I have no idea what we are doing and I'm feeling very frustrated and defeated.
A little history: he has always had belly\poop issues. 15 yrs ago was given a diagnosis of UC. Took a sulf med for about 18 months went off of it and never went back to the dr. Over the last 15 yrs he has been constipated most of the time and eating lots of fiber to go.
Jan 2012 blood in stools, went to dr feb and had colonoscopy on Feb 23. A few days before the colonoscopy he got very sick. The pain was HORRIBLE. He would be going poo and vomiting. So he was given the diagnosis of C diff and given vanco. Nothing said about IBD. 4 days later I took him to the ER and he was given flagyl and cipro. Between feb 27th and march 12 I talk to the dr office everyday. Somewhere in that time they said his biopsies came back saying crohns. He was getting worse and on Mar 12 admitted to the hospital. In the hospital he was put back on vanco and given the c diff diagnosis again and othe meds like asacol, steroids and enemas. He wasn't really responding to anything so remicade was started. We were discharged and no more vanco
He has still not had a pain free day and has been getting progressively worse. We went for his 3rd remicade infusion today and within 5 min of being there they were already planning to admit him. They are saying possible c diff again and/or he's not responding to the remicade either. I know labs were done but the results were not back when I left.
The dr also said he may have indeterminate colitis.
What are they looking for and what should I be doing. He is worn out feon all this pain and feels so bad all the time.
I forgot to mention he has lost 63 pounds since feb
A little history: he has always had belly\poop issues. 15 yrs ago was given a diagnosis of UC. Took a sulf med for about 18 months went off of it and never went back to the dr. Over the last 15 yrs he has been constipated most of the time and eating lots of fiber to go.
Jan 2012 blood in stools, went to dr feb and had colonoscopy on Feb 23. A few days before the colonoscopy he got very sick. The pain was HORRIBLE. He would be going poo and vomiting. So he was given the diagnosis of C diff and given vanco. Nothing said about IBD. 4 days later I took him to the ER and he was given flagyl and cipro. Between feb 27th and march 12 I talk to the dr office everyday. Somewhere in that time they said his biopsies came back saying crohns. He was getting worse and on Mar 12 admitted to the hospital. In the hospital he was put back on vanco and given the c diff diagnosis again and othe meds like asacol, steroids and enemas. He wasn't really responding to anything so remicade was started. We were discharged and no more vanco
He has still not had a pain free day and has been getting progressively worse. We went for his 3rd remicade infusion today and within 5 min of being there they were already planning to admit him. They are saying possible c diff again and/or he's not responding to the remicade either. I know labs were done but the results were not back when I left.
The dr also said he may have indeterminate colitis.
What are they looking for and what should I be doing. He is worn out feon all this pain and feels so bad all the time.
I forgot to mention he has lost 63 pounds since feb
