Humira side effects 3 days after

[Owensmom]

My 10 yr old son just had his first dose of Humira on Tuesday morning. Yesterday he seemed tired, by tonight at dinner he had a headache and some belly cramps.
Is it possible that it can be from the Humira 3 days after the first dose? If so, how long does this last and has it eased for anyone else after more doses?

We are BRAND new to all this and would love any thoughts or experiences. Reading on the websites is scary.

 

[Farmwife]

I just want to say welcome.
My 4 yr old isn't on this drug, so my knowledge is limited.
More will be along to answer your question.

Was your dear boy just diagnose? I hope he's feeling better soon.

HUGS

 

[Owensmom]

Just diagnosed the end of August.... Just starting into the "maintenance meds" journey. I have so many questions and the things I've read online are frightening. I thought we were out of the woods with the Humira after the first 2 days with no side effects, but now trying to figure out if it is a side effect of the meds, a flare (for us flares are pain in belly and nausea - no frequent bms so hard to figure).

 

[Farmwife]

Careful on the reading.
Your son's journey will be different. No two cases (young or old) are alike.
Ask as many questions as needed.:hug:

 

[Tesscorm]

Hi Owensmom,

Welcome to the forum but I'm sorry it's your son's illness that brought you here.

I don't have any experience with humira but do know that many of the maintenance meds do have fatigue/tiredness as a side effect, not sure about the bellyache or headache.

It is scary to be given this diagnosis - so very much to take in at the beginning, but it does get easier :ghug:

I'm sure some of the other parents whose children are on humira will be along but you can also look or ask for some info in the Humira support group.

http://www.crohnsforum.com/showthread.php?t=6500

Did your son's GI mention any side effects to watch for or expect? Hopefully, these are symptoms that will quickly disappear as he adjusts to the humira.

:ghug:

 

[my little penguin]

Hugs
DS has been on humira since April .
Since it was your first dose it's probably the med wearing off not a side effect.
Humira can take up to 12 weeks to build up in the system to last the full two weeks .

Did your child get a loading dose ( more than one shot at once)?

DS gets fatigue the first morning after his shot.
Then things go back to normal.
It did take a long time for him to not have symptoms the full two weeks .

I would talk to his GI about it but typically it just takes a while to feel good .

 

[Owensmom]

He did have his loading dose on Tuesday - 4 shots of 20mg each. They said there was a chance of headache and nausea, but didn't say it would take 3 days to really kick in. My hope is that a goods night sleep will help. Of course these things always happen on a weekend or night when I can't call my own doctor directly...
Thank you all so much for your help and support. I have been searching for a place to talk to other parents who get it.

 

[Sascot]

I have no experience with Humira, just wanted to say welcome. Hope the meds kick in soon.

 

[Owensmom]

Thank you. As quick as these things to come on they sometimes go just as quick. After a great night sleep, he feels "himself" again. We also have to deal with food allergies and ADHD. Those seem easier to manage now that we have Crohn's thrown in the mix.

 

[JustAYoungLad]

Hey Owensmum, glad your son is feelimg better!

I'm fairly older than your son (24 now) but I have been on Infliximab when I was 11 ish and recently Humira.

I started Humira at 22 and I had four loading doses of 40mg so it will have been a bit stronger but I'm obviously classed as an adult (I don't feel like it though, still 16 years old at heart). When I had my first loading dose it did have a noticeable impact. I felt nausea, and mildly dizzy / sleep spells. It only lasted a maximum of 48/72 hours initially. I did also have stomach ache but I can't say it was Humira as I was going through a bad flare.

Once i got down to one injections every fortnight I rarely had any side effects afterwards.

I was told that some people are more sensitive medication than others, so I would keep that in mind.

Wishing you and your son the best!

 

[polly13]

Lucy has been on humira since June after failing infliximab early in the year. We did nt notice any major improvement in her symptoms for the first 3 injections and she has been steadily improving since. She also takes methotrexate and has cipro at theoment as she had some bleeding. She doesn't have the fatigue after the injection but as you know with crohns no two children are the same and the disease seems to behave differently in everybody. Lucy's side effects are mainly skin related. I hope the humira works for you guys.

 

[Owensmom]

Thank you! I have been searching for support for months now and am so glad that I have found you all. I am felt so alone in this...and so has my son. Thank you!

 

[polly13]

Glad you found this site too. I didn't find it until about six months after Lucy's diagnosis and I found it and every body on here such a help to me in those dark lonely days when I was still coming to terms with her diagnosis

 

[Jenn]

Hi, my son has been on Humira for a year and a half. I suspect it was just a one-off thing, Humira is not an instant or constant fix. He often has random side effects that come and go - headache, joint aches, fatigue, site rashes or blistering. I hope it gives him some lasting relief.
Welcome to the forum!

 

[Brian'sMom]

My son was on Humira for 2 1/2 years. At first I would blame any symptom he was having on the medication because I was worried about the biologic. I came to find out, like you did, that some things just come and go. Maybe its just the crohns itself. One thing I did notice tho, and its gone now that we are on Cimzia, was after his shot of Humira he'd have sniffles for a few days. Didn't ever cause any problems tho. In our case, the Humira worked quickly...but i've heard that in a lot of people, the drug has to build up. We're finding that to be true with Cimzia... (Or TNF biologics aren't our thing anymore)

 

[ronroush7]

No experience with Humira but wanted to welcome you.

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