Diagnosed in 2013 with CD after 2 years of symptoms. Put on pred and azathioprine, later found out I was allergic to azathioprine so switched to mercaptopurine and 4 weekly infusions of infliximab. Body then developed antibodies to infliximab so was switched to humira. This changed my life and was like I didn’t have crohns. In 2016 after a year on humira I was taken off it as I was in remission. After this I started showing symptoms of active disease for around a year and colonoscopy proved this. Tried methotrexate but allergic to that also so was just put back on humira.
Recent blood tests show platelets at 47 so told to stop mercaptopurine then they went up to 126 so told to start mercaptopurine again
Awaiting other blood results but was just wondering if it is normal to feel this exhausted? My body feels so heavy and painful. Even my fingers hurt!
Struggle to get out of bed and have horrible cough which tastes bloody although no blood there.
Thanks for taking time to reply.
Recent blood tests show platelets at 47 so told to stop mercaptopurine then they went up to 126 so told to start mercaptopurine again
Awaiting other blood results but was just wondering if it is normal to feel this exhausted? My body feels so heavy and painful. Even my fingers hurt!
Struggle to get out of bed and have horrible cough which tastes bloody although no blood there.
Thanks for taking time to reply.
