Joint pain on Prednisone

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Hi peeps, just wondering if anyone can give me any advice.. im currently on 5mg of prednisolone after tapering down from 40mg by 5mg a week... and since i got down to around 10 mg, ive started getting ill again, i also take 4 grams a day of pentasa. Im due to see my specialist again in november( saw the specialist a few weeks ago, had my bloods done, but they advised i go back once im off steroids to get a clearer picture)

This time im experiencing really bad joint pain which isnt something ive had before... my knee's feet, and right elbow are very stiff and sore, and im having to walk around almost like an old man at times lol, plus im getting more frequent stomach pains which i used to get, but not as frequently as at present. Also a ridiculous amount of fatigue has set in.. im falling asleep during the day, and waking up 2 hours later just feeling no better at all.

im drinking plenty fluids and even tho ive lost a bit of my appetite i am still eating.

i was put on the pred because i was starting off with a bit of a flareup, but im probably worse now than i was before starting the pred.
anyone got any advice on how i can ease my symptoms? id rather not go nagging the doctor again, and chances are they'll only boost me back up on prednisolone which is something id rather not do.

Thanks for reading.
Martin
 
Hello Martin. I don't really have any advice I just wanted to say sorry you're doing worse then when you went in for help. I hope it all clears up and you can feel better soon. I haven't had to be on Prednisone before.
 
Hi Martin,
I know what you mean about not nagging the doctor....but, I think he should know about this joint pain. You should have it checked out. My doctor had me slow my taper when I was having rebound flaring. I stayed on 10mg for about a month. Maybe you need to slow your taper more? Definitely discuss this with him. I hope you feel better soon.
 
Try a slower taper. When I hit 10, I tappered 1mg/wk for 10 weeks. Long time - but it helpped with withdrawal symptoms.
 
well i went to the doctors today after getting very ill over the weekend. ive been unable to eat and feeling terrible... anyway the doctor has put me back on the pred... but only on 7.5 mg a day and this is probably gonna be the same untill i see the specialist again in 4 weeks time. Tbh i was expecting to be put back on a high dose and get the feeling 7.5 mg wont make a big difference but guess ill just have to wait and see!
 

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