Humira UK (I'm a newbie!)

[calligator]

Hi all!

I've seen a lot of posts about Humira use in the US but was wondering about it in the UK. After Aza not working for me (possible pancreatitis) Humira seems like the way forward. I am waiting for results of blood tests and a chest xray (yesterday) to see if I'm all ok for it and will then be waiting for getting the while medication delivery arrangement.

If you're in England can you tell me how the deliveries work out? Can they deliver in the evenings or will I have to get it delivered to work? I've also been told that my first dose will be a mega dose and a nurse will be there the support me/help - again, is this usually within working hours?

 

[nikimazur]

I'm in the US, but will hopefully be receiving my first dose/ starter kit of Humira this week. I'm no help with the shipping/ supply questions, but I hope everything works out!

 

[Imran1987]

Hi cal I have just started my first does of humira last week did 4 jabs on the pen sat on chair 2 in one leg then same other wasn't too bad little pain as you after hold down hard for 10secs so pushing the needle down isn't nice not bad tho, after this will do 2 week down to 2 shots each leg again very new to this so pos maybe down to one every 2 week am guessing 40 shot was given 2 for the 2 week coming due after 10 feb then I got a letter posted to me
To make
Contact arrange the drop of doses will ring after weekend and guess can say best time scale for you to be in there to be stored
In fridge they will show u how to get on then crack on your self new to it all this site and Crohn's 2012 found it up and down with it bad pains in hospital for weeks not eating weight loss now out trying to maintain all good food and smoking packed in and hopefully these jabs will make me feel great 26year old male good luck hope sort of helped

 

[calligator]

Thanks Imran - when they got in contact for the first injections did they you phone you about delivery and did you have a nurse there for your first injection?

I need to know how they deliver this stuff in England - am I going to take time off work? Can they deliver to work?

 

[Imran1987]

Hi again I had a letter sent out to my address saying please contact us to arrange delivery so guessing all upto u how and where u want it delivering 2 I will need to contact then come Monday for supplies am from the uk also and yes the first time went to local Hospital they did the first jabs showed me etc 12th feb need to go again will show me again and let me also do so can see am doing prop then afterwards will us at home or where ever with the supplies that get sent out thanks good luck x

 

[Jag23]

Hi, I got my first delivery at work on Friday. They delivered me 6 shots and a needle box. They rang me a few days previous to discuss the times. They just say either afternoon or morning. You will need a fridge at work.
They also said by my next delivery (3 month) that they are looking at starting on weekends too.

 

[Jag23]

@ Imran

Is your main hospital BRI?

 

[Imran1987]

Hi am at Halifax RI and we are joined with Huddersfield think that's where do all surgery I went there when had bad flare up was wanting to opp but said try other things first was new to this as been young didn't want a bag at the time but to make me better I will just scary first, getting to know how things will be etc surgery will happen at some point anyway no dowt if don't get better maybe remission forever using humira haha let me know how all getting on using humira and if doing the trick

 

[Grant]

I've been using Humira for 3 yrs now, My starting doses were done in Hospital under instruction from the Specialist Nurse. I switched from the Pens to the Syringes, less stinging IMO. I always inject into my belly.
I get a phone call to let me when delivery will be made & it all works like clockwork.
Hope this helps
Grant

 

[JustAYoungLad]

I was on Humira for 16-18 months last year and the previous.

I started the loaded doses in hospital then I got a delivery every month from a company called "Healthcare at Home". They call you, arrange the deliveries with you and it all went super smooth.

I think they come by a special courier as they had to be kept cold in transit.

 

[Novice]

When I lived in the UK I had been on humira for a short while.
I too had my loading doses in the hospital and the next couple of shots were done with like a community nurse that came to my house to eensure I understood what I was doing/did it correctly!

I would get a phone call or a letter to arrange the deliveries and they'd provide and take away the sharps container too

Was very easy

Good luck!

 

[Colleen_S]

Hi! I did my loading dose with the IBD nurse to make sure I had the correct technique (despite being a qualified nurse myself) and then she set up delivery with healthcare at home who deliver every few weeks.....hope it is a smooth process for u

 

[oathy]

Did anyone else get the letter ? saying sorry we couldn't deliver the Humira owing to increased demand etc etc. They left me waiting nearly 5 weeks then a very sheepish phone call asking how many doses I had left..."um none for some time! hehe

Once the delivery is arranged you can ring on the morning and ask what time slot you have I believe you can also check the website and its listed there. I might be wrong but think they deliver until 17:30

 

[Jag23]

Just got my delivery today.
I've never had a letter saying they have run out. Have you spoken to your Dr/Nurse about this?

 

[oathy]

Just got my delivery today.
I've never had a letter saying they have run out. Have you spoken to your Dr/Nurse about this?

yes was up In London Monday they couldn't believe it.
I had another delivery today also and they are putting the scripts upto every 12 weeks now.

the letter read something like owing to 120,000 more new clients we have been having problems with delays in delivery and aim to get this sorted as soon as possible. I really hope it wont happen again