id love to have someone listen....
okay soo here it goes...
(this could get long)
For about 3 years now i had horrible abdominal pains that would make me cry, but my doctor just put me on stupid diets and never ONCE did a simple blood test or even suggested it. Eventually the pains would leave for about half a year, but come back and I was learning to live with it. But two summers ago it came back worse than ever and with a different feeling.
My height was going up and my weight was going down and I was painfully skinny, but physically couldnt eat more than a few bites here and there. My loved ones started getting suspicious and I began geting into fights with my family members because they thought I was not eating because i was anorexic or trying to get attention. It hurt so bad to know they wernt taking htis seriously. Well two summers ago i was camping with my family in the mountains. We hiked 4 miles in with 25 punds on my back (that was over a fourth of my body weight) the pain had been back for a few weeks but magicall went away when we went on this trip. For each day i was fine until the last day/night. There was a bear nosing around the campsight so obviously i didnt want to go outside, but i really had to pee. So i just held it till morning. When i got up i went pee and the tightness sort of went away but was still there. After hiking out it came back and started to get more and more intense. For the 10 hour car ride back home i layed in the back seat praying to God to make it go away and crying. When i got home i went straight to bed and pretty much live dthere till Saturday. On saturday i woke up and knew something wasnt right. All day i didnt eat or drink anything because it hurt too bad. I tried EVERYTHING to relieve the pain and by the afternoon i resorted to sitting on the floor and crying softly, trying to remain strong. Finally I went in to tell my parents I didnt feel good and when they took my temperature they begged to let them take me to the ER, but i was afraid theyd say nothing was wrong so i didnt let them. About an hour later when i felt like death would be better than this I caved. Every bump in the road felt like a knife to my stomach and by the time i got there i was ghostly pale and in sever pain. They let mr right back and immediatly put an IV in. they dug around in my vain with me screaming for about 5 minutes until she finally got it in. And then i got my first run in with morphine, and realized just how sensetive i was to those meds..... Then the tested started. ultra sounds, and cat scans. Enemas. fun. All first for me. They ruled out appendecitis becuase they could barely find my appendix, but then thought about Crohn's. I was transfered to the University of Iowa and they wouldnt let me eat or drink because of the possibility of surgery. The next day i still knew nothing. they found out i had an abces and that it was very severe. They decided to put a drain in and after drinking extra contrast and FREAKING out right before it was going to be put in, they canceled it. And still told us nothing. I spent 6 days in bed, eating and drinking nothing. and puking when they finally let me eat something. They released me with a picc line and for 2 weeks i was fine. when i went in for a colonoscopy and endoscopy they found out just how severe it was and immediatly scheduled me for surgery. I was told id have a bikini line scar but when i woke up it was a huge scar along the curve of my belly. This is when the fun starts (again so sorry this is so long, i just need to tell my story). So the epideral button cap thing was on my spine, so the doctor moved it but pulled it out too far so the medicine was pooling up on my skin. obviously an hour out of surgery, this hurt so i asked for more meds. i was using the self push morphone thing like crazy and it was making me sooo naeusos. so they put me on 2 different naeusea meds. one being the one that starts with C. Sorry i dont remember it! it did nothing to control the nausea so i was puking hours after surgery and you can imagine just how bad that hurt, and then it hurt SOOOO bad internally because i had so little meds (i was trying not to use the morphine so much to combat the nausea). well walking was imossible and by the next night i was beginning to feel stiff. No one believed me and told me to relax. By the middl eof the night my back and nexk was ached and stiff. I got up to go to the bathroom and on my way back my head flopped back and my arms came up to look like a dinosaur and the scaries thing is i had no idea what was happening. After an entire night of my mom holding me (she was so uncomfortable but i physically COULD NOT MOVE) the doctor came in and knew right away to give me benadryl. No nurse knew what to do and just let me suffer like that. I finally got out and am now doing Okay i think. Its been like a year and a half now and i still have completly watery stools (never gone back to normal after surgery) i take azothioprine and allauprinol every day but often forget> i eat a normal diet but the bathroom thing really gives me a hard time. i take forever and its hurts so much just to try and get through the day. those of you who hav this know what im going through. So do you have any tips or tricks for me? I could really use it. Thanks for reading this... i know its really long... Thanks so much!
okay soo here it goes...
(this could get long)
For about 3 years now i had horrible abdominal pains that would make me cry, but my doctor just put me on stupid diets and never ONCE did a simple blood test or even suggested it. Eventually the pains would leave for about half a year, but come back and I was learning to live with it. But two summers ago it came back worse than ever and with a different feeling.
My height was going up and my weight was going down and I was painfully skinny, but physically couldnt eat more than a few bites here and there. My loved ones started getting suspicious and I began geting into fights with my family members because they thought I was not eating because i was anorexic or trying to get attention. It hurt so bad to know they wernt taking htis seriously. Well two summers ago i was camping with my family in the mountains. We hiked 4 miles in with 25 punds on my back (that was over a fourth of my body weight) the pain had been back for a few weeks but magicall went away when we went on this trip. For each day i was fine until the last day/night. There was a bear nosing around the campsight so obviously i didnt want to go outside, but i really had to pee. So i just held it till morning. When i got up i went pee and the tightness sort of went away but was still there. After hiking out it came back and started to get more and more intense. For the 10 hour car ride back home i layed in the back seat praying to God to make it go away and crying. When i got home i went straight to bed and pretty much live dthere till Saturday. On saturday i woke up and knew something wasnt right. All day i didnt eat or drink anything because it hurt too bad. I tried EVERYTHING to relieve the pain and by the afternoon i resorted to sitting on the floor and crying softly, trying to remain strong. Finally I went in to tell my parents I didnt feel good and when they took my temperature they begged to let them take me to the ER, but i was afraid theyd say nothing was wrong so i didnt let them. About an hour later when i felt like death would be better than this I caved. Every bump in the road felt like a knife to my stomach and by the time i got there i was ghostly pale and in sever pain. They let mr right back and immediatly put an IV in. they dug around in my vain with me screaming for about 5 minutes until she finally got it in. And then i got my first run in with morphine, and realized just how sensetive i was to those meds..... Then the tested started. ultra sounds, and cat scans. Enemas. fun. All first for me. They ruled out appendecitis becuase they could barely find my appendix, but then thought about Crohn's. I was transfered to the University of Iowa and they wouldnt let me eat or drink because of the possibility of surgery. The next day i still knew nothing. they found out i had an abces and that it was very severe. They decided to put a drain in and after drinking extra contrast and FREAKING out right before it was going to be put in, they canceled it. And still told us nothing. I spent 6 days in bed, eating and drinking nothing. and puking when they finally let me eat something. They released me with a picc line and for 2 weeks i was fine. when i went in for a colonoscopy and endoscopy they found out just how severe it was and immediatly scheduled me for surgery. I was told id have a bikini line scar but when i woke up it was a huge scar along the curve of my belly. This is when the fun starts (again so sorry this is so long, i just need to tell my story). So the epideral button cap thing was on my spine, so the doctor moved it but pulled it out too far so the medicine was pooling up on my skin. obviously an hour out of surgery, this hurt so i asked for more meds. i was using the self push morphone thing like crazy and it was making me sooo naeusos. so they put me on 2 different naeusea meds. one being the one that starts with C. Sorry i dont remember it! it did nothing to control the nausea so i was puking hours after surgery and you can imagine just how bad that hurt, and then it hurt SOOOO bad internally because i had so little meds (i was trying not to use the morphine so much to combat the nausea). well walking was imossible and by the next night i was beginning to feel stiff. No one believed me and told me to relax. By the middl eof the night my back and nexk was ached and stiff. I got up to go to the bathroom and on my way back my head flopped back and my arms came up to look like a dinosaur and the scaries thing is i had no idea what was happening. After an entire night of my mom holding me (she was so uncomfortable but i physically COULD NOT MOVE) the doctor came in and knew right away to give me benadryl. No nurse knew what to do and just let me suffer like that. I finally got out and am now doing Okay i think. Its been like a year and a half now and i still have completly watery stools (never gone back to normal after surgery) i take azothioprine and allauprinol every day but often forget> i eat a normal diet but the bathroom thing really gives me a hard time. i take forever and its hurts so much just to try and get through the day. those of you who hav this know what im going through. So do you have any tips or tricks for me? I could really use it. Thanks for reading this... i know its really long... Thanks so much!
Roo has been in remission since her surgery and does not have ongoing pain. Hope to hear from you soon.
