Introducing myself

[petermentoor58]

Hi everybody. I'm Peter Mentoor from Cape Town South Africa. I'm 62yrs old& was diagnosed with Crohn's in 2014.
It has been an uphill battle primarily because it was such a mission both in terms of the financial drain & the time it took before it could be established that I was indeed a Crohn's Desease sufferer.

The private hospitals drained my medical aid but could'nt establish what was wrong with me. When my medical aid was depleted I was forced to revert to public hospital.

It was the best& life-saving decision in respect of my illness that I could've made. The medical staff at the IBD Clinic of Groote Schuur Public Hospital was compassionate, efficient, supportive &caring.
As you all know living with Crohn's is challenging &some days it is just horrible to cope with the discomfort &mental strain. I draw great strength from the support of those closest to me&rely heavily on my faith in the darkest hours of living with Crohn's.
I'm grateful for this forum &the support & advise that I'll get from this group & for the opportunity to reciprocate in kind where I can. Love u all. Stay strong

 

[petermentoor58]

Hi all. I used to be on azamun but my body reacted horribly to it. It seemed as if my whole body was a block of arthritis. I was taken off azamun & migrated to methotrexate. My body tolerates this drug better as the discomfort of arthritis is less severe. Anybody on methotrexate? Would like for u to share your experience &would also like to know the side effects &other things to watch out for. Thnx

 

[3rv1n]

Hi Peter, I have recently diagnosed with Crohn's disease and started with methotrexate 25mg injections once a week.
So far 3 shots taken.
My side effects shaky hands, mild lack of extremities coordination (can't drive car), slightly blurry vision, random sweating on day of injection and maybe second day.
I understand that MTX (methotrexate) needs min 6 weeks for start working so I wait and hope for best!

Welcome to forum and all best wishes to you Peter!

 

[petermentoor58]

Hi Peter, I have recently diagnosed with Crohn's disease and started with methotrexate 25mg injections once a week.
So far 3 shots taken.
My side effects shaky hands, mild lack of extremities coordination (can't drive car), slightly blurry vision, random sweating on day of injection and maybe second day.
I understand that MTX (methotrexate) needs min 6 weeks for start working so I wait and hope for best!

Welcome to forum and all best wishes to you Peter!

Hi mate thx for the feedback. Trusting that you'll soon experience positive results of the MTX treatment. Plse take it one day at a time& stick as close to the low residue diet as I can. Take care

 

[Honey]

Hi Peter, I hope you are well. I was on Methotrexate for a while. I did fairly well on it but wasn't happy with some hair loss and having to go and collect it from the hospital Pharmacy. I eventually went on to have Remicade infusions. Now off that , and well.

 

[Jo-mom]

Hi Honey, are you currently on any medications?

 

[Honey]

Hi Jo- Mom, Yes I am on Salofalk 1.5gr , two sachets daily. I also am on Folic Acid and Invita capsules re Osteoporosis.
I was on Remicade infusions for about 5 months but had to come off due to a reaction.
I am currently doing well and Crohn's is manageable, thank God.
I hope you are well.

 

[petermentoor58]

Hi Peter, I hope you are well. I was on Methotrexate for a while. I did fairly well on it but wasn't happy with some hair loss and having to go and collect it from the hospital Pharmacy. I eventually went on to have Remicade infusions. Now off that , and well.

Hey Honey thnx a million for replying. The hospital collection is indeed a slap because the pharmacy ques at public hospitals r horrific. I've been asking my attending specialist for an alternative to methotrexate but he told me that although there are very good alternatives these are just too expensive for state hospitals to supply. I will raise the Remicade option to him. Trusting that the new year will bring good health to all of us. Be safe

 

[petermentoor58]

stick

❤

 

[petermentoor58]

Hi Honey, are you currently on any medications?

Hello. Currently on Amgevita (alternating weekly between 80 & 40mg & 10mg Methotrexate weekly

 

[petermentoor58]

Hey Honey thnx a million for replying. The hospital collection is indeed a slap because the pharmacy ques at public hospitals r horrific. I've been asking my attending specialist for an alternative to methotrexate but he told me that although there are very good alternatives these are just too expensive for state hospitals to supply. I will raise the Remicade option to him. Trusting that the new year will bring good health to all of us. Be safe

 

[petermentoor58]

Hi Peter, I have recently diagnosed with Crohn's disease and started with methotrexate 25mg injections once a week.
So far 3 shots taken.
My side effects shaky hands, mild lack of extremities coordination (can't drive car), slightly blurry vision, random sweating on day of injection and maybe second day.
I understand that MTX (methotrexate) needs min 6 weeks for start working so I wait and hope for best!

Welcome to forum and all best wishes to you Peter!