Infruriating night at the hospital.

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Sep 21, 2009
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I WANT TO PUNCH A DOCTOR OR TWO!!!!!!! That A&E doctor wore that proud, cocky grin with such honour that it deserved an award.
I’ve just arrived back from the A&E department after an infuriating conversation with an A&E doctor. I can only describe my current emotional state as furious, downtrodden and utterly confused. My mother decided to drive me to the hospital after 3 days of my stomach refusing to empty causing me terrible vomiting and nausea. Together with the fact that I was experiencing a round swelling in the lower left quadrant of my stomach together with a deep ache.
Basically the doctor had an answer for every symptom I detailed from my constant flare-ups to my mouth ulcers, osteopenia and what appeared to be Erhytema Nodosum forming on my fingers. He stated that you haven’t got Colitis even though when I had a colonoscopy last year it showed areas of redness which were prone to bleeding and inflammation, because the numerous biopsies they took were on the whole negative for these pathologies. He suggested I probably have infectious colitis and that we all at some time can have this or that it’s probably IBS. I do of course believe that it could be infectious colitis, but what I refuse to believe is that a person can have a lingering infection for the good part of two years (LAUGHS). As for the IBS, well tell me guys do you know any fellow IBS sufferers who experience constant mouth ulcers, erythema nodosum and a free ticket to possible osteoporosis. He then said that my mouth ulcers, weight loss and osteopenia are possibly due to a poor diet (I eat a very balanced diet) and maybe they should investigate other causes of malabsorption such as food allergies. Im now going to be looking into this, but even so I have tried cutting out certain foods and I still may flare, In the past I have been tested for caeliac disease which was also unsurprisingly negative.
Lastly what really got me was when he stated that if I carry on with this (Colitis) business I will be labelled as having hypochondria or mentally ill. I have a gastro appointment this Monday which I’m not looking forward to as I feel its just going to be a repeat of yesterdays events and I feel the medical field is corrupt in dealing with patient care. If they cant see something on paper than there’s nothing wrong with you. Secondly you don’t have the right as a patient to empower yourself with knowledge otherwise your at risk of being labelled as inventing an illness.
Im not proclaiming I have things hard, because I know there is a good many people on here who have been through the blender and got a definite diagnosis. I don’t want a crohn’s badge or something but I don’t believe they should take people so flippantly as they have done with me and until the doctors can definitely exclude all possible avenues than you don’t have the right to tell me im healthy when im clearly not. I believe with illness there is no standard picture, some people can fit a bit outside the box.

I forgot to add the doc said Crohn's/Colitis is really easy to diagnose, but I know that a lot of you had hard times being diagnosed, is that true??
 
That's terrible! Also I found it's so hard to stand up for yourself with doctors when you're ill and suffering as much as you are which doesn't help the situation! I was diagnosed within about a year so wasn't a particularly long time compared to others and as i only really had mild symptoms unlike yourself there wasn't as much worry.
That is also another thing I've learnt from being here that this disease is individual so you're right there isn't a standard picture; really hope you get some answers and soon :)
 
Your story is very familiar to me. Too many docs have been skeptical whilst I suffered for three years before a diagnosis. It has made me fume. And I still have fantasies where I get the chance to give some of those docs a piece of my mind! LOL
I have encountered some good docs too but I have to say that overall I was shocked that patients are treated with such disrespect. I read some research somewhere that concluded that something like 80% of people with autoimmune diseases are labelled as whiners because they can go many years with vague disparate symptoms and it is only when their disease reaches crisi point that they finally are acknowledged.
Stand your ground and be strong. You know when your body is not right.
Gail
x
 
Thanks guys for the support

Thanks guys, I feel so grateful that I have this site to turn to when things go badly and I cant rely on these quacks. At the moment at least I have the support from my family, they know there is something definetly not right with my body and I just want to get to the bottom of it.

After these consultations with doctors/speacialists have anyone ever felt almost convinced that this terrible thing is all a part of there imagination. Its like they have this way of totally de-flating a person as to make them feel like nutters.

Im actually a health consultanmt with a background in clinical sport science and I know IBS can be a terribly painful condition but it shouldnt present mouth ulcers, bone loss and skin and joint problems as in my case.

I HAD NO IDEA THE HUMAN MIND WAS CAPABLE OF PRODUCING SUCH A PLETHORA OF SYMPTOMS ALL IN THE NAME OF HYPOCHONDRIA!!!

But you guys are right I really need to calm down.xx :voodoo:
 
Hey MICWOOL,
I was told for a very long time that it was all in my head - that nothing was wrong with me because all the tests were coming back normal. Even having been diagnosed when I was 13, I am still told it is in my head by a doctor other than my normal one, because tests come back normal. It is infuriating at times, but you know something is wrong, and you just have to keep plugging away until they realize you're not making it up. Good luck, and hopefully they believe you soon.
 

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