Ileocecectomy 10/30/12 - So Scared

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Joined
Oct 20, 2012
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31
Hi,
I'm new here and need some support and advice.

I've had recurrent intermittent episodes of severe abdominal pain (around belly button) with nausea and vomiting for 3 years now. Many ER and doctor's office visits with diagnoses from functional abdominal pain to fibroids.

Had a hysterectomy in July 2010 that was supposed to "fix" it and then lysis of adhesions in December 2010 that was also supposed to "fix" it but neither stopped the episodes of pain. I never know when one is going to hit me, and I feel like I'm going to die when I have one.

I finally did a camera capsule endoscopy Oct 2, and went back Oct 11 for CT scan and to talk to doctor about what the pictures showed, and he told me the CT shows capsule stuck in the last part of my small bowel. Pictures show numerous ulcers and severe inflammation in small bowel. All previous tests before this one were normal; nothing wrong, etc., so I finally feel somewhat vindicated -- I KNEW something was really wrong for me to hurt that bad.

Doctor recommended surgery to remove the segment of bowel that has the stricture and said he needed a biopsy to help him know what kind of medication to prescribe -- to confirm a Crohn's diagnosis.

I saw the surgeon yesterday, and he said he is reasonably sure he can do it laparoscopically, but no guarantees. I am a very high risk patient because I'm morbidly obese, and he drove that point home. I told him I'm well aware of that fact, but I did fine with both previous surgeries, and I plan to just as well with this one. I know it's a more complex, major surgery, and I feel terrified and overwhelmed, but don't have a choice; it's got to be done.

Not to mention I can't stand feeling so nauseous every day and trying to drag myself to work every day -- I have to work. It's been really, really hard, to say the very least.

I am praying this surgery will help me feel better. I know it will probably be rough going for the first few days afterward, but I will get thru it.

Can anyone tell me if I will wake up with an NG tube? If so, how long will it have to be in? I had one of those during an ER visit, and it hurt my throat SO BAD; I hated it. But I'll deal with it.

I would really appreciate any advice, suggestions, experiences, comments, etc., and thank you in advance.

Dana B.
Houston, TX (Cypress)
:sign0085::sign0144::cry:
 
Can anyone tell me if I will wake up with an NG tube? If so, how long will it have to be in? I had one of those during an ER visit, and it hurt my throat SO BAD; I hated it. But I'll deal with it.

I think it is unlikely you will have a NG tube, I certainly did not when I had a right hemicolectomy, but this is something you need to talk to your surgeon about. Good luck and I hope it makes you feel a lot better.
 
Hi Darubo,

Sorry to hear about your upcoming surgery, but good news that it is coming to a closer resolution. I had an ileostomy and r hemi about three weeks ago. The surgery was not done lap but fully open as the section of diseased gut was extensive.

Post surgery was relativley tough as expected . I didnt have a NG tube although I would have preferred to have. My gut was in paralysis so had bad nausea for the first week. I had it put in on day 2 post op and that ranks as the worst thing during my time in hospital. It did relieve the nausea which was great and I would not put it off. After 3 days it came out and then had to go back again on day 7 after the op again for nausea.

My best advice is walk as soon as you van. Take it easy on the food in the beginning- light and mashed.

Good luck and let us know how you get on.
 
Darubo,

I agree that you should get up and walk as soon as you can. It really does help you feel better and get out of the hospital sooner. I did not have an NG tube following my surgery, so I can't provide any advice on that issue. I would advise you, however, to watch your pain meds. They tend to cause constipation. Fortunately for me, a mild laxative once I was home helped.

You'll do well and feel much better afterwards. Good luck and let us know how it goes. :)
 
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