011
Messages
263
For those of you who have been hospitalized because of pain etc., NOT surgery, what can be done for you in the hospital that you cannot do for yourself at home. I'm blowing up like a balloon, and the discomfort is increasing. I really don't want to go back on Pred, am only on Pentasa right now. Seeing GI on Wednesday. Worried that he will want to DO more stuff to me. I have a stricture, and perhaps it is causing problems.
 
IV medications - usually steroids - nutrition given via IV to give the gut complete rest.....also constant monitoring of bloodwork and pain management if needed.....
 
I got a blood transfusion, IV fluids, colonoscopy, constant monitering of weight and vitals and IV medicine.
 
I got IV hydrocortisone, IV saline, metronidazole, codeine phosphate, morpheine and some horrible food! Yak
 
I got IV hydrocortisone, IV saline, metronidazole, codeine phosphate, morpheine and some horrible food! Yak

I was on a liquid diet for the first 3 days in the hospital...wish I had some horrible food instead lol. I begged for saltins one night and still got broth and and nasty jello
 
For me being admitted & hooked up to a drip means being able to get IV pain killers because once I start vomiting I cant stop & everything comes up.
And another thing that really helps for me is an NG tube, the release of pressure once my belly starts draining is wonderful. I used to hate NG tubes after a particularly bad experience for & during a small bowel follow through, but the technique of swallowing some water whilst the tube goes down my throat really works for me.
Rgds
Grant
 
Thanks everyone. Saw GI today...he was in a bit of a rush, but added Entocort and Imuran to my Pentasa. No blood work, no tummy check, and he frowns on pain meds, so I let it go for now. I'm hoping the Entocort will help, but if not I'm going to bite the bullet and go to the ER if this pain continues. It's not outrageous but just always there and my lower tummy (apron area) seems to be very very sensitive and growing.
 
All I have ever gotten was an IV and Demerol, Morphine, ect. and a phone call from my GI telling me I need a new med. I'm not too fond of hospital visits but when you get pain meds it makes it a bit more tolerable.... ;)
 
I got IV antibiotics painkillers and a catheder. I am better once the painkillers set in and can start to fuction a bit better. No one likes going there but sometimes it is just for the best and can help imensely. Hope all is getting better!
 
Can I go to your hospitals? I just about was given IV steroids, asks for IV fluids as I felt I was flushing my own bowel everytime I drank and was told NO, was offered a paracetamol for pain, shared a room with 5 very elderly ladies ages 68-92, had a 14inch tv that was a mile away and only 3 channels and the food don't even get me started!!! But having said that, even though I moved over 40 miles from the hospital, I wouldn't change, Do I need to be going to a head doctor also???? :shifty:
 
Thank God that even though our healthcare system in the US is profoundly broken, I have good private insurance and my daughter gets a private room at the children's hospital when she's admitted (because all they HAVE are private rooms, by design.)
 
Now me, I'm not so lucky. I generally get to share with 3 others. Last time, there was a quite large 6 foot 5 inch mentally disabled man who kept slipping his restraints and wandering around in a rather angry manner. Not much sleep was had by me.
 
Our poor healthcare system is as ill as me some days, they are discussing wether to close some ER's around the country and making some others a daytime system!!! as they are over budget. They are saying it will only be till the end of the year, if you believe that!
 
Now me, I'm not so lucky. I generally get to share with 3 others. Last time, there was a quite large 6 foot 5 inch mentally disabled man who kept slipping his restraints and wandering around in a rather angry manner. Not much sleep was had by me.

The lady that was 92 was the same on my ward and she was bigger than me also, myself and the other ladies had to shout at her to stay in bed, poor love. I was glad to get home get more sleep with my two young children than I did there, and I was supposed to be getting rest.
 
I've only gone to the ER once for the Crohn's. I'm more of a tough-it-out type. Only reason I went was because I was passing SO much blood I was afraid I'd need a transfusion. I was in immense pain as well. I didn't need blood, but they gave me morphine and did a CT scan to make sure there wasn't a blockage (there wasn't).
 
Now me, I'm not so lucky. I generally get to share with 3 others. Last time, there was a quite large 6 foot 5 inch mentally disabled man who kept slipping his restraints and wandering around in a rather angry manner. Not much sleep was had by me.

I was like that too, but my Dad complained to the administration that since my immune system was compromised because of all of my medications that I needed to be in my own room because I could easily contract something and be in a really bad situation. It's worked every time so far and I'm in the US as well. Granted, I have an amazing health insurance policy because of my Dad's work so that might have something to do with it too.

What I get at the hospital is immediate attention and IV meds and nutrition which helps me to get relief. At home I have to wait at least 15-20 mins for pain medication, longer for actual crohn's treatment and sometimes it's weeks before I see the doctor because they think they can put me on the back burner. (Well, my last doctor anyway) I can also get transfusions for blood or iron, or even both. I find also with things going through my IV it's a lot easier than taking it in a pill because it just seems harder to absorb, but that's been my experience.
 
It's true that the hospital is the best place during a bad flare but becoming addicted to the care and attention you receive in the hospital is a real danger for some people.

My insurance is pretty darn good. Excellent, I'd say, but private rooms are harder and harder to get.
 
Also a good point, but I think it's worth the risk to make sure if you're in a really bad spot to have immediate care and treatment otherwise things can turn south pretty fast.
 
I went in twice in the last few months. The hospital I go to is a really great hospital (really good food actually!)

They gave me morphine for the pain last time, but it didnt do anything for me at all, so they followed with Dilaudid (spelling?) and that completely knocked me on my butt. They had to give me Benadryl cause I got all itchy. They pushed a lot of IV fluids cause I was a bit dehydrated and a lot of IV steroids which had my inflamation knocked down within 36 hrs. I hate going to the hospital, and when I go, its always a necessity, but they are very good to me and its worth the trip.

I cant do any of that for myself at home. My insurance is awesome, and I always have a private room. The last insurance statement came and my 5 day hospital visit with all the drugs and everything was over $25,000.00. I paid $50. (I live near Richmond, VA USA)
 
Wow, Jesseiam2, you really do have good insurance. I'm glad to hear that your experience with the care and treatment is so positive. Here's hoping you don't have to go again, at least for a long while.
Judy
 
Matt has been hospitalised twice in the last 6 months because of pain, he was flaring. Both times he was put on nil by mouth so had an IV for at least 5 days and received IV Hydrocortisone, IV Flagyl, IV Gentamycin, IV Ampicillin, IV Panadol and IV Morphine.

Thankfully in Oz public hospital treatment is free. :)

Dusty. :heart:
 
I've been telling my wife that we should emigrate to and obtain citizenship in either the UK or Canada, for many reasons but also for Sarah's sake medically. She's not buying it. :p
 

Latest posts

Back
Top