I am a wreck

[wendell]

Hey all i have some questions and to vent alittle bit.I went to see my GI and he wants to due another colonscopy.I had 1 in April of this year.I just had a CT scan last week and he went over the results with me he said it looked really good and that my sm. bowel looked good all my blood work came back good but I am still having syptoms:I havent had a BM in 2 full days and my right side is still hurting,im depressed,fatigued and getting very frustrated.he told me he wants to do another scope to see if my colon is as angry as it was the first time around.he also wants to start me on Humira i have been taking asacol hd.what is going on with me why do all my test say normal when I have crohns????I am ready to stop all meds and not go to anymore drs..help me:ymad:

 

[Ihurt]

I am sorry you are dealing with all this. I have not been dx. I am still awaiting a colonoscopy and other tests to see what is going on. When you say you have not had a BM in two days, have you cut down on eating( since you are not feeling well)? What did your last BM look like? Was it normal in color or was it diarhea? You say you just had a colonoscopy a few months ago, did the doctor say why he wants to do another one so soon? If you are having bleeding or a lot of diarrhea, then I can understand why. I surely hope you can get some answers to why you are not doing well.

 

[wendell]

Thanks for the reply i hurt,the dr told me he wants to see if my colon is as angry as it was in april to see if starting me on humira is going to benefit me.i did take a laxative last night and woke up with diarrhea this morning.i just feel something else is wrong besides the crohns how do you get a dr to listen to you.i feel so bad and weak, nausiated,stomach cramping, headache,extreme fatigue...i feel like im falling apart,i cry all the time and just dont know what to do.thanks again for listening

 

[Trysha]

Hi Wendell,
Maybe your GI is on the right track in taking another look at your colon.
I had a colonoscopy last February and was feeling that the crohn's had quieted down.
For some reason I did not get the results right away and was not too concerned since I had started feeling pretty good.
Two months later I had a real setback and at that time the GI ordered a CAT scan and said he was not surprised at my symptoms since the colonoscopy had shown a severe inflammation from the crohns.
The decision for Remicade followed and it has taken a long time to get through the government steps,
So I was quite shocked at this course of events since initially I had felt good.
You have all the symptoms of a crohn's flare and hopefully you have had some bloodwork such as CBC,Sed rate, CRP,Vit B12 and iron levels among other things.
It is a miserable condition to contend with and you certainly need some help as soon as possible.
Feel better soon
Hugs and best wishes
Trysha

 

[wendell]

Hi Trysa thx for responding to me I am truely thankful for this forum,sometimes I feel people think I am making this stuff up but the truth is this disease is making me loose my mind I am constantly thinking with every pain I feel is this normal or is something very wrong,I am still trying to have the gastric sleeve surgery done and hopefully I will be able to do that,I am in a stuggle every day to keep my mind off of this horrible thing that has happened to me.I have another colonoscopy Monday to see if the asacol has helped or not I dont feel it has but i guess we will see..I am off for know but will return.thanks for the suppport.
Wendy:hug:

 

[Snap]

:ghug: Hello Neighbor! We live about 30 minutes away from each other! I have lots of questions for you! I will be sending you a private message, but just wanted to let you know that this is a great site--everyone is wonderful, helpful---and we all stick together. It's great to "hang around" people who "get it." You are in my thoughts--what you are going thru is rough--but keep one foot in front of the other! Snap