Ive recently discovered the root of much of the problem I am suffering is Crohens disease.
Since 11 years old (now 36) I have felt ill and been told it's everything from food intolerence to arthritis or totally in my head depending on the doctor.
Winters are worse for the last 5 or 6 winters I have been bed ridden.
This year was 5 months of total incapacitation and I decided to become a medical investigator to get to the root cause of it, as I have kids and basically they have no mum when I am very ill.
Afflictions this winter included horrendous headache and dizzyness on standing up which is a first constant sinus infections along with tracheitis also firsts an inability to swallow anything more bulky than pulped foods as it got stuck or hurt alot... my gall bladder then decided to also throw a hissy fit along with the usual unexplained joint swelling and pain in the hands back and hip and feet this time and usual bleeding sore backside!
To cut to the chase I was ill and have suffered most of the things I got in one foul swoop in some way or another until on top of all this I also had eye problems in my right eye which has never ever been a problem till now.
There are huge vessels across it which pulsated making my eye vibrate when I lie down and really dry and irritated.
I went to the doctor in feb after suffering so much I literally begged for help and was sent for finally for a colonoscopy.
The prep they gave me for it made me ill and I mean ill I couldn't actually complete the prep I was that ill and at the hospital was treated with total contempt as if I was being dramatic I was ill for days afterwards to.
They took biopsies and glared at me till I left the hospital.
I then waited three months before I had had enough of total silence and chased up the biopsies ...roughly a week after harrasing a medical secretary I got a letter saying that they biopsies showed inflammation of the terminal illium and that I needed another colonoscopy as crohens is suspected they have changed the prep ive to take and sound far more sympathetic finally.
At 11 years old I attended a kids hospital for joint and stomache probs I was told I ate to much and had writers cramp and was sent away.
Since then I have had nothing but doctors showing me lack of intrest when I try and explain how I am feeling.
Like my body has been invaded by something that hates me! Like I am physically angry at myself.
Since reading up on Crohens I cannot believe how many symptoms I show especially with my skin it's really really sensitive to any chemical I get a variety of sores and spots the mouth ulcers too Ive always had them...One thing I am intrested to know from others is does anyone get problems with the saliavary glands?
Mines swell up and down ususally just before or during a flare up I was tested for this when I was 16 and it showed inflammation with no answer how to control it.
Again kidney problems anyone have problems there?
Mines are very sensitive to things I eat and drink coke is the route of all evil for both kidnies and my stomache processed foods have to avoided again both for my tummy and my kidnies I get nausea can't pee or pee all the time.
I get constant uti's which can only be controled with a constant antibiotic investigations again showed inflammation with no reason for it.
All in all I now feel I can possibley start to get better and not worry so much about how ill I will be in the winter or if I eat something processed or rough and that finally I can have a conversation with a doctor who will not look at me as if I am completely mental!
Since 11 years old (now 36) I have felt ill and been told it's everything from food intolerence to arthritis or totally in my head depending on the doctor.
Winters are worse for the last 5 or 6 winters I have been bed ridden.
This year was 5 months of total incapacitation and I decided to become a medical investigator to get to the root cause of it, as I have kids and basically they have no mum when I am very ill.
Afflictions this winter included horrendous headache and dizzyness on standing up which is a first constant sinus infections along with tracheitis also firsts an inability to swallow anything more bulky than pulped foods as it got stuck or hurt alot... my gall bladder then decided to also throw a hissy fit along with the usual unexplained joint swelling and pain in the hands back and hip and feet this time and usual bleeding sore backside!
To cut to the chase I was ill and have suffered most of the things I got in one foul swoop in some way or another until on top of all this I also had eye problems in my right eye which has never ever been a problem till now.
There are huge vessels across it which pulsated making my eye vibrate when I lie down and really dry and irritated.
I went to the doctor in feb after suffering so much I literally begged for help and was sent for finally for a colonoscopy.
The prep they gave me for it made me ill and I mean ill I couldn't actually complete the prep I was that ill and at the hospital was treated with total contempt as if I was being dramatic I was ill for days afterwards to.
They took biopsies and glared at me till I left the hospital.
I then waited three months before I had had enough of total silence and chased up the biopsies ...roughly a week after harrasing a medical secretary I got a letter saying that they biopsies showed inflammation of the terminal illium and that I needed another colonoscopy as crohens is suspected they have changed the prep ive to take and sound far more sympathetic finally.
At 11 years old I attended a kids hospital for joint and stomache probs I was told I ate to much and had writers cramp and was sent away.
Since then I have had nothing but doctors showing me lack of intrest when I try and explain how I am feeling.
Like my body has been invaded by something that hates me! Like I am physically angry at myself.
Since reading up on Crohens I cannot believe how many symptoms I show especially with my skin it's really really sensitive to any chemical I get a variety of sores and spots the mouth ulcers too Ive always had them...One thing I am intrested to know from others is does anyone get problems with the saliavary glands?
Mines swell up and down ususally just before or during a flare up I was tested for this when I was 16 and it showed inflammation with no answer how to control it.
Again kidney problems anyone have problems there?
Mines are very sensitive to things I eat and drink coke is the route of all evil for both kidnies and my stomache processed foods have to avoided again both for my tummy and my kidnies I get nausea can't pee or pee all the time.
I get constant uti's which can only be controled with a constant antibiotic investigations again showed inflammation with no reason for it.
All in all I now feel I can possibley start to get better and not worry so much about how ill I will be in the winter or if I eat something processed or rough and that finally I can have a conversation with a doctor who will not look at me as if I am completely mental!
