Hi KWalker,
Like you, I seem to be allergic or react to everything I've tried so far, I am recovering from Humira which I stopped 6 weeks ago as I had a severe itching rash which they tell me is very rare and the dermo and GI have never seen this reaction before, hence I am on 50 mg of Pred to keep the itching at bay and a strong antihistamine at night so I can sleep through the extreame itching. I am running out of medication options, have been through Imuran, Salofalk, Methotrexate and Humira since January. So I can sympathise with you on that one. once off the Pred I am planning to go off the meds for a while and try to manage by diet. I know this is not recommended, but the side effects far out way the C in my case... even with perianal crohns. I have recently rejected my GI's recommendation to start Remicade as mentally I don't think I could tolerate another reaction at this point. We are damned if we do and damed if we don't. I believe if your gut instinct is telling you to take meds to get your situation under control then you should listen. Yes all the meds are scary but if they can help your abscess to heal then you will gain back some normality and so psychologically you should be in a better place.. If you can tolerate Imuran I would start there, yes it takes longer to work but doesn't come with the black warnings/side effects that Remi and Humira do.. I know I would rather be on something less freaky than I had to but I haven't had a choice, probably like you. Although they are proven to work faster at clearing your condition, its a catch twenty two. You always have the option to move up if the Imuran doesn't work. Best of luck and hope I have been helpful and not to opinionated. Wishing you healing soon.
