Hello,
I am not new to the Crohn's seen. I was diagonsed at age 19 I am now 23. I went to bed one night and woke up with Crohn's. I had also dropped 20pounds in about a month. It is hard to believe thats how it happened. One night I went to bed with a really bad stomach pains. I didn't think much of it just maybe thought the stomach flu, thought it would go away in the morning. I finally fell asleep I'm not even sure how I did. The next morning I woke up it was even worse than the night before. My mom took me in to the doctor because we thought it might be my appendix. Doctor started off with a blood draw to see where my blood count was at. It was normal, so he sent me home and told me to come back later, if it got worse. I couldn't even move, talk, sit or do much of anything, the pain was soo bad. I went back for more blood tests for it to show nothing. He sent me back home with some pain meds, and told me to make an appointment for a CAT scan. Went in for the CAT scan the next day which only told me that my intestines were inflammed. They then told me I needed more tests to find out what that meant. After colonscopy, barum tests, and whatever else they then told me I had Crohn's. I was referred to a gastro, he tried me on asacol and sulfasalazine which did not work. I went back very upset and tired of living in pain everyday for him to tell me that my Crohn's wasn't bad enough to try any other drugs and that I needed to live with the pain that was part of having crohns. Those were his extact words. I was so upset I left and never went back to him ever again. I was so down that I didn't seek new insurance after my old one was done. I went without treatment for over 2 yrs. I was taking 2 tylenol and 3 ibuprofen a day just to get thru work because I couldn't take anything else for pain. I could not eat much without it hurting. No matter what I ate I did not gain weight either. After getting off work one day it started hurting in my back. I knew what my crohn's felt like and where it was. Since it wasn't hurting in the normal spot I went a head and went to the ER, thinking it was my appendix. They ended up keeping me, doing a colonscopy, there was so much scar tissue that they couldn't get the scope up pass a certain point. It also showed I had a fistula. They put me on bowel rest and I had a pic line put in and they feed me with what they called milk in a bag. IT was horriable! I still didn't have insurance. My new gastro then told me that I needed to have surgery or I was going to die and I needed to get some type of insurance. That scared the crap out of me. Well I was released and they tried me on Remicade which on the 3rd dose I had a bad reaction so they discontinued. In the state of washington pretty much the only way that you can get insurance through the state was to be a lazy butt and not work. So i had to quit my job to obtain insurance because no other insurance would cover me cuz i was diagonsed before hand. I had surgery in Aug of 2009, leaving me with a very nice scar. Had a scare right after I had surgery thought the crohns was bad but I just had caught C-diff from the hospital (nasty stuff). I have gained weight and feeling better except of some symptoms of IBS, so they say. I am a little scared to see if it has come back. I worry about it everyday which I am sure Im not the only one!
I am not new to the Crohn's seen. I was diagonsed at age 19 I am now 23. I went to bed one night and woke up with Crohn's. I had also dropped 20pounds in about a month. It is hard to believe thats how it happened. One night I went to bed with a really bad stomach pains. I didn't think much of it just maybe thought the stomach flu, thought it would go away in the morning. I finally fell asleep I'm not even sure how I did. The next morning I woke up it was even worse than the night before. My mom took me in to the doctor because we thought it might be my appendix. Doctor started off with a blood draw to see where my blood count was at. It was normal, so he sent me home and told me to come back later, if it got worse. I couldn't even move, talk, sit or do much of anything, the pain was soo bad. I went back for more blood tests for it to show nothing. He sent me back home with some pain meds, and told me to make an appointment for a CAT scan. Went in for the CAT scan the next day which only told me that my intestines were inflammed. They then told me I needed more tests to find out what that meant. After colonscopy, barum tests, and whatever else they then told me I had Crohn's. I was referred to a gastro, he tried me on asacol and sulfasalazine which did not work. I went back very upset and tired of living in pain everyday for him to tell me that my Crohn's wasn't bad enough to try any other drugs and that I needed to live with the pain that was part of having crohns. Those were his extact words. I was so upset I left and never went back to him ever again. I was so down that I didn't seek new insurance after my old one was done. I went without treatment for over 2 yrs. I was taking 2 tylenol and 3 ibuprofen a day just to get thru work because I couldn't take anything else for pain. I could not eat much without it hurting. No matter what I ate I did not gain weight either. After getting off work one day it started hurting in my back. I knew what my crohn's felt like and where it was. Since it wasn't hurting in the normal spot I went a head and went to the ER, thinking it was my appendix. They ended up keeping me, doing a colonscopy, there was so much scar tissue that they couldn't get the scope up pass a certain point. It also showed I had a fistula. They put me on bowel rest and I had a pic line put in and they feed me with what they called milk in a bag. IT was horriable! I still didn't have insurance. My new gastro then told me that I needed to have surgery or I was going to die and I needed to get some type of insurance. That scared the crap out of me. Well I was released and they tried me on Remicade which on the 3rd dose I had a bad reaction so they discontinued. In the state of washington pretty much the only way that you can get insurance through the state was to be a lazy butt and not work. So i had to quit my job to obtain insurance because no other insurance would cover me cuz i was diagonsed before hand. I had surgery in Aug of 2009, leaving me with a very nice scar. Had a scare right after I had surgery thought the crohns was bad but I just had caught C-diff from the hospital (nasty stuff). I have gained weight and feeling better except of some symptoms of IBS, so they say. I am a little scared to see if it has come back. I worry about it everyday which I am sure Im not the only one!
