In hosptial, lonely

[Cosmojo]

Hey,
I got admitted to the hospital 2 days ago when I was finally able to get my doctor to hear me out on how nasty I felt, and I was hesistant to go in, simply because I didn't really know what he was going to do for me. After lots of labs, and a colono, and an MRE that was done a few days before that I have inflammation, and lots of it, but no clear ulceration. He says he still believes there may be some ulcers just in small bowel so I am having a pill cam next week.
They put me on 2 forms of IV antibiotics and 1000mg pentasa X4 daily. liquid diet. Labs are showing liver function is slightly down, but not enough to worry, my inflammation markers are WAY up. lymphocites are low, neutrafils are high. Wish I knew what that meant.
Anyways I'm trying to get released today, cause I don't have any family around here, so its just my bf, who I love but has a previous obligation which I'm basically ruining by making him stay around the area in case I need him. He is mad at me because he thinks I might be exaggerating my symptoms to get attention. Honestly if I wanted attention submitting to a colonoscopy is not how any sane person would go about doing that. As terrible as it sounds I know lots of people have been in the situation where others are doubting us because they can't see we are sick or test results don't come back as bad as we might expect them to because of how symptoms are. I'm not blaming him for feeling this way, I just don't know how to cope with feeling crappy, not having a ton of answers, and him being upset with me all at once.
Guess I just feel kinda alone, he will be there for me if I need him to, but honestly I don't want to ask cause even though it was never my intent to ruin anything I know I did.

 

[alex_chris]

Hey there, yes, it sucks if you are in hospital, don't feel well and then you even feel people you love are mad at you.

Anyway, I can only say, concentrate on getting better and managing your Crohn's. It's the most important thing to do to get back to normal again. Are you taking any meds except 5-Asa? If you got liver problems, I assume that you can't take azathioprine/6mp, but are you on biologics?

And your bf is probably not really mad, just overwhelmed with the situation of you being in the hospital - people aren't perfect, they don't know what to do in these kind of situations, I sure wouldn't.

Feel better soon.

 

[mere282]

Feel better..

 

[valleysangel92]

Im sorry you're feeling so rotten. Being stuck in hospital, with nothing to do, no one to relate to and family stuck miles away is certainly enough to get anyone down. From the test results though it's obvious somethings going on, so maybe its the best place to be, at least its alerted your doctors to your condition so they can do something about it.

It is hard for others to see how sick we really are, we can look so healthy on the outside, but feel horrendous on the inside. I know a number of people do get accused of attention seeking with this illness, especially before diagnosis or when testing doesnt give us many answers. Hopefully your doctors will find an answer to your problems and your bf will see that you really do need his support and its not about getting his attention. Its probably a little overwhelming for him too, maybe hes more mad at the situation than he is at you.. it can be very frustrating seeing someone you care about in pain and suffering and being totally unable to help them.

I hope you get some answers soon!