I need to have a real rant today I'm afraid :ymad:
For 18 months I have been being treated for severe crohns after 4 years of nothing happening despite the problems I have been having. I thought I was finally getting the treatment I needed and things seemed to be moving along wonderfully.
I am getting so fed up and frustrated now though that I feel like no-one knows what they are doing. I had a colonoscopy last October and they found a narrowing in my bowel. I was put onto weekly Humria injections and then in January I had another colonoscopy to see if these had made a difference but they hadn't, the narrowing was still there. In March I had a barium x-ray which was extremely unpleasant, and it took 2 months to get the results, of which they determined there were actually 2 narrowings and not one.
Last month I had ANOTHER colonoscopy for some reason, when they knew they couldnt get past the narrowing, and now they have written to me saying they are going to have to send me for another one to stretch the narrowing and try and get past. Why have they only just decided to do this??
Every time I go to see the doctor they talk about something different, and last time I went they said they would probably have to remove my whole large bowel!!!! Its a big step considering they haven't tried all the medication options!
I'm so angry that they are just dragging their feet and expecting me to just keep having a camera shoved up my backside because they can't decide what to do. After the xray they should surely have done all this then?
I don't want to have any more colonoscopies but if I refuse to do it then I dont know what they can do and whether they would stop the Humira injections? I've just split from my husband and I'm trying to sort out my daughters school for September and all other kinds of things and I just cant cope with all this any more. Im sorry for this outburst but I just dont know what to do with my life at the moment!
For 18 months I have been being treated for severe crohns after 4 years of nothing happening despite the problems I have been having. I thought I was finally getting the treatment I needed and things seemed to be moving along wonderfully.
I am getting so fed up and frustrated now though that I feel like no-one knows what they are doing. I had a colonoscopy last October and they found a narrowing in my bowel. I was put onto weekly Humria injections and then in January I had another colonoscopy to see if these had made a difference but they hadn't, the narrowing was still there. In March I had a barium x-ray which was extremely unpleasant, and it took 2 months to get the results, of which they determined there were actually 2 narrowings and not one.
Last month I had ANOTHER colonoscopy for some reason, when they knew they couldnt get past the narrowing, and now they have written to me saying they are going to have to send me for another one to stretch the narrowing and try and get past. Why have they only just decided to do this??
Every time I go to see the doctor they talk about something different, and last time I went they said they would probably have to remove my whole large bowel!!!! Its a big step considering they haven't tried all the medication options!
I'm so angry that they are just dragging their feet and expecting me to just keep having a camera shoved up my backside because they can't decide what to do. After the xray they should surely have done all this then?
I don't want to have any more colonoscopies but if I refuse to do it then I dont know what they can do and whether they would stop the Humira injections? I've just split from my husband and I'm trying to sort out my daughters school for September and all other kinds of things and I just cant cope with all this any more. Im sorry for this outburst but I just dont know what to do with my life at the moment!
