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RissaIUP2016

RissaIUP2016

Joined
Nov 9, 2012
Messages
91
I have been on Humira since January 25, 2013. And I haven't felt this great in a long time! It started working almost immediately, the next day after the initial dose with 4 shots I was extremely tired and fatigued. When I get the two sots two weeks later, I was hardly tired at all, and with one shot I don't even notice anything different. I only have had cramping and pains once because I ate Chinese. I feel like I finally have my life back, and I'm not constantly worrying about when I am going to have pain again, and what I can and cant eat. I feel so amazing! :ybiggrin:
 
That's fantastic! Very happy to hear that Humira is working for you. :) I'm a newbie to it as well, just "celebrated" with a one month shot yesterday.
 
Wow thats great news! It makes sense that you felt "off" during the initial doses because that's a big adjustment on the body but I'm so glad it's working for you. I saw that you were newly diagnosed and I'm so happy for you that you don't have to go too long without proper medication and I hope it continues to work for you
 
It's great to hear success stories - gives hope that things will get better.
My son just started on Humira in January as well (added to his 25mg of Methotrexate). He's currently tapering off prednisone and seems to be feeling MUCH better... long may it last!
 
I started Humira after becoming allergic to Remicade and I <3 it. Easy to do, no hospital visits, and it works! I can feel it's effects each time I have a shot.
 
I am so happy its worked for you! :)
I was symptom free for 2 years on humira! it is my wonder drug!
xxx
 
Nope none so far!
It's gotten more painful to administer. But apart from that, no side effects.
Xx
 
I'm glad you feel so good on it! I felt great on it as well! And you're right, it pretty much started making me feel better immediately.
 
S mom said:
It's great to hear success stories - gives hope that things will get better.
My son just started on Humira in January as well (added to his 25mg of Methotrexate). He's currently tapering off prednisone and seems to be feeling MUCH better... long may it last!
Click to expand...

I was on prednisone when I was first put on it because NOTHING was helping me. And once I got down to taking 3 a day with no pain I knew the Humira was working, because any other time I would be in so much pain if it got that low.

I hope it continues to work for the both of us! :)

I get another shot today! :)
 
Has anyone had chronic headaches associated with humira? I've seen a neurologist and had a large battery of tests done, blood, spinal tap, MRI, ct scan. Nothing wrong neurological. So they want to perscribe another drug for headaches. :( since I'm suffering from headaches, and fatigue I argued with 2 M.D's already. The new drug causes fatigue as well, so frustrating. Ideas?
 
Hi Scaryman, I too have had headaches with Humira. I've now been on it for just over 6 weeks and I seem to have it much easier than you because I'm guessing you've been on Humira for years/months. I found that I had terrible headaches for about the first four weeks, then only mild ones since. Like you I had MRIs and other tests done to eliminate any other cause, and yes, the headaches are definitely from Humira. Since my headaches are only mild now though I can deal with it.
I'm sorry you're having such a tough time, and I can't offer advice about other drugs, but I wish you all the best.
 
So glad that it is working for you as well!!!
I was diagnosed with Crohn's Feb. 22nd, 2013 and was started on Humira March 13th when prednisone alone wasn't cutting it. I felt immediate improvement (within 48hours) as well and it is what saved me from having to get my entire large intestine removed! I am now tapering off the predinsone and doing great.. I have been able to eat what I want (except for gluten) and have high hopes that it will continue to work for me!
Hope it keeps you feeling great for a long time.. super happy for you :thumright:
-Mariah
 
Did your doctor give you Remicade first or just used Humira? Most doctors keep Humira as a last resort trump card because there isn't anything better currently. I am glad you are feeling better :) I hope you stay that way because there is no more options left after Humira. But I know new medicine will come out soon. Yay for remission.
 
My GI doc made it sound like remicade and humira are similarly effective but he likes humira better so we went straight to that. I didn't think to ask too many questions as my situation was kinda of a "act fast or there is a 50% chance you'll have to get your entire large intestine removed" thing. hah.
I'm so new to the disease (I had no symptoms until Feb. 2013 and was just diagnosed until March 2013) so I don't really know what to expect yet, but hopefully Humira will continue to work for me!! Ekk!!
-M
 
Yea... Remicade and Humira is very similar. Remicade came out first. It was developed from rats blood compared to Humira which was developed from human blood. :) Wow you got diagnosed like last month! Hang in there :)
 
With Humira, sometimes I forget I have CD, I really do, which is good and bad, because sometimes I'll binge on so much junk and some booze on the weekend, but during the week I eat lots of fruit, take supplements (zinc, calcichew D3 Forte and multivitamin drinks) as well as long walks and some weight lifting at home, although that's minimal.

Humira is awesome, no more abscesses at my butt, no more drainage, good times. On it 19 months now and on Imuran over 3 and a half years, just got my bloods done, everything perfect, life is good!

Congrats to the OP! Long may you feel great, the same to my fellow humiraites, the coolest kids on the forum!

:p
 
That's great to hear! I only started it a month ago but I'm already feeling so much better - I've been off Prednisone now for 3 weeks and my symptoms haven't come back! Hoping this lasts a long time :)
 
RissaIUP2016 said:
I have been on Humira since January 25, 2013. And I haven't felt this great in a long time! It started working almost immediately, the next day after the initial dose with 4 shots I was extremely tired and fatigued. When I get the two sots two weeks later, I was hardly tired at all, and with one shot I don't even notice anything different. I only have had cramping and pains once because I ate Chinese. I feel like I finally have my life back, and I'm not constantly worrying about when I am going to have pain again, and what I can and cant eat. I feel so amazing! :ybiggrin:
Click to expand...

Wonderful to hear that its working so well for you :))
 
Boy, I loved reading this post!

I will start the Humira this weekend and Ive half dreaded it and half looking forward to it to stop this flare. Hoping for no side effects at all, but we'll see. Been on Entocort for a year with no results. The Doc gave me the choice of Remicade or Humira. I have to have a positive attitude. It's that or roll up in a ball. :lol2:

Ended up in the ED yesterday after a partial obstruction the night before. This was my 4th obstruction in the last year so I just have to do something to open up the bowel. It's narrowed down from the inflammation of the Crohns and scar tissue. The obstruction pain is the absolute worst of the symptoms I've had.
 
Happy to hear the successes!

I've been on Humira over three years, no headaches or side effects.

Good Luck to All!
 
Glad to hear about all the success stories! I have recently been approved for Humira and will be having my first loading doses in the coming week probably. Reading these posts have really helped with the amount of worry and nervousness I have right now going into it. I am glad to hear several people saying that it is working for them with little side effects! I was diagnosed with Crohn's a little over three years ago and this is my first go around with the shots. Any words of advice from anyone?

Scaryman...did you get a lot of headaches before the Humira? That is also one of my concerns with starting the Humira as I get Migraines and headaches from time to time. Was just wondering if you got them often before starting the Humira...
 
I sure was glad to find this post! I will be starting Humira this week, I'm a BIG chicken about self injecting. I have a nurse coming to start me with the 4 shot loading dose, I better pay attention and learn how to do it! My nephew recently started Humira and is doing well, it sounds like everybody in this thread is doing well on it also. I'm encouraged!
 
Did my first 4 injections yesterday. Piece of cake on the injections! You're going to do fine. Choosing injection sites was the hardest for 4 shots. I wanted to put one in my arm, but almost impossible on my own unless I leaned on a doorway or something. Have no fat in my legs, so did all 4 in my belly. Just had to make sure they were at least 2 inches apart.

By the way, I stayed in all day I gave them just to make sure I had no reaction. I didn't, so today had a normal day with no reaction so far at all. Long term we will see. Hoping for absolutely none, and it puts me in remission.

Crossing my fingers!
 
Traumanurse, AWESOME on the no reaction. I am more and more at ease with this whole idea. Thanks, and may things only get better for you!
 

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