HUMIRA - SIDE EFFECTS ? *Newbie*

[KeithK28]

Hi Everyone !

Great to have a forum to discuss all things Crohn's ! I was diagnosed in 2004, at the age of 14. I developed two abscesses, the 2nd revealed the Crohn's. I was on Asacolon & Imuran, but they didn't really work for diarhea etc. so was moved onto Infliximab. I'm now planning a 6-month stay in China (*I'm from Dublin, Ireland btw!) - so I was recently put onto Humira.

So far, I think the only side-effects I have are:
- Eye sensitivity and sensitivity to light
- Slight headaches
- Fatique

None of these side-effects are debilitating or worrying, but do you think I should ring my hospital about it or do you guys think its normal?

Also, how would you describe your general tummy/bowel pain? I'd describe mine as a sharp stitch in the lower right side of my abdomen, which worsens when pressure it put on it i.e. Sneezing, sitting up from laying down etc. It seems to be people describe the pain very differently sometimes?

Anyway, great to be here. It so comforting knowing Im not the only one dealing with this shit, excuse the pun

** This is a re-post, don't know if my original post actually posted **

 

[Blue]

when i was on humira i did not really have any significant side effects, but thats probably because it didn't do anything to make me feel better lol. The only thing i did realise was feeling much more tired, especially the day of the injection.

and your pain sounds like exactly the same as mine the crohns for me is in the ileo-caecal areaaa :3

anyways hope humira works for you mate

 

[Angrybird]

Hello and welcome to the forum

I would say it's best to let the hospital know about these side effects that you are having so they can keep an eye on this. Also were tests done recently to check on disease activity or were your meds changed based on your symptoms and have your vitamin levels been checked?

AB
xx

 

[KeithK28]

Hi AngryBird,

Yeah, I think I'll give them a call tomorrow and update them. The side effects aren't severe, for all I know, they're not even related to the Humira but I'll make them aware.

No tests to check the activity recently. I plan to schedule a Colonoscopy in the next 3 months, here in Ireland these things take a while to get scheduled :ymad: !

My meds were changed to Humira simply because Im planning a 6-month trip to China in August, and I was on Infliximab [worked fine], but Humira allows me to travel as appose to the infusion.

My bloods were checked recently. Would they check vitamins then? I was told everythings normal. I don't know the exact extent they go investigating my bloods, although I assume they check for everything?

Thanks for your reply !

 

[CSavage]

I have been on Humira for just over 6 months and it gave me back my life. I was pretty sick and had been for several months when my GI doc got me to try it. I still have some bad days here and there but overall fantastic results. I haven't experienced many side effects other than do feel run down once in a while. Good luck with your trip!

CSavage

 

[Mary:)]

Humira has been great for me also. I too have fatigue but that could be from alot of other things. Good luck with it

 

[Angrybird]

Vitamin levels are not checked as part of routine bloods so you would need to ask to have these done specifically - your GP can arrange for these to be done. It is worth having these checked as it is common with crohn's to have deficiencies in this area and it could maybe explain some of the symptoms you are getting.