Just diagnosed

[nolsen311]

just diagnosed

Howdy everyone!

My Name's nate and I was just diagnosed with Crohn's in the last week. From what I understand we're all a little different symptomatically. Coincidentally my wife also has Crohn's. She's known since age 10, I'm 34.

I'm opting out of local support groups for now, but I live on the west coast up in the rainy Northwest.

 

[Crohn's 35]

:welcome: Nate. Yes everyone is different, and you find out throughout the forum. We have the basic problems but some are more severe than others. I guess with your wife having crohns you both must be each others support line. Hopefully not stressing the other one out and causing flares.

What do you mean by opting out of local support groups> What country are you from. I am assuming the states? Hope you find what you are looking for here, many people to help you or your wife out.

 

[Jessi]

Hiya, Nate. Welcome to the forum.

It's crazy that you BOTH have CD! What are the odds?! Is she a member of this forum, too? Yes, we have a lot of differentiating symptoms. What are yours like? Did your GI put you on any meds? Let us know how you're currently doing.

Are you in Washington or Oregon? I used to live across the Puget Sound from Seattle. It's lovely there. I miss the rain so much! I'm up high in the mountain desert now. My hubby grew up on Mercer Island and lived a while in Portland, as well. We both wish to go back someday. I envy you for the land you live in. :hug:

Again, welcome to the family, and I hope to see ya around often.

 

[nolsen311]

I'm up in Washington, the Olympia area. When I registered I had some option to register a location for local support groups. I may find those helpful but for now I'm just doing some research and kind of getting my head wrapped around this new facet of my life.

My symptoms are (from what I'm being told) rather rare in that they're mostly in my stomach (pylloris) with some down in my intestines but not much. My biggest issue currently is that I haven't eaten in 2 months because food can't process. At all.

I've just had a picc line put in for TPN administration and I'm on steroids (hydrocortisone?) I'm hopeful now that I'm in the hands of professionals.

 

[Angrybird]

Hi Nate and :welcome: It's strange how these things can happen with both you and your wife having the same disease. As the others have alread said hopefully these means you can support each other through the hard times - of which there are plenty! I really hope that things settle for you and that the docs can eventually get you back eating. Please keep us updated on how you are getting on.

 

[Jessi]

Nate ~ My family and I vacationed in the Olympia area a couple summers ago. It was so beautiful.

I got to thinking about you and your wife, and it reminded me of this thread written a while back. Do you have any thoughts or theories on this?

 

[nolsen311]

Very interesting stuff.

I've got a science background (not pathology or anything; definitely not an "expert") and don't yet know anything re: MAP or infectious agent.

What I do know about myself is that it's *possible* I had my very first symptoms almost a decade ago when I was married to someone else. She has no history/dx of Crohn's that I'm aware of.

However my wife now has been dx for almost 20, so while I don't discount environmental factors and a possible infectious vector I think in my case transmission between individuals probably did not occur.

I am curious about connections between Accutane and Crohn's though, if anyone has info. I see those commercials and they make me wonder. I'm not interested in making a lawyer rich but it's curious.

Thanks for the contact, I can tell this forum is going to be awesome for me.

 

[Jessi]

Great. Thanks so much for your input. I love hearing others' thoughts on this. I'm honestly not sure how I feel about it, and not sure I really care that much, honestly. *shrug*