Humira heaven now humira hell :-(

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Oct 7, 2011
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Ive been on humira for a year now, it started off fantastic but at Christmas things started to change I started to get really badly bunged up (nose) and had problems sleeping I started using beconase to clear this but that's stopped working now. So im at the point of being permanently bunged up one end getting loose again the other and have a permanent cold and a wheezy chest and constant sore throat I sleep about 3 hours a night and am starting to get the dreaded tummy pains again. Next injection due next friday and I really don't want to take it. I FEEL YUK!

Sorry to have a moan :-( :-( :-(
 
Hope things turn back around for you. Humira doesn't seem to keep my kid awake, but prednisone sure does! She can fall asleep fine, but when she wakes up in the middle of the night to use the bathroom she fights to fall asleep again. Can't wait to drop prednisone.

Have you spoken to your doc about getting the Humira blood levels test to see if maybe you should up your dosage of Humira to weekly?
 
Oh and yeah my biggest worry is going back on pred its awful until you get down to 20 mg's s day
Thanks for the reply.
 
Have you gotten your blood test results back yet? You could always consider going on another biologic if Humira has failed for you, too. Hopefully if you don't experience symptoms you may not have to go on prednisone in the meantime, or you could ask to go on entocort instead which is similar but milder.
 

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