Just need a little vent

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elr

Joined
Mar 11, 2014
Messages
8
Two little rants here:

1. So I had a pretty bad week last week. I don't think that Asacol and I mix well. My sister is great, but sometimes misses what other people are feeling. I was sitting on the couch, with a heating pad on my stomach to try to decrease some of the pain (this is after like 10 trips to the washroom already that day) and I asked someone else to go turn up the volume on the TV, because I was feeling pretty sick. My sister had a cold, and seemed to miss the fact that anyone else could be feeling poorly if she was. She scoffed at me when I said I was feeling sick! Ugh! I love her tons, but really?

and 2. My family talks a lot, and so everyone knew that I went in for an appointment with my GI and was prescribed prednisone. They also knew that I had laid off eating for about 48 hours because it caused too many issues. This was two days ago, and I have already had two family members ask me what I was eating that caused my symptoms. They all think that I only get sick if I eat corn (because I was allergic as an infant). My response is always that food is what makes me sick. They will follow up with "well what food, specifically?" Like, when I am having a flare that requires steroids, it is only one food that makes me sick. Not the INFLAMMATION OF MY COLON. gah. I am so tired of explaining to people that it is not because of corn! It's also not my freaking fault when I get sick. Asking "what did you eat that caused it" completely ignores that.

Side note - I cut corn products from my diet completely for about a year before I was diagnosed, and I know for sure that that will change nothing for me.
 
I feel for you, especially on the family & diet thing (certain people in my family feel that I will magically have perfect health forever if I just cut out gluten - even though I don't have celiac and it's not a trigger food for me). I hope the pred kicks in soon and gets you feeling better and that you can avoid food-related conversations with your family!
 
the forum is full with stories about people who think that some bluberry juice will heal you ...
sometimes I wonder if that's out of fear; maybe most people are having a hard time to accept that some things are out of the usual control boundaries ...
or maybe it's just not knowing what they are talking about ?
what do you think?

anyway you learn to accept and forgive. the important thing is YOU.YOU have to feel well; all the rest is subsidary and not important. Keep that in mind when you come across those situation, it may help a bit.
 

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