In remission but still having pain on and off?

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kimmidwife

kimmidwife

Joined
Sep 19, 2010
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Hi all just thought I would ask you wonderful experts. Caitlyn is in remission according to her colonoscopy and biopsies but she is again having pain after eating. It comes and goes. She will be better one week then it comes back again for a week then she is better again. I am wondering if this could be related to scar tissue from her surgery?
Anyway, our family is going to a local convention this weekend for families with sick kids. I am really looking forward to meeting some other local families and the kids meeting other kids who struggle as well. Which should be hopefully be helpful to them and us! So I won't be around that much this weekend but will try to check in now and then
 
I would imagine that scar tissue could cause some irritation and pulling. Amy's appendix was attached to her bowel and I wonder if that was a part of her pains - when the bowel moved it pulled the appendix? Maybe certain movements cause Caitlyn's scars to be stretched.
 
She is on Elavil for stomach issues (pain as well)-
maybe a new dose is needed.
Viseral hypersensitivity is sometimes seen in IBD kids ( or so we were told).
Has she tried a H1/H2 blocker combo for this? Sometimes that works? Tens unit?

What does her GI say?

HUgs
 
I am in remission, but I still have occasional pain if I eat something I shouldn't. For example, my GI told me to avoid foods that are difficult to digest like salads and nuts. I am vegetarian so that is really hard for me so I succumb to the temptation sometimes, which may result in some pain where I have the most scar tissue. Yes, I know I am risking blockage but I love my veggies!

It could also be possible that she may have a food intolerance which is causing her pain. I used to journal what was making me sick, figuring out what was going on by a process of elimination (pun intended) :ysmile: It helped to have that list at GI visits too so I could discuss it with him.
 
Hi all popping in for a few minutes while on a break from the convention. I spoke with Caitlyn's GI yesterday but did not have a chance to post. She called me as we were getting ready to leave for the convention. She thinks the pain may be related to adhesions from her surgery. She definitly does not think she is starting a flare as her biopsies were so good they showed no inflamation and she said there would have at least been a little before if she was beginning a flare. She wants her to try to begin stretching exercises to help break up the adhesions. MLP I was thinking about the visceral hypersensitivity like you said and you are right it might be time into increase the amitryptalline. I also will ask at our next wisit about the tens unit. Tired of being sick, I like the journal idea but am not sure if I can get her to do it. She is being a noncooperative teenager these days. I started her on a multivitamin and a probiotic and have been having to fight to get her to take them. ( had to threaten to cancel her voice lessons, she has an amazing voice and I started getting her voice lessons.) she finally agreed to take them.
 
Hope the stretching and medication can help reduce her pain!! So frustrating to finally be in remission after all the trials and errors and still be dealing with pain! :ymad:

Hope you're all enjoying the convention! :)
 
We have the same situation around here. Back in September we started my son on a probiotic and high dose vitamin B2 (riboflavin) and since then the frequency of the pain has gradually been reducing. The vitamin B2 was for possible abdominal migraines as that was one theory as to the cause of the pain. We also cut out gluten and lactose for a while but I'm not so sure that helped.

We are happily down to about 2 bad days every 2 weeks. I think the probiotic helped my son a lot but it took about 3 or 4 weeks to really see the improvement.

I hope Caitlyn's pain reduces soon. It is so heartbreaking when they are in pain so often.
 
I second vitamin B, I put on b multi with at least 50mg of b6 amd my pain is much decreased.
 
While I can't bring myself to use the "r" word (fear of jinxing a good thing), Izz still has pain, occasional urgency and d. (Although her scopes showed mild chronic inflammation). It's nothing close to what she WAS experiencing, though, so I am good with it.
Hoping the GI's suggestions do the trick!
 
I think it was twiggy that posted it, I saw there was a post from her but when I clicked on the thread I could only find the one with your name kimmiedwife.
 
That was my post!!! I swear I'm not a hacker, I can barely turn the damn computer on!!! This is the second time this has happened to me, I once became Dusty but sadly didn't acquire all of her knowledge. :yrolleyes:
 
I'm definitely no expert but I'd think with pain after eating, and all else looking good, a food journal would be a good place to start. We've had EJ doing gluten free and vastly reduced red meat since his last scopes early last spring. There were eosonophils in his gut though he was negative for all food allergies. I can't really say it has helped but it hasn't hurt either.

We've been lucky with EJ taking supplements. He can now swallow a whole mouthful of pills at once. He used to gag on every one!!
 
Twiggy930 said:
That was my post!!! I swear I'm not a hacker, I can barely turn the damn computer on!!! This is the second time this has happened to me, I once became Dusty but sadly didn't acquire all of her knowledge. :yrolleyes:
Click to expand...

I remember that! :eek2: Spooky!
 
No issues with pain here Kim. I hope you are able to get to the bottom of it and Caitlyn's pain is soon a long forgotten memory. Sending healing thoughts your way! :heart:

Dusty. xxx
 
Dexky,
I have been trying to get her to do a food journal but she has been resistant to the idea. However I did finally get her to agree to take a probiotic and MVI which she has been resisting until now. We do know that she cannot eat a lot of red meat but a little seems okay. Hot dogs definitly bother her and any deli meat.
 
Hope the stretching, vitamin and probiotic start to help. Since she is doing well with no inflammation, it would be great if she could be as pain free as possible.
 
Hi all,
hope everyone is having a good weekend. we were until Caitlyn just told me the past few days she has been having more Bms a day then before.she is having about four per day vs one to two.her pain has been a little better the past few days though.since she has had a bowl resection is it possible that this might be normal? for those that don't know Caitlyn had a piece of her small intestine removed and her ascending colon as well as half her transverse colon.
 
Just wanted to send some support, I have no experience with resections. Could it be all the festivities of the holiday season, maybe? I worried that C might have issues with the lure of all the meals and goodies but (touch wood) all is okay.
 
kimmidwife said:
Dexky,
I have been trying to get her to do a food journal but she has been resistant to the idea. However I did finally get her to agree to take a probiotic and MVI which she has been resisting until now. We do know that she cannot eat a lot of red meat but a little seems okay. Hot dogs definitly bother her and any deli meat.
Click to expand...
I am fine with fresh red meat and fish, but have difficulty with most processed/preserved meats or fish. Unfortunately this even includes things like smoked salmon, which I love. It has to do with the additives that are used, I think.
 
Just wanted to a hug ..
I know in normal folks the weird schedule / food can cause issues with the Gi tract .
Add in Ibd things are bound to go a muck.
Does she have an ipad, iPod, or phone or computer ?
Maybe make the food journal fun and less taxing
My fitness pal has an app plus you can do it online free
Make up a few standard meal and items she eats then all she has to do is click.
Very easy

Or try the my Gi buddy
Or my Ibd app
Both have sections for food BM pain etc
Myibd app does not require the web - is not on the web
But does have a code so no one else can see it
She can even print out stuff for her Gi on PDF s

All can be found in these links

https://itunes.apple.com/us/app/myibd/id444728980?mt=8
http://www.myfitnesspal.com/mobile
 
thanks for the hugs and support. MLP, have tried to get her to use those app but she is a stubborn teen. Susan she also has issues with proceed meats.interesting to hear that someone else does a well.clash we have actually been keeping it veer low key this year so this has not been a problem.
 
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Oh how I wish I would've done low key, I think I'm still full from all the holiday festivities!!! I hope it resolves soon!
 
Do you mean having had a resection that an increase in her bowel motions
may be normal?

If so then I would have to say that I think the opposite would be normal, speaking from the remission point of view which I assume is where you are coming from. In our experience the bowel motions were frequent at the outset and although they both use psyllium I do believe that over time there has been some natural take up. So over time the bowel motions have decreased.

I hope this makes sense!

Dusty. xxx
 
Dusty,
That does make sense to me. I am thinking maybe it is food related. I am going to try to convince her to use the app and keep a diary.
 
Hi all,
Caitlyn now started having back pain ugh! I am thinking maybe she has a kidney infection. The back pain is on both sides in the mid part of the back. Never a dull moment for any of us. I hate this every time I think things are good something happens. She is supposedly in remission but still having stomach pain on and off, increased BMs and now this back pain. I am not sure what to think. Will call the GI in the morning and maybe her pediatrician as well. :(
 
Sorry to hear that! Very frustrating for you and her! Does sound like a kidney infection if it's both sides or maybe it is just sore from something she did over the last couple days? Trying to keep your bubble intact!
 
UGH is right Kim! :(:(:(

I hope you can get answers from the docs. Good luck! and sending loads of well wishes and healing thoughts your way! :heart:

Dusty. xxx
 
We saw her pediatrician today. She thinks the back pain and some of the stomach pain is musculoskeletal. She has been exercising. But she is concerned about the pain after eating and the increased BMs. She ordered bloodwork and we left a message with the GI to let her know. We will do the bloodwork tomorrow morning. I will keep you posted. Her stomach is hurting again after dinner. :(
 
Forgot to mention one thing. Caitlyn has lost nine pounds since September. So not sure what is going on with her. Supposedly in remission but losing weight and having pain? Doesn't make sense to me. :(
 
the pain I always assume may be a new normal but the weight loss warrants looking in t o. sorry, Hon :(
 
Upset mom, she is not exercising that much. If anything I worry that it is muscle loss because she is home schooling now she is moving around less. I have been trying to find her a dance class or something to get her moving. Anyway she did the blood work today but after we did some shopping and every time she would bend over she said it felt like knives were sticking her in her belly. Then after dinner she ran to the bathroom and said it was pure diarrhea :( never a dull moment. I am really confused with what is going on with her.i hope the blood work gives us some answers. The doctor also order a fecal calprotectin so we will hopefully be able to turn that in in the morning.
 
Hope it settles down soon and the pain goes away on it's own. Maybe just a tummy bug? Have you had any luck noticing anything with the food diary?
 
She has not yet started the food diary but I am hoping she will today. She definitly is running to the bathroom as soon as she eats anything :( waiting to see what the blood work does.
 
Just want to wish everyone a good and peaceful weekend. We have a rule no electronics Friday night it is family time! So ttyl!
 
Thanks Dexky
Caitlyn is feeling better today. I am hoping maybe all this was some sort of virus or something. Keeping my fingers triple crossed. She talked me into going to see Les Miserables for the second time tonight. What an incredible movie! We loved it just as much the second time. If you like musicals I highly recommend it.
 
Unfortunately, LDN has no effect whatsoever on accumulated scar tissue. The pain from it is not a constant... it waxes and wanes depending on any number of factors that seem to have no logic or clue. I have extensive scarring from my Crohns, but I also have loads of it in my back from a ms-adventure of my youth... so I have experienced the fluctuation of scar tissue pain long before Crohns ever reared its ugly head. As such, I was prepared for my Crohns scar tissue pain to increase/decrease AND not depend on my disease levels. In my personal experience, it is not a barometer of the disease itself (if one is in remission or maintenance situation). It is just a nuisance, not an indication the condition is deteriorating. One thing I have learned, and it took years to acquire this knowledge (the explanation is too long to go into, even for me) that my scar tissue... especially in my back, is susceptible to... inflammation.. (not Crohns) that can cause it to skyrocket. I don't think the doctors really have an explanation for this.
For years, my back would give me grief, and docs would examine, X-ray it, and never find anything... they couldn't even locate the scarring. Then, one time, it became very inflamed, so much so that it presented as an easily seen 'lump' (size of my fist) and voila, the 'doctors' saw it (and I think for the 1st time believed it was real and not some figment of my imagination). All I got from that experience was validation/confirmation it was real. No cure. No treatment. However, years later (still pre-Crohns) I did discover that for 'back' flares, I could see a chiropractor, and they could help. Really help. Fast! And, a chiropractor warned me (again, pre-Crohns) that something was brewing in my GI tract. I wish I had taken her warning to heart. I don't know if this is any help, or even any consolation, but.. based on my experiences, I don't see pain level changes as a warning sign that my disease is returning/rebounding, just as a daily part of my life.
 
No news yet on the tests. Sorry I was not on yesterday I had a crazy thing happen to me. I woke up at three in the morning with a strange stomach pain on the right side. ( of course immediately thinking appendicitis) it became better so I took my other daughter to her appt an hour away. On the way home it came back. We went to lunch and I could not eat and I told her we had to leave. In the car I started throwing up. ( thank goodness I always keep extra plastic bags in the car) I drove to the ER and spent six hours there. They did blood work and a CT scan but did not find anything. They told me maybe it is a kidney stone and we just can't see it. The pain was better until about an hour ago it started again but it moved and is now higher up. Now I am thinking maybe gall bladder? But they did not see anything on the CT scan and I think they would have seen that. I am puzzled.
Caitlyn is having pain and increased BMs again. I am waiting to hear from the GI. :(
 
Had my gallbladder removed because of stones with in this year. Very painful!!!!!

Does the pain start at the front and move to the back?
 
Kimmidwife, just dropping in to see if Caitlyn was feeling better and saw that you were having problems!!! I had my gallbladder removed as well but not because of gallstones. I kept having attacks and they finally did a HIDA scan and it showed my bile output percentage was low and they thought this was the reason for my attacks so they removed it. Hope you get some relief soon!! Also, I hope Caitlyn starts feeling better soon!
 
Hi all,
Thank goodness my pain is a little better. Maybe I will ask about one of those HIDA scans. They did not see any obvious gallstones. I am definitly brewing a kidney stone on the other side though. I feel it starting to twinge.
Anyway back to caitlyn. Her labs came back 100% normal! The fecal calprotectin came back as well which I was shocked because last time it took two weeks to come back. The FC was a 65 totally with in normal. Her hgb and hct were perfect 13.1 and 38.0 her crp was less then 0.10. Everything was great. So I spoke with the GI ( told her about my pain to and to see what she recommends) anyway she said that people without a large intestine or with only half a large intestine like in Caitlyn's case are at risk for overgrowth of bad bacteria. Your large intestine is where the gut normally grows the good flora and fauna. She said it is very important to have her taking a good probiotic. She wants her to start that immediately and to start on Imodium to slow her BMs down. She said let us give it two weeks and see if there is improvement. If there is none she wants to do a pill camera to see if there is something we are missing in this picture. I really like this doctor. She is proactive but not aggressively so.
 
Kim, I hope its just food related. I agree with you on the deli meat thing. In our world, everything will be going great...a trip to subway and some bologna or salami... Brian will have almost instant stomach ache and blood later in stool. GI says it almost sounds like an allergy to it since its so immediate and always the same result. Hence, he doesn't ever eat it anymore.
 
Oh my, sorry to hear about your illness Kim...:hug: I hope you are able to find solid answers for what is going on. Good luck!

Good to hear that Caitlyn's labs were normal and the GI surely does sound like she is well on top of things. Little wonder you like her! :) I hope the meds do the trick and kick things back to normal for her. :hug:

Thinking of you all, :heart:
Dusty. xxx
 
Wow, Caitlyn's labs are fabulous, but what's up with the 9 lb weight loss? Are you and your doctor suspecting malabsorption due to SBBO as the cause? How is his her BMI or what is her current weight and height?

It's definitely difficult to be watching one's child lose weight! Hope it will be sorted out and that Caitlyn will be gaining weight soon!

Hope your stomach pain never returns and if it does, it's easily taken care of!
 
Kim, the GI does sound wonderful and on top of things!

If her pain doesn't go away, perhaps it is related to scar tissue (as Kev has suggested). The food diary would be great but it is hard with teens! :ywow:

As far as the weight loss, that is worrisome??? Did the doctor have any idea what could be causing it? I know she couldn't do the exclusive EN but would she be willing to add a shake to her diet every day?

And, sorry to hear about your pain!!! I hope it was just a fluke!!! :ghug:

(And, again... it was great to meet you and the kids!!!!! So nice to put a face to the 'thread' :))
 
Tess,
You know I think I am going to try to convince her to at least drink a boost or one of the tastier types of nutrient drinks daily. She is still complaining of the pain. I am really thinking scar tissues as well. I am wondering how the heck I am going to get her to swallow a pill camera if it comes to that I heard they are huge. I may start a thread about that.
 
Hey all, haven't been here for a while, i hope Caitlyn is feeling better. The food diary is great, Tadhg (12) pre-teen with Crohns in remission on methotrexate injections, he had two weeks of pain after Christmas, we thought they may have to add a steroid! He is on a mostly gluten free diet, we try adding little cheats now and again to test the waters but he really suffered after the holidays. he still takes two of the Ensure Plus drinks per day and we encourage him to make a lot of food himself, pasta, pizza rice fish chicken and low gas inducing veg. He's doing well for now but still pain if you touch his stomach (ulcers on his intestinal wall) and constipation. Tadhg had his appendix out a couple of years ago pre diagnosis the gas pains following really caused havoc with his stomach.
I don't know if any of this helps, best wishes to you and Caitlyn,
Rachel
 
Hi Rachel,
Thanks! I have tried and tried to get Caitlyn to follow a healthier diet, maybe even gluten free but right now it is not happening. Stubborn teenager! She still has pain on and off. She is still having the increased BM's. her labs and colonoscopy are perfect so I don't know what to think. Also again we did not get a call back from her doctors office about fitting her in for an appt because the earliest they had was March and the doctor said they wanted to see her sooner. Tomorrow I will call again and hopefully get a call back this time!
 
kimmidwife said:
Stubborn teenager!
Click to expand...

Preaching to the choir, I had $4 in my purse of which I just used to bribe Jack to drink a Boost. He stood over the drink and would gulp some done rinse his mouth out 3 times with water and repeat it all again. SERIOUSLY it is not that bad! He's been extremely fatigued and has lost some weight but other wise seems fine so just keeping an eye on him for the time being and trying to get extra nutrients in him. It's finals this week so I'm hoping it is just too much studying.
 
Sorry not trying to laugh but my ds calls boost a milk shake at this point since he has been drinking pepatmen.
you could do like we did-
first offer elecare- they take one to two sips
and of course make a face:wink:
then E028 splash - more faces
then peptamen or vital jr less of face
and finally boost
by time you get to that
they are begging to only have to drink that one.

Sneaky I know.:D

Ds still drink peptamen but have you tried a straw or camel back cup since they by pass alot of the taste buds that way????
 
Tried the straw, may have to try your way MLP, Elecare huh?. I don't think I can afford to bribe him every time but I know he needs the extra calories/nutrition. My husband had to leave the room because he couldn't hold it in (I could hear him laughing in the garage)
 
We bought a whole case of chocolate Ensure. EJ doesn't like it, has to cut it with milk just to tolerate it. We should've never told him it's good for him! My girls on the other hand go through it like candy at Christmas. I drank one and can't understand how anyone wouldn't like it. It tastes like a melted chocolate milkshake!!!

We need to convince the manufacturers of these drinks to package the stuff with a rabbit on the label!! Put 'em in the fridge and watch 'em disappear!!
 
LOL! Aren't picky eaters fun?!?!?

I took some Boost shakes away with us (in place of his NG ingested formula) and was totally expecting Stephen to have the same reaction as Ryan... rinsing, gagging, etc. :lol: Surprisingly, he said they were fine. HOWEVER, he did have an ulterior motive... he has been trying to 'bulk' up his muscles and has been on a protein kick... I bought him some of the shakes that had 'extra' protein - that was his 'rabbit on the label'! :)
 
Good for him!!! That actually sounds like a pretty good combination! Was actually thinking this morning of going out to buy one of those Bullets... they're smaller and I think could be used to just make one shake... and seem even easier to use than a blender???

My husband was talking about buying a juicer but I told him I really don't think it'll get much use at our house! Hubby will try a few concoctions, Stephen will struggle (with full convulsions) with drinking a drop, will say he doesn't like it, hubby will get angry and say he's being ridiculous, that he didn't even try enough to know how it tastes and that it's not that bad... and the juicer will subsequently become a dust collector! :lol:
 
Just bought jack a little blender like thing a sports bottle attaches to it mixes up a serving. Its by oster and its just like a little personal blender.
Clash, I think I'll have him try that re
cipe he might actually drink that
 
Tesscorm said:
My husband was talking about buying a juicer but I told him I really don't think it'll get much use at our house! Hubby will try a few concoctions, Stephen will struggle (with full convulsions) with drinking a drop, will say he doesn't like it, hubby will get angry and say he's being ridiculous, that he didn't even try enough to know how it tastes and that it's not that bad... and the juicer will subsequently become a dust collector! :lol:
Click to expand...

This is an exact depiction of how it went!!! I think the funniest part was me trying to get them down along with C to show him they weren't that bad...I'm truly a bad actor!!! I would get tickled at the look I knew I must have on my face as I tried to show a look of YUM!!
 
Covered cup is very helpful along with the straw. Prevents them from smelling the odor which is usually the part that is a problem.

Very cold also helpful although this can have a shock effect on stomach and cause pain/stomach upset.

Use same flavor for at least 3 days in a row. Small amount in small sips spread out over day to begin with, gradually working up to full can then more than one can. Process may take more than a couple weeks.

Can try adding or using peppermint or other strong scent like banana to mask the smell of the formula. Use the same stuff you buy at the grocery store to flavor icing for cakes. You could smear it on the top of the cup or add it to the drink.

You can use the formula to make pudding and add it to other foods like cake mixes instead of usual liquids. I think the Nestle medical foods/formula website has a section with recipes and suggestions.

I do not recommend material bribes. If you want to schedule special time together to do something he likes then that is good.
 
Yes we have never been in to material bribes but I am nearly at my wits end and money talks to a teenager and special time would be spending it with friends playing xbox or going paintballing. Will try the cake mix flavoring
 
Dexky said:
We need to convince the manufacturers of these drinks to package the stuff with a rabbit on the label!! Put 'em in the fridge and watch 'em disappear!!
Click to expand...

Pediasure has some cute animals on the bottle and Boost Kid Essentials comes like a square juice box. Ryan's 15 and he loves the chocolate.
 
Yes all thanks a lot for hijacking my thread! Just kidding lol. Caitlyn did not lose any weight in two weeks. I am very happy for that. Her GIs office has still not called me back! We have had an amazing week however. Just got back from a homeschool nature trip to the Everglades and saw a ton of alligators! Some a little to up close and personal!
 
Ditto here for the the beef and processed meats with Ryan! Nitrates in hot dogs, etc are an absolute NO! Oscar Mayer now makes a nitrate free bacon. It's a splurge at $8/pack! The beef is just too hard to digest too.

On a search for another problem, I ran across this study.

http://www.ncbi.nlm.nih.gov/pubmed/17481962

It made me think of Caitlyn and the symptoms. Maybe the elavil does need to be increased. I'm no DR but with part of her SI gone, maybe she's not absorbing enough of it.

Bloodwork looks fantastic! I hope the symptoms are resolved soon and your problems as well.
 
This disease is depressing and it will play mind games. Even though everything is "under control," it's possible to flare every now and then. There's times when I go in and out of hospital for a few week's time, then I'll be flare free for a few weeks/months. It's annoying. Just never loose hope.
 
Hello everyone. I'm brand new here, and this is my first post. I was perusing the topics on this forum, and this question caught my attention.

My daughter is 10 now, but first got sick when she was four years old. Everything I'm reading that's been posted by others sounds very familiar for us, too.

Here's my comment/question, though: It's my understanding from speaking with our doctor that if a Crohn's/IBD patient is still having pain they are NOT in remission. Our doctor said that remission is achieved/reached when ALL the symptoms of IBD are gone/controlled, including pain.

We've been through pretty good periods of time where blood tests were all good and there has been no diarrhea or bleeding, but the pain has NEVER gone away, and therefore, my daughter has not yet experienced remission.

What is the general concensus on this forum about pain and remission?
There have been many times I have said that if I had to choose between getting rid of all the other issues with Crohn's or getting rid of the pain, I'd choose to get rid of the pain. It's so hard to see your child living with the constant threat of pain looming.
 
Hi Marni's mom

I don't care what they call it, if your child is in constant pain, they need to adjust treatment. No one should have to live with that, especially a child.

I hope a monitor will come along and move your post to a new thread so more will see it and respond. Good luck and welcome!
 
Hi Marni's mom and welcome :)

How would you feel about me copying the post that you just made into its own thread as well? I'd love for you to get even more opinions. If you'd prefer not, no problem. I just thought I'd ask :)
 
Hi all,
Caitlyn went away to a youth convention over the weekend and had a terrible weekend. Firstly she forgot her medicine. Then the second night she started having terrible stomach pain and running to the bathroom. She did not call us because she wanted to go to Orlando to Islands of adventure with the group. She ended up running to the bathroom a whole day and then had a issue on the bus home. There was a bathroom but the driver did not want to let the kids use it and there was no toilet paper anyway. She was embarrassed to speak up to the counselor s and they decided to drive straight through. By the time she got home she came off the bus crying hysterically and ran to the bathroom. I called the counselor s today to complain and also there was an issue with lack of supervision on the program as well. Caitlyn said she is never going on one again. My poor baby! :(
I am feeling very overwhelmed as we have changed Caitlyn to a new homeschool program that is less intense but I have to plan the whole curriculum and since I am so new to the whole homeschool it is tough. Anyway just wanted to update you all and vent. And that is why I have not been on so often lately.
 
I'm so sorry she had such a bad weekend. I know what you mean about being overwhelmed by the homeschool curriculum just researching all of them overwhelmed me. I hope she is feeling better soon.
 
So sorry to hear this.

As far as homeschooling......can you join a local homeschool chapter in your town. Their a great help to give advice. Also their are "tutors" you can hire for a small (kinda) fee. They come out once a week and set the schedule for the coming week and make sure your kid is up to par. Most these tutors are retired teachers or teaching graduate just trying to keep their degree/resume up to snuff. Just some ideas.
 
Oh no! Poor girl...just when things were looking up.

I am scared to death of homeschooling. I give you guys a lot of credit!
 
I'm so sorry she had such a disappointing weekend!! Poor girl! I hope she's beginning to feel better. :ghug:

I've never looked into homeschooling but I can imagine it would be very challenging to organize! :hug:
 
Farmwife,
I am going to look into that thanks! We did just join the local homeschool group and are actually going to a bunch of activities with them. I am going to continue to speak with them and try to figure things out. Clash, that is the problem I am having as well getting overwhelmed by everything out there and trying to put it together. Are you homeschooling as well?
 
Oh yeah FW and in our area they have a group of homeschooling moms that work together. Each mom signs up to take a subject and certain levels and then they all meet (at our church) and take each others kids. So you only have to get a handle on say one subject and a couple of others teach your kids the others. Helps with the social aspect too. There are about 35-40 kids in the program.
 
We were actually going to do the K12 program but then we learned about a school in our area that incorporates homeschool students, independent study and private school students. They individualized a schedule for C and he is in the private school but has the ability to move to independent study or even homeschool if he is flaring. So far he has really liked it. Some of the other kids are either going through their own medical issues or using the program because they are involved in a sport(one travels with horseback riding most of the year another wrestles every weekend throughout several states) etc.
 
Poor girl. It must have been horrible for her not to be able to enjoy the trip. Nothing worse than having unsympathetic people in charge and that bus driver should get told off as well.
 
Caitlyn seems to be feeling better. Saw the Gi this AM and she ordered blood work and stool cultures but we are both hoping it was a big. I asked about checking some if her vitamin levels. I couldn't remember all we have discussed but we got calcium, vit d, b12, b6, and folic acid. any others we missed?
we also got the results of my little ones blood tests. everything was good and the ibd panel was negative. she wants me to keep a diary of when she has blood in her stool and when she says her tummy hurts. she is wondering if maybe she has a small polyp that kids get sometimes and can bleed on and off. the only blood test that was very slightly low was her END but it was like a half point below normal so she was not worried. we also discussed my third daughter and she said it can't hurt to get blood work and a fecal calprotectin to put my mind at ease.
Doing ceramics now with my two older girls. TTYL!
 
Kimmidwife, maybe zinc and magnesium? I'm glad Caitlyn is feeling better. I know you are relieved about the blood work results for your younger one as well.

Edit: Sorry Kimmidwife I meant zinc but I was on my mobile and my fingers don't always work right. HA
 
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Glad Caitlyn is feeling better. Spunds like you have a very nice proactive GI who understands what it is like for us parents. She's a keeper! I hope your other one is O.K. also.
 
That really stinks that she had such an awful time ! :(
I'm glad she's feeling better tho ~ maybe she'll change her mind eventually and be willing to try something like that again. :hug:

I don't homeschool, but have you signed up for florida virtual school ??
It's pretty awesome for the homeschool kids. My middle son did his senior year through them, and graduated a year early. And while Gab was sick her junior and senior year,she did most of her classes through them too, and the teachers were so amazing and understanding ~ Even when she fell behind ! Actually, a one of her online teachers reset her class twice just so she could catch up !

Best of all it's FREE :) lol

Florida Virtual School
 
Actually Caitlyn is doing Florida virtual but the teachers have not been as understanding. I don't know I am going to have to figure everything out with this hoemschooling.
 
Have you spoken with the teachers yourself ? Or is it just Caitlyn speaking to them?
I know they have to do the introductory phone calls, but have you spoken to them since?

We had text, email, and phone all available during their classes.

If theres anything Gab and I can advise/help you on with it, please let me know ~ we will do what we can :)
 
BTW ~ have you checked into the 504 plan in reference to FVS ?
I would think that it would be required for them to adhere to this as if it were public school.
 

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