Introducing myself...

[SophieL]

Hi everyone,

Very glad to have found this site. I've had Crohn's without remission for about 3 years but due to having an unusual form of the disease, was only diagnosed (finally!) in January. Have since been put on Prednisolone and Azathioprine, have been weaned off the pred for about 3 months now. Still haven't found that elusive remission but I live in hope

As for the non-health side of things, I'm a university student in the UK, have got my last exam of the year tomorrow and can't wait for the summer to start properly.

Looking forward to getting to know you all.

Sophie

 

[mikeyarmo]

Hi Sophie,

Welcome to the forum and thank you for introducing yourself. I also faced symptoms for some time before being diagnosed, and while it was not instant, this diagnosis helped to eventually allow me to achieve remission after a surgery. That was 3 years ago and I have been fine since then. So now that the doctors know what is going on in you, they should be able to treat your symptoms a bit better than before.

Hopefully you learn a bit more here and I look forward to seeing you around the forum. Congratulations on finishing school for the year also!

 

[butt-eze]

Hey welcome!

What unusual form of Crohn's do you have? Please share your story. Why did it take so long for them to figure it out?

Hope you find this forum informative and helpful.

 

[Guest]

Hi Sophie, and welcome to the forum

Crohns is one of those weird conditions that can present in different ways for different people. when i first became ill with it, before surgery, i never had diarrhea, only constipation, yet most people tend to get both or just diarrhea, from what i've read. i also did not get the skin & mouth ulcers that my friend suffered greatly from - yet we both had the same diagnosis.

 

[SophieL]

Lovely to meet you all!

Basically I've got isolated perianal and ano-rectal Crohn's (it's as glamorous as it sounds!) so like dingbat I'm lucky that I've never had bad diarrhoea - instead I have abscesses, fissures, ulcerations and so on which really aren't much fun. Not that it is for anyone obviously. It took so long because I've got such unusual symptoms and I have no history of IBD in my family. The NHS are just notoriously slow as well in terms of tests, follow ups and so on.

My life has really turned around though since diagnosis so it was more of a relief to finally know what I was dealing with than anything else. Still scary but I'm getting used to it

This really seems like a fantastic community, very glad I found it.