my daughter is 8 and was diagnosed at 4. She learns to get by. She is stronger than I will ever be. If I was in the amount of pain that I know she is in I would just sit and cry. She gets up and goes to school and plays with her friends and goes to dance and all the normal things that an eight year old does. We just have to take more breaks than the average eight year old. Your son will learn to deal with his limitations and you will find new reasons to love him more everyday because of it.
Introducing qfu
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Hey gfu, wow so little to deal with so much. I know what you mean. Before EJ was dxed last Dec., I think pain had just become his normal. When I look at pictures from that time, I can see the strain in his eyes and his smile.
Crohn's 35
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H Gfu,welcome to the forum! Your daughter is a brave one! She is an inspiration to all of us. She will only get stronger, and be aware that she has to do some things differently at such a young age. I cannot even imagine what you are going through.
I see you are another Canadian here, what part of Ontario are you from? I am in Thunder bay now but used to be in the GTA. There is probably a CCFC chapter near you. Check out www.ccfc.ca parents of children and children go and do fundraising and learn from one another. Glad you found us. Mark here is a great dad!
I see you are another Canadian here, what part of Ontario are you from? I am in Thunder bay now but used to be in the GTA. There is probably a CCFC chapter near you. Check out www.ccfc.ca parents of children and children go and do fundraising and learn from one another. Glad you found us. Mark here is a great dad!
DustyKat
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Hi qfu and :welcome:
Good to see you here. I too understand, I am in awe of my daughter at the battles she has fought and won and the way she functions and lives her life from day to day. As we well know as parents, our children are incredible and resilient people that never fail to inspire and amaze us. I look forward to seeing you around and keep us posted on how that gorgeous daughter of yours is keeping.
All the best,
Dusty
Good to see you here. I too understand, I am in awe of my daughter at the battles she has fought and won and the way she functions and lives her life from day to day. As we well know as parents, our children are incredible and resilient people that never fail to inspire and amaze us. I look forward to seeing you around and keep us posted on how that gorgeous daughter of yours is keeping.
All the best,
Dusty
Astra
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Hi qfu
and welcome
Dusty has summed up what I wanted to say about our little uns being so resilient and strong and we don't give them much credit for it!
stay strong yourself, you're doing a great job!
lots of support and friends here for you
lotsa luv
Joan xxx
and welcome
Dusty has summed up what I wanted to say about our little uns being so resilient and strong and we don't give them much credit for it!
stay strong yourself, you're doing a great job!
lots of support and friends here for you
lotsa luv
Joan xxx
wow I just wanted to say thank you to everyone...i have felt so alone through all of this. People say they understand but I know they can't possibly. I am so happy to have found this site to talk to people who really do understand. I am not very computer savy so it is taking my awhile to figure out how this forum works. I just found this thread now and figured out how to respond. So I am sorry if I don't get back to you right away.
Jettalady I am living in a town near Huntsville right now but we are moving to be closer to Victoria's (my baby) hospital in Hamilton. So we are moving to Guelph. I can't wait not to have to drive 5 hours to get her to app. Plus my family is there and I could use the support.
Jettalady I am living in a town near Huntsville right now but we are moving to be closer to Victoria's (my baby) hospital in Hamilton. So we are moving to Guelph. I can't wait not to have to drive 5 hours to get her to app. Plus my family is there and I could use the support.
