- Joined
- Apr 5, 2014
- Messages
- 263
8 years with Crohn's...and moments like these I ask if I was born yesterday because of mistakes made. Has anybody on here repeated mistakes?
First, I'm sorry for running to this forum whenever something comes up...I feel really bad I haven't been as active on here.
My history is on other posts I've made in the past, but update: I have been doing great with Humira and 6mp in the last 1+year...until 2 weekends ago (my bday and Mother's Day). Recap: In 2015 Humira was added and 6mp was lowered to alternating 50mg/75mg every other day. Over the past couple years, minus some rough patches, I've been doing really well....to the point I felt great and consistently forget about the rough times/recurrence of symptoms.
With that said..The last year has been immensely stressful. My mom's breast cancer returned last summer, metastasized to the bone, sister's wedding in August, moving apartments in Sept, a bunch of activities/weddings Feb-March, working OT since last summer including weekends, and on top of that, my dad was diagnosed cancer as well in April of this year. Stress is an understatement. With this, the extra 25mg of 6MP every other day has slipped away gradually from me over the past several months as I've come home exhausted + i've felt fine (knocking on immaturity's door again -_-) So I've basically been taking just 50mg daily (and Humira every other week) for Lord knows how many months. When I think about it, maybe this contributed to this little "flare" and i get scared thinking of the damage I may have done....and the progress I've made so I get upset...moreso, I remember being off and on 6mp in the past (due to my own immaturity), but I vowed to be responsible...and this time i slipped back due to everything else in my life. I restarted adding 25mg every other day last week and I'm due to see my GI next month.
Sorry for the rant: I'm just...very scared.....i'm hoping we don't build resistance to 6mp? How much damage could be done from missing 25mg x4 days/week (that's 2 pills a week I think).
I will never forgive myself...I used to avoid these meds, but Humira and 6mp have become my best friends right now, because with my symptom of RLQ pain...my world stops and I go into an instant depression where I don't want to do anything until all is ok again.
Has anybody on here missed a big chunk of their meds? Anybody else fall away from being responsible with our illness or make mistakes?
First, I'm sorry for running to this forum whenever something comes up...I feel really bad I haven't been as active on here.
My history is on other posts I've made in the past, but update: I have been doing great with Humira and 6mp in the last 1+year...until 2 weekends ago (my bday and Mother's Day). Recap: In 2015 Humira was added and 6mp was lowered to alternating 50mg/75mg every other day. Over the past couple years, minus some rough patches, I've been doing really well....to the point I felt great and consistently forget about the rough times/recurrence of symptoms.
With that said..The last year has been immensely stressful. My mom's breast cancer returned last summer, metastasized to the bone, sister's wedding in August, moving apartments in Sept, a bunch of activities/weddings Feb-March, working OT since last summer including weekends, and on top of that, my dad was diagnosed cancer as well in April of this year. Stress is an understatement. With this, the extra 25mg of 6MP every other day has slipped away gradually from me over the past several months as I've come home exhausted + i've felt fine (knocking on immaturity's door again -_-) So I've basically been taking just 50mg daily (and Humira every other week) for Lord knows how many months. When I think about it, maybe this contributed to this little "flare" and i get scared thinking of the damage I may have done....and the progress I've made so I get upset...moreso, I remember being off and on 6mp in the past (due to my own immaturity), but I vowed to be responsible...and this time i slipped back due to everything else in my life. I restarted adding 25mg every other day last week and I'm due to see my GI next month.
Sorry for the rant: I'm just...very scared.....i'm hoping we don't build resistance to 6mp? How much damage could be done from missing 25mg x4 days/week (that's 2 pills a week I think).
I will never forgive myself...I used to avoid these meds, but Humira and 6mp have become my best friends right now, because with my symptom of RLQ pain...my world stops and I go into an instant depression where I don't want to do anything until all is ok again.
Has anybody on here missed a big chunk of their meds? Anybody else fall away from being responsible with our illness or make mistakes?
You can rant all you want to here. The people on this forum are here to support you. You are a strong and courageous person to have experienced all you have this past year and to make it through it all. 
