I would like to talk to anyone who has had their ileocecal valve removed...

[dvdgrs]

I would like to talk to anyone who has had their ileocecal valve removed.

Dave
[email protected]

 

[Zalanicht]

I had mine removed. If you got some questions you can email me or Pm me.
[email protected]

 

[tpd320]

Same here. Mine was taken out during a resection...

 

[CDDad]

Mine was removed in my 1st surgery. That was a right hemicolectomy. My diarrhea worsened after, but from what I read, that may have been from the combo of losing the valve and the right colon. Many people do fine without the valve and go back to normal stools.

 

[cally]

Mine was taken out with a resection surgery (a few feet removed in all). I know you're pretty worried about the possibility of having chronic diarrhea after surgery...I think many factors go into the way your body adjusts to having less intestine and no one can tell you exactly how it will affect you.

For me, I went from having one bowel movement per day to having one to three per day. Diarrhea was never really one of my symptoms though.

Good luck! Please PM me if you'd like to talk more - it seems like you have lots of people here willing to share their experiences too!

 

[kenny]

mine came out as well. It was explained to me that there is a common artery that supplies the terminal illium and the parts removed in a typical surgery are pretty much dictated by that blood supply so the artery can be closed off.

I don't hang out here much here anymore as I am fully back to feeling normal with typical bowel movements and nothing much to complain about but I'll try to check in on the thread.

 

[brennerh]

ileocecal valve removal

Mine was removed laproscopically in 2005. do you still need to talk about it? i have a lot to say on the topic. -harry

 

[e13 boy]

Mine was removed in my 1st surgery. That was a right hemicolectomy. My diarrhea worsened after, but from what I read, that may have been from the combo of losing the valve and the right colon. Many people do fine without the valve and go back to normal stools.

Lost mine 13 years ago & as per CDDad due to right side hemi colectomy.
From what i have heard & read from other people in the same position we all seem to report different post op bowel function.
Please feel free to PM me.

Best Wishes

 

[bpf]

ileocecal valve removal

I had my ileocecal valve removed due to a large non-malignant tumor on the valve about 4 months ago. A portion of the large and small intestines were removed, also. I was hospitalized for 6 days. My surgeon was optimistic and told me I would have problems for about 6 weeks and would be back to normal. My life is mostly back to normal. If you must have this surgery, I would suggest not being frightened by what you read on the internet. (I was) My only 'problems' are that I lost weight and it hasn't crept back on--I'm at a terrific weight. My appetite is not quite what it was and I cannot eat dinner much after 6 pm or so without having sleeping discomfort. But I do not view these as problems. Each person can have individual results and should listen to their surgeon. I followed orders exactly.

 

[Scifimom]

Yup me too. I lost my valve almost three years ago in emergency surgery (The one that DXed me) My doc told me that I would suffer from diarrhea for about a year before my colon would adjust. Three years later I have 5-7 ds a day including RIGHT after I eat. Despite that I got my pre-crohns weight back (Which means I look like a baby whale) and my life is back to "normal" except from the diet restrictions (Bye bye corn-lettuce-cabbage-legumes and fruits).