How would it feel?

[EvieBaby]

Just as a general discussion, I imagine nearly every day what it would feel like to feel perfectly healthy just for a day.

I know for me, I feel like this has crept up on me over time and I'm so used to feeling really rubbish I often imagine that if I were healthy for a day, how bad it would feel to slip straight back into the usual feeling.

This disease holds us back from doing so much - what would you do with your day if you felt amazing and had nothing holding you back?

I would go to a theme park with my daughter, go for a delicious meal and choose whatever I felt like, and then go the cinema. Maybe join my friends for a night out afterwards. It doesn't seem like much but I can't really do any of these things and I really really want to!

 

[FrozenGirl]

I feel the same way. I would be scared to get used to being healthy and have to go back.

That said, theme parks are awesome. I would do Disneyworld, go out for a late lux dinner (and order a side salad) and have desert. Then I would go enjoy the nightlife since I have never done that, dance the night away, have a drink or two. Just really enjoy myself.

 

[bloke]

I remember when I had my first course of prednisone and feeling energetic like I hadn't known since my teens and being amazed at how it felt and how fantastic it must be for people who get to feel like that all the time.
Unfortunately whenever I came off the course I dropped back within a week or so and eventually ended up having colon removed. Would love to say that I took advantage of the good times but I ended up working crazy long hours, all for a company that made me redundant as soon as things got really bad.
Moral of story is to appreciate the things that really matter whilst you can.

 

[EvieBaby]

You're absolutely right. When we do have good days we tend do get on with the boring things don't we? Last Saturday I took my daughter to the cinema because she had been so good while I was recovering from being in hospital. I felt OK so thought I'd risk it and we had a great day. I'd love to be able to do that any time.

 

[shamrock15]

You will get a treatment plan that will work for you, hopefully sooner rather than later. Bloke is right, make the most of the times when you get them. Learn to enjoy those moments, and I have found that it pushes back some of the bad ones. I am fortunate that remicade and imuran have finally given me relief. The fatigue is still there, but you can feel better again. It will come for you.

 

[aideen33]

Id like to take my kids to the park without monitoring where the bathrooms are, how long ive been in the sun, and when i need to leave to make sure i have energy to drive home.... Id love to go out and order whateever i want to eat, not what i know i can eat..... *dreaming of the day when maybe some of that will be possible again*