V
vampirevolkova
Guest
Hello
In early August 2006 (when I was 19 almost 20) I was diagnosed with Crohns Disease by my local hospital, I was put on Predisone and other medications and in hospital for 4 weeks having various tests like CT scan, X ray, blood tests, barium's etc....They told my that the Crohns was not too aggressive but I require a lot of meds, I was also told I have helicobactor in my stomach (which I thought they treated) so finally after 4 weeks the hospital sent me home with a lot of meds and all was ok for a while. I saw a dietitian every 2 months and my specialist every 3 months and I felt ok for about 6months, but all of a sudden I felt sooooooooo bad!
So in 2007 when I moved back to my mothers I had her local hospital check me over for a 2nd opinion, the specialist there said I didn't have Crohns...but IBS... I was sent for a bone density scan which showed my bones had weakened due to being on the steroids for so long (darn other hospitals fault grrrr) This specialist gave me ASACOL, Codeine, buscopan, cyclizine, ADCAL D3 and sent me home.....I was in and out of hospital and my condition was up and down. my mother and I fell out and in march 07 i decided I would move out.
I moved out of my mothers and in with my GF (My now wife Stacey) - In May 07 I got sick again and went to A&E and I was told that i DID have Crohns Disease and that I needed to increase my ASACOL intake etc.... So as you can imagine I was VERY mad at the other hospital for their misdiagnosis....I was in hospital for almost 2 weeks!
OK well after that until now I have been in hospital about once a month, the A&E people just send me home with pain killers and tell me to rest!
I have been given codeine or tramadol on repeat prescription by my GP as well as ASACOL, Cyclazine, Buscopan, and my dietary supplements (from my new lovely dietitian) but I don't think that the ASACOL is working, I have been to my GP and he said increase it to 4 times a day...I have done this and taken it for 2 weeks but I seem to be feeling really ill....I have been to the hospital they did tests as said there is no sign of active Crohns apart from a small inflammation in my bowel which they gave me meds for!
I was told that the Helicobactor I had in 2006 has not been treated due to the fact I am allergic to Penicillin and Erythromycin the penicillin substitute so can not be given the medication required to treat it, so I am awaiting treatment of this problem....I also had my appendix removed as it was grumbled and could be causing additional pain!
I constantly feel sick, I have pain in my abdo on the right side, I have on and off diarrhea and constipation - I watch what I eat and have a low residue diet! Oh and not to mention lack of sleep due to being in pain and uncomfortable at night, this is really getting me down now and I don't think I can take it any more! What should I do?
I don't know what to do an more, I feel bad for my wife -yeah we got married in 2008
I have never been happier with life (apart from having this darn condition) I just wish it would go away....I am sick of being turned away by A&E I don't seem to be gettin answers from anyone!
What would you suggest? Anyone help me? am going mad here..... One minute I am told I have Crohns.. then I;m told I don't and its just IBS.... Aggghhh!! How can my doc tell me I have all the symptoms of Crohns but they now cant find evidence in my scans etc? Its driving me mad! One hospital found it, another said they didn't....
In early August 2006 (when I was 19 almost 20) I was diagnosed with Crohns Disease by my local hospital, I was put on Predisone and other medications and in hospital for 4 weeks having various tests like CT scan, X ray, blood tests, barium's etc....They told my that the Crohns was not too aggressive but I require a lot of meds, I was also told I have helicobactor in my stomach (which I thought they treated) so finally after 4 weeks the hospital sent me home with a lot of meds and all was ok for a while. I saw a dietitian every 2 months and my specialist every 3 months and I felt ok for about 6months, but all of a sudden I felt sooooooooo bad!
So in 2007 when I moved back to my mothers I had her local hospital check me over for a 2nd opinion, the specialist there said I didn't have Crohns...but IBS... I was sent for a bone density scan which showed my bones had weakened due to being on the steroids for so long (darn other hospitals fault grrrr) This specialist gave me ASACOL, Codeine, buscopan, cyclizine, ADCAL D3 and sent me home.....I was in and out of hospital and my condition was up and down. my mother and I fell out and in march 07 i decided I would move out.
I moved out of my mothers and in with my GF (My now wife Stacey) - In May 07 I got sick again and went to A&E and I was told that i DID have Crohns Disease and that I needed to increase my ASACOL intake etc.... So as you can imagine I was VERY mad at the other hospital for their misdiagnosis....I was in hospital for almost 2 weeks!
OK well after that until now I have been in hospital about once a month, the A&E people just send me home with pain killers and tell me to rest!
I have been given codeine or tramadol on repeat prescription by my GP as well as ASACOL, Cyclazine, Buscopan, and my dietary supplements (from my new lovely dietitian) but I don't think that the ASACOL is working, I have been to my GP and he said increase it to 4 times a day...I have done this and taken it for 2 weeks but I seem to be feeling really ill....I have been to the hospital they did tests as said there is no sign of active Crohns apart from a small inflammation in my bowel which they gave me meds for!
I was told that the Helicobactor I had in 2006 has not been treated due to the fact I am allergic to Penicillin and Erythromycin the penicillin substitute so can not be given the medication required to treat it, so I am awaiting treatment of this problem....I also had my appendix removed as it was grumbled and could be causing additional pain!
I constantly feel sick, I have pain in my abdo on the right side, I have on and off diarrhea and constipation - I watch what I eat and have a low residue diet! Oh and not to mention lack of sleep due to being in pain and uncomfortable at night, this is really getting me down now and I don't think I can take it any more! What should I do?
I don't know what to do an more, I feel bad for my wife -yeah we got married in 2008
I have never been happier with life (apart from having this darn condition) I just wish it would go away....I am sick of being turned away by A&E I don't seem to be gettin answers from anyone!What would you suggest? Anyone help me? am going mad here..... One minute I am told I have Crohns.. then I;m told I don't and its just IBS.... Aggghhh!! How can my doc tell me I have all the symptoms of Crohns but they now cant find evidence in my scans etc? Its driving me mad! One hospital found it, another said they didn't....
