I just really need to vent and feel validated - ovarian cyst burst

[brooklyn23]

After starting to do better in the spring, my health seems to have taken another downturn.

I had one of my mid-cycle-I-can't-get-out-of-bed-for-three-days attacks in June, and I feel like I might be on the verge of another one.
My father complains that "everything with me is about pain" when I mentioned (correctly) that my first flare happened in Venice.
My mother tells me "not to borrow trouble" when I feel a flare building and that I "can't afford to take any more time off work" for my illness.
My doctor says it's "just mittelschmerz" and doesn't take me seriously about how debilitating the pain is.

I just want to break down crying somewhere because I feel so invalidated by everyone around me. I don't WANT to be sick. I don't WANT to be in pain. I don't want this MYSTERY illness that might be IBD or might not but it was at some point????

 

[brooklyn23]

I just made an appointment with a new gyno because I couldn't stand the thought of my GI telling me "it's just ovulation pain" again. Because I need someone to either say "No... it's not" or "here's how we prevent it."

I've had horrible horrible luck going on the pill in the past. I hate it. But it's prevented the worst of the pain.

 

[Sharkgirl]

I am sorry you are going through all of that right now, having debilitating pain and not being able to alleviate it is terribly frustrating. I assure you, you are not alone Most people won't ever understand what you go through; my boyfriend thinks I am "faking" at times. I also miss a lot of work because I can be in so much pain which has made me late on all of my bills. I get attacks where I am in bed for days with intense abdominal pain and I can vomit for hours. I take Vicodin for that but a lot of the time the pain is too bad and not even painkillers work. I am anemic too so I have been taking iron pills for the last few years and read a lot online about how that can cause severe abdominal pain and nausea, so I stopped taking that a few weeks ago and have been somewhat okay. What type of symptoms are you experiencing?

 

[Caitlin84]

I am so sorry. All that invalidation has to be maddening. Especially the, what sound like, incompetent doctors. Pain is not normal, don't let any doctor tell you it is. Keep advocating for yourself.

As for your family, that just sucks. I'm sorry. I would try to minimize contact or at least talking about the subject. You can't change them and you shouldn't have to put up with the negativity.

 

[Dan1970]

That happens to me once in a while too and I promise you its not ovulation pain. I've had a vasectomy for 11 years so I don't ovulate anymore.

I know how nasty it is - the only thing you can do is get up to go to the bathroom and everything you eat or drink ends up hurting. I'm lucky to be married to a nurse who sees Crohn's patients all the time and has nursed me through some really rough patches. If I tell her I can't get out of bed, she is just happy she doesn't have to drive me to the hospital.

Get a new GI. If you know a nurse that works on a Med-Surg ward, get a recommendation - they know who the best GIs are.

I hope you find a way to feel better.

 

[brooklyn23]

So the GYN turned me away. Oh you've been in pain for 9 years? Come back to see a specialist in two weeks.

Now I'm in so much pain I can't sit up.

 

[24601]

I wish I had something more helpful to say but I just want to send you my support :ghug:

 

[Caitlin84]

When in doubt, go to the Emergency Room. They can treat the pain, and maybe get your appointment moved up as well.

 

[brooklyn23]

Well I have gone through a bunch of tests today and it looks like I had an ovarian cyst burst

 

[teeny5]

Glad to hear you finally got a diagnosis...what treatment did they give you?

 

[Caitlin84]

Ouch! Those hurt!!! (hugs)

 

[brooklyn23]

They gave me some hydrocodone-Tylenol, they said the internal bleeding wasn't too bad. The good thing is the CT showed my crowns under control.

 

[brooklyn23]

*crohns

 

[Caitlin84]

Glad the Crohn's is under control. It can be so confusing when there are multiple issues in virtually the same place. I have stage IV endometriosis that it took us forever to figure out because I just attributed all the symptoms to Crohn's. This Crohn's flare up I was initially attributing the symptoms to the endometriosis.

 

[brooklyn23]

They had to run the CT twice because it looked like one bowel loop was closed off but then it turned out to be fine. Nope... it looks like I wsa having repeated ruptured cysts. Thanks to NO ONE FIGURING THAT OUT.

 

[woodstock69]

I was having a warm sensation & discomfort in my rib area about 2 weeks ago. My GP said it sounds like colon issues and she thought I should get a colonoscopy so I made a GI appointment for tomorrow. Now, I have sharp pain in the lower left abdomen, shoulder, and thigh that started a week ago. She said it's probably muscular but since it is mid-cycle it could be a ruptured cyst. So, now I also have a Gyn appointment tomorrow.

Any advice? Could it be both? Neither?