Hospitalized... Again!

[Crohns08]

Hey all!

I haven't been around much the past couple of days, don't know if you guys noticed or not Lol. But I have been hospitalized again since Monday and they plan on keeping me until at least Friday morning. My disease as progressed and I haven't been having real bms, just mucous and blood. They think I might be bleeding from my ileum and so I've been on morphine to control my pain. We had a new GI I'd never met before come in and talk to me and he spent a lot of time talking to me about all of my options and he convinced me to try humira. I can't keep suffering and he really made a case for the drug and I felt like I could trust him. He also personally printed out all of his references and articles so I could see the information for myself and make my own decision with my parents. I've been on clear fluids since Saturday and every time I use te bathroom it exacerbates my symptoms since I now have crohn's disease in the perianal area along with my colon. We plan to start humira Thursday and watch me for twenty four hours to make sure I don't have a reaction. They were able to give me an iron infusion but it has made me really nauseous today. So overall, still feeling like crap, but I'm on the road to recovery finally I think. I also believe it was meant to be. This GI they sent me is retired but started the group here and is only here one week out of the month and I've been praying for a way to finally get well. I know not everyone might have religious beliefs such as mine but it is what I choose to believe based on this journey I've been on for eight months now. The thought of remission and finally having my life back is the only thing that is keeping me going. That and the support of my family.

 

[Dallies]

Hiya Toni, I think you are in the best place and I am hoping you are in remission as soon as possible sweetheart. Thinking of you xxxxxxxxxxxxxxxxx

 

[Dras]

I'm so sorry that you are going through a rough patch. Holding thumbs that this new GI(who sounds promising) can get you to that much deserved remission!

Good luck!

 

[2thFairy]

Maybe this is just the Doc you need! Sending good vibes your way.

 

[rottengut91]

Sorry to hear you're in the hospital, but glad you see it as a blessing. Hope the Humira is the answer for you. Enjoy that morphine while it lasts!!!

 

[bethany84]

Sorry to hear you have been so poorly. I hope this new doc and humira sets you on the right path for a while so you can get back to enjoying your life again. x

 

[ameslouise]

Hi Toni - Good luck and I hope you start to feel better soon. The Humira can take a little while to kick in, so I hope it starts to work for you and fast!

Hang in there! - Amy

 

[lseibert]

Sorry Toni to hear what you've been going through, I think you're in the right place to get the help you need. I hope it all works out and you can go into remission. Sending you prayers and hugs.

:hug::hug::hug::hug:

 

[Crohns08]

Thanks everyone for the positive thoughts and prayers! The docs are saying they'll have to release me tomorrow possibly so I can get my humira shots because my insurance doesn't want to cover it until I'm eighteen. I turn eighteen in a couple of weeks though so they said they can give me a free first dose and by the time I'm due for the next one I'll be eighteen so it won't matter. I'm just nervous because I'll still be in pain, but they said they would send me home with pain meds and I have to trust my new doctors. Plus my Dad says if the pain meds don't work and I'm in pain again he'll bring me back, just like he did this time and I trust him. I just hope everything goes well! I want to go home but I don't want to be suffering like I was all of last week.

 

[Lucy]

Toni so sorry to hear about all your pain. Your so young to have to deal with all this. Sounds like your dad is a special person. Dad's love their little girls. I hope the Humira works quickly. I'm on Humaira and it's the only thing that helped me. Not as good as in the beginning, but so far no surgery. Take care and thoughts and prayers your way.

 

[gypsigirl28]

Hi Toni, I am sorry to hear you are suffering... I hope the new meds and new doc helps you out. You are in our thougths and prayers. Good luck

 

[Silvermoon]

(((((((((((((((( Toni )))))))))))))))) I am so happy to hear you have, what sounds like, a pretty awesome family to be there and advocate for you....

I hope something works for you soon, Sweetie..... you definitely deserve the best..... :rosette2: :rosette2:

Lots of love and squishy hugs.....

 

[ACNewt]

Hi, Toni. I have to say, you are an incredibly mature woman to be handling something like this so gracefully and with such a good attitude. I don't think I would have been so capable at 17. And how lucky you are to have a wonderful Dad! Dads are truly the best. I know we don't know one another but know that I am praying for you to get better.

 

[Entchen]

So sorry to hear you are still suffering, Toni. Wonderful that you see this week as Providence, and I'm confident that you are right. A doctor in the right place at the right time, turning 18 just in time to receive a needed medication, and a wonderful dad to walk this path with you. Yup, Providence indeed. We had a Thanksgiving service in chapel this morning (I work at a Christian college) and we were reminded of the importance of being thankful for the little things -- I believe that includes those little "coincidences" like meeting the right people such as the doctor you have worked with this week.

 

[Crohns08]

Thank you all for your positive thoughts and prayers, they mean a lot to me and certainly do help! I only just got released from the hospital and I've been home for an hour or two trying to sleep but to no avail. I've gotten to the point where I can eat soft foods now and not hurt as long as I take a protonix and a tums and occasionally zopran (sp?). I had to get a blood transfusion and an iron infusion. The iron made me pretty sick the next day and I couldn't even hold water down, but that went away about half way though the day. The blood is already making me feel a bit better. I liked all of my nurses except one. I had a vein burst and it felt like my arm was on fire and being stabbed. The pain was second only to kidney stones and she was more concerned with getting the transfusion set up than trying to help get the IV out and get me my proscribed pain meds. Needless to say we got a different nurse. Other than that, my stools are getting a brown color back now that I'm eating, they're still pretty mucousy though and it hurts very bad to go. My disease has progressed to parts of my colon and the rectum-perianal area. Tuesday I start humira as an out patient and my Dr. thinks once I do that I should be feeling tremendously better which I can't wait for! In the meantime I'll be on five different meds though but at least they should keep my pain under control. The worst part of this is the pain. (((hugs))) to all of you.

 

[Dras]

Hang in there sweety, hope you feel better very quickly on the new meds!

 

[can1991]

Hang in there Toni!

I have been on Humira since May 2010 and it has been wonderful, except I now need to increase from bi- weekly to weekly injections because it has not been strong enough to keep this Disease at bay.

My dr warned me at the beginning the dosage my need to be adjusted.

Within days of starting it, I noticed a big improvement!

Glad your feeling a little better though!