I am not so brave anymore...

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I have been putting on a bit of a front, so I can help some of the newbies and others for support. However, I have been silently suffering and been up at 3am 3 nights in a row of pain. I couldn't believe it but I called my Gi for a "quickie" appt and I am seeing him at 2:30pm! I have never had an appt that quick...ever! My lower right side feels like it is very swollen, pain, and have been drinking Ensure to rest the bowels but this flare is the worst and it is NOT going away. Been fighting it on an off since Oct.

Last year I was prepared for surgery #3 and yes I have been trying to avoid it. :voodoo: Why, because I am human and terrified, my last surgery was a nightmare! Also most people who have surgery get an epidural so there is no pain... they NEVER work on me, and I dont get that. I hate Morphine and drugs period. The other problem is, my husband goes back to work soon for 2 weeks and my mother is leaving Sat for disney world and my daughter is in University (across the street from the hospital) but she her licence lapse so she cant help me. I have 3 dogs and a cat.

I have to get this looked at asap, gonna probably need a scope or SBFT or lastly a CT Scan and see if there is an abscess or inflammation that can be seen and prepare for surgery. It also radiates in my back too. I dont want an obstruction and this pain I have had before when I was 32 year of my dx.

I will post later or tomorrow what the Gi says. Sorry if I am scaring anyone but I really have to look after me. Scared as I am. Thanks and sorry for rambling.

Penny
 
No need to put up a front for us. You need to look after yourself. I know it's scary but have faith that everything will be OK.

Our prayers are with you...be strong!

Ramble as much as you need, that is why we are here.
 
I didn't realize you were being so brave!! Knock that off and keep us posted! This is a support group and you are a member of it - it is ok to GET support woman! But seriously - take care of yourself and let us know how the appointment goes. Hoping things can go at a reasonable pace rather than emergent. Sorry you've been going this alone Pen!!
 
Oh Pen. This makes me so sad. To know that you've been in such pain and having such problems and kept up such a front with us all. I'm sorry you are having to go through this pain and anxiety. I too keep a lot to myself, so I understand what it's like to not put it all out there. But now that you have, know we are here for you, and are concerned for your health and safety. Please feel free to vent and talk and get it out there. Keep us updated as to how things are going and what the Dr's are saying.

You're in my thoughts and I hope you get on the mend soon!
 
Thinking of you Penny, and hoping for something can can be non-surgically fixed quickly for you! thanks for being there for all of us, now it's our turn to be there for you!
 
I'm new here and don't really know you yet, but from my heart I wish you a quick recovery with no surgery!!
 
Aw, Pen, you gotta let it out sometimes and know we're here for you!
 
Hey Pen,

You don't have to be all stoic here! For goodness sake, you offer so much support to everyone and are more that entitled to get some of that back!

I am so sorry things are bad for you right now. You WILL get through it.

Please keep us updated!

((((HUGS)))))
 
Update: Ok, it took 2 hours to see my GI but glad I did. He checked me out and we discussed surgery and he said there is a long line up for surgery and emergencies go first or Cancer patients, which I fully understand. He has booked me for a CT scan specifically for the bowels only. Also a colonoscopy, and blood work. By the time I was done his secretary was gone for the day so I will know more tomorrow. I have my b12 shot with my Gp so I will get my blood work done then too.

The hubby and I both guessed his first thing was to go on prednisone and we both said there is alot of side effects. I guess the Cimzia is out?? He said it still isnt here in Canada and hard to set up and we both realized since Remicade and Humira didnt work, surgery is the next thing if the tests come back and warrants one. I was on Ensure all day and the pain was there even with no food. So, he put me on Entocort, Pentasa and stay on Flagyl, drop the Cipro. I didnt want Pred so, we are trying this untill all the tests are done and go from there.

He doubts I will obstruct, but I told him I am avoiding that. But I know my body (should after 30yrs of symptoms) and I will still be very cautious what I eat. I wont know til next week when my scope and Ct scan will be. I will keep an update...

And as for YOU guys!!!! I almost had tears in my eyes to see the support from each and everyone of you!!! You are the reason I am here. I can't thank you enough for you prayers, love and support. I promise to be up front, from now on. I need you guys too! Muah!
 
Pen
(((HUGS)))) and prayers
Things will be better hopefully soon
annsplash
 
Pen,

We love you and are here for you. You know yourself that we have all grown thick skin and big, strong shoulders. We can take it, so lay it on, girl!!!

(((HUGS)))

Love you, Pen!
 
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I hope you don't have another surgery. I don't want you to go on Prednisone either. That stuff is the devil. Keep being strong but keep in touch.
 
Pen, I'm glad to see that at least you are able to get in for scopes and such soon. We will definitely need updates. I really hope you don't need surgery. I hope it's just some weird thing that's going on and it clears up on its own. I'll be sending lots of prayers to you my friend.
 
Hiya Pen,
Sorry I wasn't there for you yesterday. But I'm thinking about you now and wishing you well. Keep us posted. You have a huge heart and we all love ya! Get better!
 
Hopefully all will work out, its scary to know you may need help when there is none available.
 
Wow it has been so crazy here this morning, I dont need a real job lol....

Updated on test! My docs secretary called (she is such a sweetie) and told me he has semi-emerg written on everything ... I have a scope next Thurs at 8am, could of had it Tues but I have a b12 shot Monday and my Gi wants a bone density and blood work. The CT scan is being booked after my colonoscopy and need blood work for Creatine a week before. Whew. I know I am forgetting other stuff, but at least I am NOT afraid of colonoscopies, just not eating kills me lol. My husband leaves Wed afternoon so at least I dont have to drive him to the airport, with dulcolax the night before and clearing out. :eek2: No potties for a major stretch and he says he will take his truck. My friend whom I met 4 years ago here is taking the morning off to take me for my scope. I am so surprised everyone is helping me.

I am totally astonished of everyone's support. It made me feel like I wasnt alone.!!!
I am still sore but the pain is localizing and took a crap load of meds. Entocort takes a few weeks so I should know more. Turns out my last colonoscopy was exactly a year ago, 19th of Jan and this year 21stth.

There you all asked for an update, now.... dont you wish you hadn't??:tongue:

Again thank you all, you all made me feel better! :)
 
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Good luck Pen, I've got you in my prayers. We need you feeling better my friend. I'm just happy they can get you in for scopes and such so quickly and not wait forever for them. I just hope and pray they won't lead to another surgery.
 
Thanks for all your prayers.. gonna use them up too!
I just hate having to take 15 pills a day, not including nexium. IT was what I was trying to avoid. Surgery will be a long way off, so maybe I can buy some "pain free " time. Cause I really dont want surgery ( who does) but having a full bowel obstruction scares me more. My Gi says since I havent vomited is isnt likely. But I know when I am heading there, just hope I am wrong. Still sticking to Ensure and bland foods.
 
I am thinking of you. I totally get where you are coming from too.
....Obstruction and perforation always caused me the most worry... You are a 'pro' at this Crohn's stuff. You know when it's time to head to the ER. It is always better to err on the side of caution;)
 
aw Penny! i didn't know all this was happening until this thread caught my eye just now.

you've given so much to so many on this forum, it's your turn now to reach out and accept the support and care for you that is there, without question.

you know i only want good things for you.. i'm keeping my fingers (and toes and eyes) crossed that the pain will settle, and that you'll find the confidence to face whatever you need to.... you've come through it before, you will again - only this time you have us lot behind you. xxxx
 
Thanks Ding and IMP, Jeff, Mary, and all the rest. You guys are the best!

Do you have that feeling when your tooth aches and you get to the dentist is almost stops aching... I have felt today the best I have felt in almost a month for a few days. I told my husband I was feeling like maybe it wasnt warranted to go to see the Gi and get all these tests done. He KNOWS I have been in pain and bloat til I wanna burst and up walking the floors. I didnt want the weekend to come and then him leave and I couldnt get the flare undercontrol.. I know it is only temporary, because as soon as I eat, which I did for dinner, I will see sooner or later if I am gonig to pay. It has been consistant for almost 6 months and only a couple of good days a month. To me that is NOT a life. I guess we shall see by next Thursday.
 
thinking.jpg
 
Hey Pen, i am a little late getting on here but just wanted to say i really hope you manage to get things under control with all these tests. I was one of the ones you were helping out, calming me down about my first scope, and wanted to say thanks so much, especially now as i know you were probably in serious pain while doing so!
 
Yikes lady! Here I was jabbering on about breakfasts and Canada and you were in the crazy pain :eek2:

Hope everything goes ok on Thursday. Will be thinking of you for sure.

Also, really pleased to hear how quickly you were getting your answers and support from the docs secretary to your friend who is driving you.

Take care x
 
Jettalady said:
Thanks Ding and IMP, Jeff, Mary, and all the rest. You guys are the best!

Do you have that feeling when your tooth aches and you get to the dentist is almost stops aching... I have felt today the best I have felt in almost a month for a few days. I told my husband I was feeling like maybe it wasnt warranted to go to see the Gi and get all these tests done. He KNOWS I have been in pain and bloat til I wanna burst and up walking the floors. I didnt want the weekend to come and then him leave and I couldnt get the flare undercontrol.. I know it is only temporary, because as soon as I eat, which I did for dinner, I will see sooner or later if I am gonig to pay. It has been consistant for almost 6 months and only a couple of good days a month. To me that is NOT a life. I guess we shall see by next Thursday.
Click to expand...
I can't tell you how many times, when I *know* I'm not feeling well and let it go and go - then hubby finally says "get your ass on the phone or email your nurse!! Quit playing around!" - then I shoot and email off - and it happens - I start "thinking" I'm feeling better! It can last a day or two....then I'm right back at it. So frustrating - not sure why it happens, but I have been there.
 
Binxybop said:
Yikes lady! Here I was jabbering on about breakfasts and Canada and you were in the crazy pain :eek2:

Hope everything goes ok on Thursday. Will be thinking of you for sure.

Also, really pleased to hear how quickly you were getting your answers and support from the docs secretary to your friend who is driving you.

Take care x
Click to expand...


Hey don't worry, I wasn't telling anyone, not to hide it but because I have had this disease so long, I was waiting to see where and how long it was going to affect me. The pain was all too familiar from years ago, and I was supposed to have Surgery last year (tests showed no narrowing) so I avoided it. Went another year but been more times of pain than not, I have learned to live with it and it beats surgery... I try to keep my mind occupied by helping others.

I find that helping others is rewarding to the soul and if I can stop someone from going thru so much hell, then it was not all in vain. It helps to make you realize that we all have something going on but not at the same time.

Peaches: You are my strength to get me through too. Hugs.

Ed: you are such a piece of work :ylol2:.

Chub: It is good to know I had a good effect on someones illness. This is what this forum is all about...caring for one another!
 
Pen, I guess I was enjoying my pain free days that I didn't pay attention to this thread. I wish I could take your pain away. I know what you mean by waiting and knowing our bodies and our monster. We can tell when things are heading south, our biggest problem at times is going into action soon enough to get it calmed down.

You were one of the first to greet me and give support so remember I will always be here to support you.
 
Don't worry Pirate, I would be the same, when I feel good, don't realize how much I get busy. Besides you make me laugh when I need it, and support when I need it. Just knowing that I am not going it alone makes a big difference.

I am glad that my gi is moving mountains to get me tests done. Not sure if I should have surgery if there is no narrowing...but the pain is so undpredictable and friggen hurts...even if surgery buys me 5- 10 at most years, I am going for it. He wants to put me on Pred and Methotrexate but been on both, and Meth causes migrains and Pred...well everyone knows what that drug does. I want to live a painfree life now because waiting for a better drug or cure isnt coming too soon so, I am just doing what I can for me. Next Thursday will be closer to my decision and my gi can live with.

One thing I cant live without is my husband, like your Janis, they are all we need to get us through!
 
Good luck to you, Jettalady. You sound like such a wonderful person. Here I was venting about my worries to you but little did I know that you were battling this bastard again. Hugs darling...I hope they get it under control.
 
Jetta!!!! You have been so kind to my posts...I am so sorry you aren't well...Big hugs and prayers sent to you....I noticed you haven't updated your status...Whats going on?! You need support too!!! Sue
 
Update

Well I just got back from my colonscopy, good news is, no narrowing, or strictures, same ulcerated areas as last scope. Bad news, he mentioned once and said by comfirmation that I have a spastic colon....great!!! NOT.

I still have a CT scan being booked and then I see him on the 18th of Feb and I guess decide what to do next. I am to stay on Entocort, Pentasa and flagyl. At least he didnt say, methotrexate or prednisone for now...

At least surgery isnt warranted, which I am sorta happy about, but he said if you flare stay on Ensure. I need to lose more weight anyways, should make it a tad easier.

Thanks all you guys for your support, other than my friend/driver for the scope you are all the first to know. You are my family, Crohns or not. :)
 
That's good news Pen...I always knew you were a spas..(Hee, Hee, it takes one to know one!)
Yeah, no surgery. Did he mention giving you some antispasmodic meds to see if it helps?
 
I'm glad you don't need surgery my friend. I hope they can get your spastic colon under control and your ulcerated areas. I'm praying your pain doesn't last long.
 
Thanks you two, I do have buscopan and will try it and see,,, it doenst always bother me but I just never know when or how bad.

Yes, I am a spaz how did you know?? LOL

Thanks for you prayers Jeff, I know that will help :).
 
Hope you are feeling much better really soon! You are always so kind and supportive to others,wish i could take away your pain. (((((HUGS))))
 
Thanks for the hugs, I just think I need to start really paying attention to myself and do the trial and error thing. All the doc said is if I start to flare, drink Boost, but Ensure is my fave... AT least I dont have to have surgery.
 
I only saw this post now Pen. You should have had your scope yesterday. I really hope all is okay and am praying for good news from you.
Oops, suddenly there were more posts once I had finished! Good news that you don't need surgery and I hope you feel better soon.
 
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Thanks Samantha, glad you are on board here with us. Just dont know after the CT scan and bone density what he has in store for me. I have been on every drug, known to the Crohnie world in 17 yrs of dx. Can't get rid of the ulcers...
 
All the best Pen, as you already know Im having issues at the moment too and totally feel your pain. My thoughts are with you.
 
Had enough!

Well since my colonscopy, last week, I have been in pain almost every night. Gas, bloat, gurgling and I mean every inch of my intestine. Took a Tramadol to switch off the Tylenol , I only take half a tylenol#3 but took a full Tramadol, made me dream scary crap. I thought someone was touching my shoulders from behind (seemed so real) and I paniced and I had to calm myself down, that never happens. If I take Tramadol it will be during the day.

I am still feeling like I am in my firsts of symptoms when I was young. Having Ensure everyday is hard so I do have a lite dinner... then I pay, no matter WHAT I eat. My Ct scan is booked Feb 8th. By then the hubby is home. I noticed it says be there two hours so I must be drinking the contrast, they only want to focus on the intestines. Bone density and all the blood tests, and all the results will probably mean back on Prednisone. I know it. I am going to push for Cimzia because Prednisone only masks the symptoms and doesnt heal, not in my case. I try to do all I can during the day, because at night I suffer. Maybe sticking to Ensure, is the best thing but it is hard!

Sorry for venting, after 30 years of this D and gas, you'd think I would be used to it. I just need a break. :voodoo:
 
Sorry to hear it. What about to break up the Ensure some low residue diet stuff?

* Refined breads, cereals, crackers, chips and pasta with less than 1 gram of fiber per serving (Note: Ideally, look for products with zero grams of dietary fiber per serving.)
* White rice
* Vegetable juices without seeds or pulp
* Fruit juices with no pulp
* Milk, yogurt, pudding, ice cream, and cream-based soups and sauces (strained)
* Tender meat, poultry, fish and eggs
* Oil, margarine, butter and mayonnaise
* Smooth salad dressings
* Broth-based soups (strained)
* Jelly, honey and syrup
 
Hey Lady Pen, I am truly sorry that you are in such a rough spot. I will pray for you to feel better soon try to stay strong dear.
 
((HUGS)) Pen - hope you feel better soon!! I wonder why so many of us have the most trouble at night time? Do you think it is because we are distracted more during the day and our minds are more quiet and able to focus on it at night? I just hate that because it means you can't get good rest. Hopefully you can take a nap or something during the day (in between running the dogs and plowing all that snow ;) )!!
 
Thank you all, it means alot that you guys all share moments like I do, just frustrating and scary, wondering when the pain will start up again. I am coping, day by day. Thanks for the hugs.
 
Me too Jeff, but the one bright thing is watching Golden girls makes me laugh, so it helps get rid of some of the pain and gas.. I am trying.
 
Sounds like we need to ban together and buy you all the season DVDs of the Golden Girls to keep the pain away ;)
 
During the holidays they had a weekend of nothing but Golden Girls and my mom and daughter and I were busting a gut, tears rolling down our faces. Just before my husband went back to work he watched an episode and laughed out loud, he never does that lol.
 
Not sure I can take it much more!

I had the worst gas, bubbling, bloating and D and really bad pain, that I have had in a very long time. Yeah I have had bad pains and bloat but this has been outdone them all. I feel nauseated, pain now in RLQ and middle of the stomach and all these friggen pills are making me feel like crap. I am trying not to take too much for pain because it makes me feel horrible and like I need an addiction. I was upset today because I was looking forward to going to my first CCFC meeting in two years. And my husband wanted to go :eek2: shocked me all to hell....

I have my results on Thursday and I am scared he is gonna put me on Prednisone especially if my bone density test is okay.

I am going to lay low whilst I am feeling really bad, I even took a walk today and it helped a bit. Having symptoms since I was young and that is 35 years...it is wearing me down. Really hard to keep having flares, but I know another thing I have to give up is NO eating outside the home.

You know I think you guys are so great but I will let you know the results on Thursday, I just need to take some time for myself. Wish you all good health!

luv and hugs, Penny
 
Aw i am so sorry to hear you werent doing so good, and there you were giving me good advice and getting my spririts up! didnt realise you were struggling too, you must be such a kind and selfless person to keep thinking of others when you are in need, i wish you all the luck in the world getting over this episode and pray you get some relief soon, glad you have a good GI who keeps tabs on you and really gets things moving....i know what you mean about the prednisolone, i have steered clear of it for over 3 years and was in tears in the doctors office on monday when they said i had to go on a long course, that awful stuff had probably already ruined my insides....but in the end it gets you better and does more often than not, begin to ease symptoms, and if its the only answer to get you back to a functional state then it will not be worthless...i hope you manage without it tho

will await your update....

thinking of you xx
 
Oh Pen, I don't know how I missed this trail, what an awful time you have been having, and yet still your generosity and kndness is shining through on all of our posts

I'm adding you to my prayers. I hope things ease up really soon.

Lishyloo xxx
 
Love and prayers to you! Holding thumbs for your results tomorrow!
Just a thought, would a good muscle relaxant like "Librax" not work for the spastic colon?
 
I hope they sort your problem out without having to go on the Prednisone. I'll be thinking of you and hope you start feeling better soon!
 
I hope you are doing well now. I know it can be rough--and one feels alone most of the time. prayers and best wishes.
 
Thank you guys, so much, it means so much to me. I was in the hospital for 3 days and Friday they did the sigmoid and now I have Colitis, I tried to tell him my left side was sore but he thought it was IBS,,, my colonoscopy was just on the 8th and two weeks later, a sigmoid showed inflamation. Took a biopsy and will know March the 8th all my test from scans, scopes, bone density, biospsy, blood work .... I am on 40Mg of Pred...which I was trying to avoid. Oh well, back to the drawing board!

I will let you guys know for sure all the test results.
 
LOL!! I just love giving hugs, n makng people feel better. I have a friends mom who says I give the best hugs in the world, so Pen heres another for ya! :)
 
You were raised with good parents who raised you! :) Thanks.

Just confusing after all this time I was hoping the Crohn's would die off, but noooooo got worse, but not like I haven't been knocked off my feet before ;). I am just trying to do day by day. Tomorrow doesn't hold promises, but I am mentally getting better every day. I feel better today, probably because the Prednisone is doing it's job...plus more that I don't want!
 
Hiya Pen
Hang on in there hun
Good luck with the Preds, I know you were trying to avoid it, but they should provide some relief for you til your appt.
Lotsa luv xx
 
Awe crap Pen!!! Here I look up to you! :) Hang in there girl! THe Prednisone is crap but, it makes us feel better...Sending a prayer your way right now...Sorry about the colitis..All stinks...Sorry!!! Sue
 
Thanks Sue!!! I am trying, and the Pred is starting to work, did some light exercises and I got a searing pain down my leg, this has happened before, but I know I have to keep on moving. I am slowly getting used to the idea only because I have to, is I have pain on both sides now. I am being careful what I eat. Drinking water but not enough. My potassium was low at the hospital and still didnt get my B12 shot yet, month late but I am still playing catch up, and muscles are weak at the moment. Thanks for your kind words, it helps to know people out there really do care!

At least the bleeding finally stopped :)
 
Hey there... I'm glad the prednisone is helping. Sorry you are going through such a hard time. I am saying a prayer right now for your healing, relief from pain and peace. I believe in miracles :) God bless.
 
Thank you so much Juben, you are a great asset to the forum. I believe everything happens for a reason and I try to be a good person everyday and just need to focus on me. Every day is getting so much better, 40mg of pred is not always easy on the body but I have been on them many times. You have to do what you have to do right? I am finally getting good sleep and take me days. God bless you too!
 
Hi Pen! I'm so glad you're seeing improvement!! :)

Jettalady said:
40mg of pred is not always easy on the body but I have been on them many times.
Click to expand...

It's funny how having a "history" with pred changes one's perspective, doesn't it? I'm sorry you had to go back on it, but at least you know what you're in for.

Jettalady said:
I am finally getting good sleep
Click to expand...

That is a blessing! Does pred ever give you insomina? When I started it again last fall I didn't have trouble for a few mths, then it seem to hit me all at once. My Rheumatologist, bless his heart, had been on pred himself once and prescribed me a sleep aid, which is really helping. So if the pred starts messing with your sleep, ask your docs if there is something they can give you to help you sleep.

I hope you continue to see improvement every day (that dang pred had better continue to earn it's keep!)!
 
Thanks Inky stinky, almost called you Lucy lol.... I have been given sleep aids and used them once. I usually have problems sleeping anyways but I use Gravol, which is an antinauseant and take half a pill just to sleep. I am not one for taking drugs unless I have to.

The Prednisone is kicking in full force :eek2: ..weak feeling, shaky and perspiring. Have to exercise to get this awful feeling of feeling like a bowl of Jelly :lol: .

Thanks for your support!
 
Soryy Pen that you have passed through this much. for the gas try drinking ginger tea (or in capsules); also chamomille tea helps. Take care
 
Thanks Mazen, not a fan of chamomile tea but I drink a summerberry tea and mint. So far since I have started Prednisone and Methotrexate, the gas has been pretty much gone. Now that I am tapering, the bowels are moving a bit more. Spent so much time trying to avoid D and then Pred slows everything down. Trying NOT to have food too much, dont wanna gain back all the weight I lost.

So how are you doing Mazen??? You feeling better since your surgery? I bet the wife is happy too, it is a relief for our spouses too, sometimes we forget they suffer too mentally. Pretty soon there will be little Mazen's pitter pattering lol... let me know how you are doing? What meds your on and food you are eating?
 
Hi Pen. Good you are feeling abit better.

I'm doing fine actually, just some minor aches when I eat something wrong. I'm still med free and taking natural supplements.

Yeah, my wife is so reliefed now, but she is always afraid when I say I have some little pain in my tummy, and then I have to assure her that it is minor and she doesn't have to worry about it. I guess from now on I shouldn't mention every ache I have to her. But after 10 years with Crohn's, you get very suspicious from any gut pain, even if it is simple gas pain.

Still trying to conceive, keeping it in God's hands :)
 
Thanks for letting us know Mazen. I know all about the odd cramp here and there and you are a tad worried because you are wondering if it is coming back. The only thing I can say is try not to eat chewy food for awhile just let your bowels heal completely. YOU have gone this far a few more weeks wont hurt. I am the same way when I am in pain I too say what is on my mind..sometimes it is like thinking out loud. Dont worry, you will be just fine. Best of luck to you and your wife!
 
I understand your situation because I’ve have been avoiding my second surgery for years, for the same reasons you explained.

I am glad you are feeling better.
I am proud of you Penny! :)
 
Penny,
We just saw this now, and are so sad to hear you have been so sick!
Praying for you... update when you can!
Nate (and Julie)
 
Hi Nate and Julie, havent seen this post in awhile. I am on methotrexate now and WAS doing good til I ate chocolate last night... it is my no no food. Trying to get back out of pain and I will, I always do. Thanks for posting, hope you are both well!
 
Penn, I ate something today too that is a no no! Well, eat and learn for us...So, Methotrexate has been working? Glad to hear that! Sue
 
Hey Sue, I have my 8th shot tomorrow and we will see if it improves my latest flare. Gonna learn to quit coffee, my life is over lol.
 
Hey Penny, what's up with this. I went to bed last night and dang if I didn't wake up about 2 am with terrible pain in my upper left quad. Up the rest of the night, went to work anyway and back home by 9:30 still in pain. Might be because I'm due for my remicade tomorrow or just a coincident.
It came out of the blue and all I ate last night was baked fish and a potato.
Hope your feeling better.
 
Hi Pirate, I get those pains too, sometimes it can be trapped gas, and nothing will touch it, cause it can be in the outside wall, even pain killers wont help. You could have gall bladder problems, I did and had it taken out. Baked fish is good for you, and potato is fine too. I also have another friend on Remicade (actually 2) and they say about 4 days prior to their infusions they get nasty pains. I am thinking that could happen with the methotrexate even tho it is weekly shots. Having my 8th shot this after noon and see my Gi May 10th. If it aint working then I am serious (again) about surgery. Getting sick of being sick. Pretty sad that the only life I have is drinking 2 cups of coffee in the morning and now have to give that up too. I quit sugar, smoking and dont drink... makes you wonder huh?

I am sure as soon as your infusion is done you will be better? Cant have the pirate of this forum sick now can we? Hugs
 

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Anna's Bandit
Anna's Bandit

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