Just a quick Thank you, NOT!!!

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

tots

tots

Joined
Feb 28, 2012
Messages
1,500
Location
Austin, Texas
After a lifetime of CD, I would like to take the time to thank all my family and friends who took the time to attend medical school so they could advise me as to what I should be doing and what I am currently doing wrong to treat my CD.

I am ready to flip out if people don't leave me alone! I don't enjoy the pain and
embarrassment of this disease. It is hard enough to deal with Drs much less
people in the peanut gallery! If you are serving dinner prepared with pepper, don't be angry I cant eat it, you know about it and I am in no way offened you cook with pepper and am always happy to bring my own food! After all, i can enjoy your company so much better at the table with everyone rather than from the bathroom!

I am overwhelmed with being sick, working a very physical job with no breaks and judgement!!!!! I work really hard to hide my condition and where I am at so that I don't get the judgement- that also means I am very lonely and don't have much support.

So unless you have a medical degree specializing in IBD or are unable to just say
Can I make you a cup of tea? We might have a problem soon!!!


Thank you for "listening"

Lauren
 
Hi lauren i fully understand that one hun. So bloody annoying aint it..😠
Hope you feel abit better for saying it here hun. :hug: hope my next line can bring you a smile...
Can i make you a cup of tea btw ☺💕
 
Totally agree.
I'd also like to mention the "I've never had a day's illness in my life" brigade... who seem to think that a chronic disease is due to some sort of moral failing.
When I say "I feel really bad today" they can't even begin to understand what that means... lucky them!
... end of rant... I feel much better after that.
 
Agent X20 said:
Totally agree.
I'd also like to mention the "I've never had a day's illness in my life" brigade... who seem to think that a chronic disease is due to some sort of moral failing.
When I say "I feel really bad today" they can't even begin to understand what that means... lucky them!
... end of rant... I feel much better after that.
Click to expand...

Oh my i just love those people they are so right though arent they... the bl**ding pi**ocks.. well theres an awful lot of immoral folks here then haha 😆😆
 
Totally agree lost count of all the times I've felt like slapping folk no matter how well meaning they maybe with a wet halibut family included hope we all feel better soon bunch of mad head's we are ☺☺☺ keep smiling even if at times our faces feel like they will crack
 
Thank you guys for your humor and your responses!!
I know there are a lot of us that all go through this same thing over and over again!

I am just finding life a bit more challenging right now and your humor and responses gave me a smile and a laugh!

I am not brave in flavor of tea choices but, here is a cup of Earl Grey to all of you and a wonderful
Sunday to you all!!

I have a day off and its going to be 81 here in Austin Texas, the park and a good book are at
the top of my list!!


Thanks again,

Lauren
 
Hey Lauren, glad we could bring you a smile hun. Hope you have a lovely day and enjoy your book. Feel better soon hun 💕💕
.
 
Ron you take care if you are out n about. I love the look of snow but it is hard to walk on, I find it wears me out n make's my legs ache. :hug:
 
I'd just like to add that the halibut joke was very shellfish of me ☺☺☺ hope your all well as can be and like a really bad arnie film I'll be back 😉
 
I sympathise, I've had IBD for a few years and just been diagnosed with Crohns after a hellish year or so. Trying to explain to people that it's not just a fancy name for irritable bowel syndrome seems to be well-nigh impossible!
 
Very true Lizzie. Iv encountered the 'oh yes i a friend who has ibs its the same as that isnt it'. ... well NO its NOT. Then i proceed to tell EXACTLY how it is. I love to see their toes curl 😆
 
I hate it when people ask me if im pregnant , i cant help if my tummy goes highwire. Now i just say ya im 6 months pregnant but im carrying like an elephant lol just make me angry who asks a question like that
 
I feel your vent.

I have a sister-in-law who eschews doctors and gets all her health info from the internet :facepalm: I appreciate her concern but when she makes suggestions to help my CD it is painfully obvious she does not understand the disease.
 
My sister is a nurse and with this last flare gave me a lot of advice.. I realize now I was being a little over sensitive... but it gets sooooo tiring that people think I do this to myself.. Yes sometimes food can set me off but that's not necessarily the reason i'm flared. and the constant did you try this diet, did you try this diet... I completely agree with every part of your sentence. The trying to hide my illness at work and in front of people but being overwhelmed. Totally how I'm feeling
 
The Real MC said:
I feel your vent.

I have a sister-in-law who eschews doctors and gets all her health info from the internet :facepalm: I appreciate her concern but when she makes suggestions to help my CD it is painfully obvious she does not understand the disease.
Click to expand...
I have an old roommate from college who sent me information. I ignored it.
 
Oh, I hear you, Tots. I get this a lot. At xmas I stupidly mentioned to my in-laws that I had recently had iron infusions due to very low iron and ferritin. They are all part of the "never been sick a day in their life" committee and they proceeded to lecture me about all the reasons why I probably have low iron. It's my diet, no, it's the water, no, it's all those medicines I'm taking, no, it's something else. I had to hold my tongue and not yell at them that it's actually because of rectal bleeding! I didn't think that was a nice thing to yell about at xmas, ha ha. :p Maybe I should have just used the toilet, not flushed, and waited for one of them to figure things out. Ha ha.

I will have to pass on the cup of tea because tea apparently inhibits iron absorption. :( Can I join in even if I'm just drinking water? Also, 81 degrees?? Holy cow! It's 37 here which I thought was quite warm. :p Soak up some of that sun for me, we're getting a snowstorm here tomorrow!
 
I just remembered someone saying to me during my worst times. 'Oh are you feeling a bit under the weather. Im sure you'll feel better tomorrow' YE RIGHT!!!!
Consider yourself joined Cat. 💕💕
 
To me under the weather means laying on my back on the floor down low where the cold air is being the low down bum i am ☺☺☺ evening all hope your all as well as can be 💖💖
 
Alive to just about though a bpm i took earlier begged to differ read 41bpm lol should've been among the walking dead ☺☺☺
 
We should shoot a tv series about diseased zombies not sure if it's been done before don't watch much tv could catch on though lol ☺☺☺
 
I was talking with someone the other day about zombies. I came to the conclusion that I wouldn't last 5 minutes in a zombie apocalypse. Can you imagine, trying to get your meds refilled? Or getting access to tummy-safe food during a zombie attack? In the Walking Dead, they're always out in the woods. And I'm like, there is no toast in the woods! I need toast to survive! :p And the whole thing just looks exhausting. Nope, I'd just accept that I'm going to be one of the first zombies.
 
I think our action figures would sit or lie around, looking georgeous,being awesome but feeling like crap😉lol
 
Guess they would need a line of clothing straight jacket colostomy bag loo roll amongst other things game could be made by madhead games ☺☺☺
 
Lauren,

I feel like you just took the words right out of my mouth. I am not a GI but I KNOW EXACTLY how you are feeling.

My favourite is '' maybe you should change your diet''. I can't f"/$%?& eat anything how do you expect me to change it!

BIG HUGS TO YOU GIRL!
 
bela133024 said:
Lauren,

I feel like you just took the words right out of my mouth. I am not a GI but I KNOW EXACTLY how you are feeling.

My favourite is '' maybe you should change your diet''. I can't f"/$%?& eat anything how do you expect me to change it!

BIG HUGS TO YOU GIRL!
Click to expand...
I think I am in a flare right now and I feel like everything I est almost is like poison.
 

Similar threads

thike1966
Hotel Crohn's Forever, The Return Of The Fistula
Replies
0
Views
577
thike1966
thike1966
Papantoine
Neglect?
Replies
0
Views
236
Papantoine
Papantoine
Anna's Bandit
Hospital
Replies
5
Views
637
Crohn2357
Crohn2357
T
No idea
Replies
2
Views
1K
Tina M
T
K
So confused after apparent relapse
Replies
6
Views
2K
Opieshuffle13
O

Latest posts

Back
Top