J-pouch Obstruction Surgery

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She is much less tubular now. She just has her PICC line and TPN. She is trying clears today and maybe yogurt or Nutren jr tomorrow. She got a horrible allergy to the adhesives. Her back from the epidural looks like someone burned her with a hot iron. Her incision is all red and puff from her itching it. She is taking IV Benadryl and Tordol and hydrocortisone lotion. Seems to itch less and now it just needs to heal. I hope her incision is not infected. I can't really tell bc it is so red from the allergy. We are told to watch if it spreads. She is happy and talking again. I hope this is the end of this bridge. It ended up being much longer than I expected.
 
Glad to hear the progress. My son and I have allergy to adhesive also. After the bandage it removed, we brake out in blisters. Paper tape is the only thing that doesn't hurt us.

HUGS
 
Mary
do glad to hear the update. Baby steps! so glad to hear she is happy and talking. let us know how the eating goes.
 
I keep hoping for the best for you two!

Alex is sensitive to rubbing alcohol now. I used it to remove some heart monitor patches after he had laughing gas for stitches last summer and hoo boy did he react! Thought it was the adhesive, but we finally put it together why he'd rash up after his blood draws and Humira injections too.
 
Jenn said:
I keep hoping for the best for you two!

Alex is sensitive to rubbing alcohol now. I used it to remove some heart monitor patches after he had laughing gas for stitches last summer and hoo boy did he react! Thought it was the adhesive, but we finally put it together why he'd rash up after his blood draws and Humira injections too.
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Speaking of rubbing alcohol, I've heard it is good to avoid it while on Flagyl (metronidazole) due to the potential of causing an antabuse reaction (vomiting etc)... FWIW
 
Full liquid diet today, maybe nutritional shakes tomorrow and less TPN. Or food and less TPN. No pain meds anymore except occasional tylenol by mouth, benadryl for itching where the tape was. She gets her first real shower tomorrow. I hope she feels good when she wakes up.
 
Of course that Doctor I don't like and knows I don't like her is on this weekend. She is postponing our departure. We might be gone on Saturday now. We shall see if she knocks down Rowans TPN tomorrow. She shouldn't need it anymore being she has taken in her calories required to be off the TPN. Frustrated a bit but trying to not show it. Everything seems to be going well. She ate a lot of food today and handled it very well.
 
QueenGothel said:
Of course that Doctor I don't like and knows I don't like her is on this weekend. She is postponing our departure. We might be gone on Saturday now. We shall see if she knocks down Rowans TPN tomorrow. She shouldn't need it anymore being she has taken in her calories required to be off the TPN. Frustrated a bit but trying to not show it. Everything seems to be going well. She ate a lot of food today and handled it very well.
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That is wonderful! It wasn't long ago that she was doing terribly! I'm so glad they found the problem and were able to fix it!:thumright:
 
I know you are fit to be tied! Good luck breaking out! Good to hear she's doing so well!
 
They titrated her off the TPN in 3 hours yesterday, if she keeps pooping and eating she might come home tonight. She slowed down last night hoping its a fluke. A little worried. Waiting for DH to call with good news.
 
ESR and CRP can be quite elevated with surgery and for some days after-- don't know if this happens in all types of surgery but would check with the surgeons.

I'm so happy that Rowan is getting out of there. Hope it's smooth sailing from here on out!
 
Rats... Oh well still good to know those numbers to make sure they are trending in the right direction for her follow up. I think I will just have her pediatrician check these numbers she doesn't mind adding them on when she does nutritional and metabolic panels. I don't know why her surgeons think it is such a big deal. No poo today. I don't know if I should let her be released if she doesn't poop. She should be pooping more she doesn't have a colon. Maybe this is her new baseline. Or maybe I am crazy. I feel like whenever I question the labs they are irritated with me...:ack:
 
QueenGothel said:
Rats... Oh well still good to know those numbers to make sure they are trending in the right direction for her follow up. I think I will just have her pediatrician check these numbers she doesn't mind adding them on when she does nutritional and metabolic panels. I don't know why her surgeons think it is such a big deal. No poo today. I don't know if I should let her be released if she doesn't poop. She should be pooping more she doesn't have a colon. Maybe this is her new baseline. Or maybe I am crazy. I feel like whenever I question the labs they are irritated with me...:ack:
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The irritation is that they don't know anything more than you do probably. You've been at this a long time and there are so many things that make the answers not straight forward. Being questioned means they have to take time that they don't have to find answers that don't come easily. Surgeons are limited in their knowledge except when it comes to surgery. Peds are limited in their knowledge except where it comes to general peds. GIs are limited in their knowledge except where it comes to GI issues. Some diseases are so complex it is impossible to know everything about them and Crohn's is one of them. Be patient with your health care providers, they really do want to help you, and probably underneath their facade they are as frustrated with things not being an easy fix as you are. :kiss:
 
I decided to let her come home, her belly is slightly distended. She has a follow up appointment on Feb 5th so we will just keep it and if I think she needs to see her doctor again at least I will be talking with the one person I know wants to make her 100% better. This new batch of residents are making me nervous too so best to just hit the reset button. If I am wrong I will kick myself in my own ars. Worse case is she goes back on Nutren Jr for a few days, or the ER. Ugh I am hoping neither.

I know they want her to get better, this being the only reason I kept her there and did not transfer, that and her surgeon and Rowan are a very good fit.
 
Hopefully you will feel better about it all when you have had some time back at home, and regained some perspective. Hope Rowan is well, and things continue to improve xxx
 
:biggrin: :dance: :thumright: :mario2: :yoshijumpjoy: :emot-dance: :highfive: :cheers:
I'm praying she does great and that things start working right!
 
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She must've had multiple little obstructions for a while. She is pooping normal without the use of Loperimide now. Thanks everyone for all the nice uplifting support. I can go to a dark place of fear and worry sometimes and every bit of encouragement helps.

For the first time I actually feel a relief from the survival mode I have been in. I hope it continues.
 
QueenGothel said:
She must've had multiple little obstructions for a while. She is pooping normal without the use of Loperimide now. Thanks everyone for all the nice uplifting support. I can go to a dark place of fear and worry sometimes and every bit of encouragement helps.

For the first time I actually feel a relief from the survival mode I have been in. I hope it continues.
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I'm so glad she is home doing well. That is great news!
 
So happy to hear she is doing well. Go get a little rest yourself! Sending her co tinted healing thoughts and prayers!
 
I am sure it will take awhile for all that worry to go away, but happy to hear Rowan is doing well and I am sure you will be feeling back to normal soon too. (((((Hugs))))))
 

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