I am having some trouble and need some help

[tots]

Last Monday was my first dose of Remicade. My Dr had me stop my Entocort that Sunday. So right now all I am on is the Remicade. Well, I was not in remision, thats why I am starting the Remicade. So this has been a rough week health wise.

-Headache most of the week.
-Cramping, pretty strong, and D.
-Anything I eat goes right through me.
-Spent last night throwing up.
-I feel itchy and a few hives (it was 90+ this weekend)
so it may not be the Remicade? Is it to late in the week
for side affects?

Needless to say I am not a happy baseball mom!!
I am just worn out. I am calling my Dr tomorrow
can you think of anything I should be asking him
about?

I am a little suprised the Drs office didnt call to see how the Remicade went.
Follow up not their strong point though.

Lauren

 

[Clash]

My son experienced hot flashes after his dose the gi put it down to the steroids he was still on. He said his skin felt prickly. And since the pred hadn't worked for him we also had a pain episode after first treatment that sent us to ER. But it seems the GI nurse told us there could be reactions even at seven days after. Maybe Some one with more knowledge will drop by soon! Hope you get to feeling better! It's been smooth sailing since the second infusion...fingers and toes crossed!

 

[ThatsWhatSheSaid]

I don't know anything about Remicade. Just wanted to offer my thoughts for your health. That sounds miserable. I am so sorry to hear. And really??? These doctors offices??? I'm starting to get annoyed at doctors in general, which I know is not fair. But, do you really put someone on such a strong med and not follow up to make sure all is well? I know we are all responsible parties to our health, it is just frustrating sometimes. Eh. I hope you're feeling better and the reaction is short term.

 

[tots]

ThatsWhatSheSaid-

I am feeling somewhat better today. I have had
a nurse (?) call me from the makers of Remicade
and I will speak to them about how I was feeling and
trying to figure out how to prevent a repeat of my
sypmtoms!

Thank you for your words of encouragment!

Lauren

 

[ThatsWhatSheSaid]

Well at least someone is following up. Do report back about what she says. Although, I am skeptical about even a nurse from the drug-maker....as there may be issues of bias. I'm having issues of my own right now with my doctor. I started a thread on it this morning looking for feedback. Both my GI and ENT for over 2 years have told me I can be getting allergy injections. For over a year and a half I have been asking if they could be making my crohns flare and be responsible for my sickness. I am starting to think they are and if that is the case I need to pursue this further. This is ridiculous.

Please don't forget to update about if your reaction was remicade related!

 

[Lisa]

When I first started Remicae I got regular follow up calls from the Remicade 'help line' - forget what it is called.....they would actually make sure the next appointment was set up, see if there were any adverse affects etc.....I was doing well so I had them stop the calls....I think it is a good resource though to use if you need it.

Hope you are feeling better...I get to find out next week if my BP rise after my last infusion was related to it.....joy oh joy.....