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- Sep 6, 2013
- Messages
- 52
I dont believe I have it and I dont want to take the Pentasa.
In denial about Crohns diagnosis
- Thread starter millerkat1
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Mar 27, 2013
- Messages
- 937
Take it,it helps its the mildest treatment out there and although at the start I thought it did nothing ,it's helped me,only problem I had was the tablets are hard to swallow(take them with ginger,pop,,soda water).if you don,t take the tablets why bother going to the doctors?they could help stop,prevent a more serious treatment in the future.its a really awkward condition but there's no reason you can,t get back to normal listen to the drs take your medication,check out the diet advice on here.it helpscheers
- Joined
- Feb 8, 2011
- Messages
- 110
I'm in the same boat
Just diagnosed 2 weeks ago & prescribed Pentasa too
I screw up the courage to take it, but end up putting it back in the cupboard
- Joined
- Sep 6, 2013
- Messages
- 52
I dont think my symptoms point to crohns
i know what you mean....
You might have a mild form of crohns. Some of us didnt have the luxury of choosing if we would or wouldnt take meds, or indeed have surgery. It was out of neccessity. Life or death sort of stuff.
If i was back in a newly diagnosed situation, knowing what I know now, i would want to see photos of the diseased gut. I would have a colonoscopy and get them to give me the visuals so i can see with my own eyes where it is and how bad it is.
DO look at dietary stuff. You might find the whole thing could go away by stopping injesting certain things; the most obvious would be if your diet comprises mostly
-meat
-gluten (burgers/pasta)
-sweet breads
-sweet drinks (coca cola & any fizzy drinks)
-chocolate
-dairy
try and change the diet to include less of that and more
-fruit and vegetables
-rice
-fish
-etc
good luck.
You might have a mild form of crohns. Some of us didnt have the luxury of choosing if we would or wouldnt take meds, or indeed have surgery. It was out of neccessity. Life or death sort of stuff.
If i was back in a newly diagnosed situation, knowing what I know now, i would want to see photos of the diseased gut. I would have a colonoscopy and get them to give me the visuals so i can see with my own eyes where it is and how bad it is.
DO look at dietary stuff. You might find the whole thing could go away by stopping injesting certain things; the most obvious would be if your diet comprises mostly
-meat
-gluten (burgers/pasta)
-sweet breads
-sweet drinks (coca cola & any fizzy drinks)
-chocolate
-dairy
try and change the diet to include less of that and more
-fruit and vegetables
-rice
-fish
-etc
good luck.
describe the symtoms millerkat>...??
- Joined
- Sep 6, 2013
- Messages
- 52
Diagnosed with Crohns same day i found out i was pregnant Since last summer ive been having a lot of nausea vomitting and immense eligastric pain. Last 60# i less than 2.5 months. Did an upper scope just showed gastritis. Pain continued
He did u/s's, multiple cts and did some tests for gallbladder. All were normal. All my symptoms continued. In September a ct showed colitis, had a colonoscopy which was normal. In december i started vomiting blood. Had an upper scope showed multiple ulcers. 8 weeks later there were no ulcers. Symptoms continued. May i had blood in my vomit again was rescoped and had multiple ulcers. My gi dr referred me to mayo for nonhealing ulcers and chronic abdominal pain. Went down to mayo they did and upper scope twice which showed ulcers. They did a gastrin tests which was elevated. So they thought I had a gastrinoma. About 3 weeks ago i was vomiting and pooping blood. Did upper abd lower scope which showed chronic inflammation. My gi dr decided to do the IBD sgi diagnostic blood test which showed I have Crohns
He did u/s's, multiple cts and did some tests for gallbladder. All were normal. All my symptoms continued. In September a ct showed colitis, had a colonoscopy which was normal. In december i started vomiting blood. Had an upper scope showed multiple ulcers. 8 weeks later there were no ulcers. Symptoms continued. May i had blood in my vomit again was rescoped and had multiple ulcers. My gi dr referred me to mayo for nonhealing ulcers and chronic abdominal pain. Went down to mayo they did and upper scope twice which showed ulcers. They did a gastrin tests which was elevated. So they thought I had a gastrinoma. About 3 weeks ago i was vomiting and pooping blood. Did upper abd lower scope which showed chronic inflammation. My gi dr decided to do the IBD sgi diagnostic blood test which showed I have Crohns
- Joined
- Sep 6, 2013
- Messages
- 52
Ive had many multiple biopsies but none of them have showed crohns
Hi,
I was actually diagnosed almost a month ago and was prescribed Pantasa as well. I found that I was going less ( I also changed my diet) but that when I did go it was a struggle and painful etc. I started wondering if my dosage was too much and causing constipation etc. So I went to my GI found out the pain is all from the fissure but he also lessened my dosage. And through my bloodtests the day I found out that my inflammation levels were elevated and put me on steroids. He put me on a low dosage and one that has the least amount of affects etc and for a month then weening me off. But I was explained to by him and a naturalpath ( Ive only been twice but not just Crohns) that Pantasa is a strong anti inflammatory but a good choice.
I understand you not wanting to take the pills. Its not fun taking meds every day and always wondering if they will actually help etc. But at some point you have to just take them and remind yourself that it will help and if its going to make you feel better than its worth it. And get it into remission sooner so you can have little to no symptoms and Crohns will feel more manageable.
Hopefully this helps
I was actually diagnosed almost a month ago and was prescribed Pantasa as well. I found that I was going less ( I also changed my diet) but that when I did go it was a struggle and painful etc. I started wondering if my dosage was too much and causing constipation etc. So I went to my GI found out the pain is all from the fissure but he also lessened my dosage. And through my bloodtests the day I found out that my inflammation levels were elevated and put me on steroids. He put me on a low dosage and one that has the least amount of affects etc and for a month then weening me off. But I was explained to by him and a naturalpath ( Ive only been twice but not just Crohns) that Pantasa is a strong anti inflammatory but a good choice.
I understand you not wanting to take the pills. Its not fun taking meds every day and always wondering if they will actually help etc. But at some point you have to just take them and remind yourself that it will help and if its going to make you feel better than its worth it. And get it into remission sooner so you can have little to no symptoms and Crohns will feel more manageable.
Hopefully this helps
- Joined
- Jan 30, 2010
- Messages
- 1,970
I had mild Crohn's that developed slowly in part because I took Pentasa. There was a stretch of time where I did so well the doctor took me off of it. I stayed in remission for eight months before I developed iritis and then it took a whole pharmacy and six months to go back to a semblance of normal.
Sorry for your bad experiences.
Have any of your doctors looked into functional swallowing/bowel/gastric sphincter diseases (possible cause of vomiting/ulcers in upper GI) and/or given you a capsule endoscopy? Sounds like there may be small intestine problems (where is the blood coming from?). The definitive way to test for those is to actually look in small bowel, either with an endoscope (like a gastroscope, but much longer) or a capsule. With the ulceration you have in the esophagus, a capsule is likely to be better tolerated.
Also, if you have ulcers only in the esophagus, ask your doctors why you have not been put on proton pump inhibitors.
I hope you get a proper diagnosis & proper treatment soon!
Have any of your doctors looked into functional swallowing/bowel/gastric sphincter diseases (possible cause of vomiting/ulcers in upper GI) and/or given you a capsule endoscopy? Sounds like there may be small intestine problems (where is the blood coming from?). The definitive way to test for those is to actually look in small bowel, either with an endoscope (like a gastroscope, but much longer) or a capsule. With the ulceration you have in the esophagus, a capsule is likely to be better tolerated.
Also, if you have ulcers only in the esophagus, ask your doctors why you have not been put on proton pump inhibitors.
I hope you get a proper diagnosis & proper treatment soon!
- Joined
- Sep 6, 2013
- Messages
- 52
I had the capsule camera thing. It was normal. I was on a PPI but it didnt help
