I lasted 5 months...

[num1habsfan]

Well guys, after going almost 5 months without a flareup (the longest I've ever gone), I am officially flaring again. what did it? eating soup with a few double-cooked carrots pieces in it. it has really been reeking havoc on me, as not only have a returned to having D 3-5 times a day, and not only is it occasionally bloody, I am vomiting. Have vomited 3 times in the last 3 weeks, all times due to pain.

Tried to get help with the doctors where I'm now located (2 1/2 hours from home) and they've all refused to help. So i got my family doctor to call me, the one that always deals with me and my flareups. Told her the situation. She said it's a bit hard to give prescriptions over the phone, but she did write one up for me for Cipro and Flagyl for a week (i can get this filled tomorrow).

She asked what the situation was with my GI, and I said that I am still waiting for the CT Enterography.. been waiting since February. I said that my GI is puzzled too about why none of the tests show anything so far. Then i asked if she thinks the CT Enterography will show anything and she says "it looks at things in a different way, so if he didn't think it would show something he wouldn't schedule you for it".

She then complemented me on not letting this take control of my life, and said she has had 2 or 3 other people before in the same situation where it doesn't matter how much testing they have done, there is never a diagnosis for them. Then i let my emotions take over when I told her that February will be 5 years of dealing with this...

 

[Jennifer]

So you're waiting for the GI doc to do this test or you're waiting for the test results? I'd imagine that the results would be in already. Is it that the doctor simply can't figure it out? Is it possible to seek a second (or 3rd or 10th, whatever number you're on) opinion from another GI? Is it possible to go to the emergency room to get things sorted out faster? They can also help with pain management for a short while at least. Have you contacted your GI about your current symptoms? If so, what did they say?

If it is Crohns then no, its not what you ate that caused the flare. What you eat can bring on symptoms sure but not a full on flare.

 

[num1habsfan]

So you're waiting for the GI doc to do this test or you're waiting for the test results? I'd imagine that the results would be in already. Is it that the doctor simply can't figure it out? Is it possible to seek a second (or 3rd or 10th, whatever number you're on) opinion from another GI? Is it possible to go to the emergency room to get things sorted out faster? They can also help with pain management for a short while at least. Have you contacted your GI about your current symptoms? If so, what did they say?

If it is Crohns then no, its not what you ate that caused the flare. What you eat can bring on symptoms sure but not a full on flare.

Still waiting for the test to be done. The GI himself isn't doing it, it's another doctor. That is why my GI hasn't been able to speed up the wait time.

The last time i went to the ER to get help with my starting flare they told me "go see your family doctor". When i got worse and starting vomiting i went to a walk-in clinic. they said "go see your family doctor".

 

[Jennifer]

Well, you have seen your family doctor, roughly. My response would be, "yes, I know, and I have, treat me anyway."

Does the doctor who will be doing the test know about your current symptoms? If not, they need to be informed so the date can be moved forward because you shouldn't be left suffering like this. The wait time to see specialists and get tests done can really be quite retarded and sometimes the only way to be seen sooner is to go to the ER over and over again and/or to nag the doctor's office by calling over and over and asking to be see or have the test done sooner. And sadly when that doesn't work, all you can really do is use the ER at your disposal to get nutrients and pain relief when needed. It's quite sad that this actually happens to some people.

 

[num1habsfan]

Okay i thought wrong. It's actually Nu-Cotrimox and Flagyl, for one week. 2 Nu-Cotrimox a day, 1000mg of Flagyl per day. Can you say ICKY?!

 

[BLM]

Gosh, how frustating. I know how you feel, Ive had many specialists give up. Keep pushing them to listen to you...eventually someone will....it may take a long time, but dont give up. My prayers go out to you Num

 

[MADiMarc]

Num and all that have had this type of experience,
I don't understand it! I did have an experience like this years and years ago when UC,Cr,IBD were not well known but have not in years. I realize you do not have a dx but this sounds like the dark ages! I hope you find relief. No one should be in pain like that.
Michele

 

[Jenny06xx]

Aww I'm sorry to hear you still have no diagnosis it's horrible isn't it when all you want is a name for your symptoms and for your doctors to take you seriously!!!
I suffered for 7 years with no diagnosis ! Each time I went to my gi I begged for tests and left crying with no tests! My gp wouldn't even send me for an abdo scan just kept saying ibs !! ( i think every doctor had me down as a hypochondriach or after pain pills ) I finally got my diagnosis of crohns in September this year and all my doctors attitudes have dramatically changed ! They can't do enough to help me !! They are friendly , kind and even joke with me. ( I think they feel guilty now lol) but I'm not angry about the 7 year wait because at least now I know I'm not mad and never have been lol and I'm finally being helped .
I know how frustrating it is but something will show up eventually it's just waiting for the right tests to be done, what tests have u had so far ?
I was diagnosed by a ct scan which showed inflammation of the small and large intestines plus thickening of the bowel wall, then a colonoscopy with biopsies confirmed crohns disease .
Hang in there Hun something will show it has too !!!