Hey. New to here
have had crohns since I was 13 now 32. I've had 4 resections and now having my fith major flair.
My last operation was last year. After the surgery the doc came in and said "we took out 9 inches but left in another section that we think can be brought under control with drugs". I was kinda worried about that since my track record with drugs has been shotty at best. The steroids gave me psychosis the remicade caused a really bad reaction ( couldn't breathe and broke out in hives all over my body) Imuran caused a horrible infection that caused me to get part of my finger cut off and nothing else seemed all that effective.. I'm so frustrated. I'm not usually one 4 pity parties but when do I get a break. I wish the doc cut out everything that didn't look good. When I had operations in the past I'd be some what ok for about 4 years before I'd start to have major issues. This time i was good for 4 months before things started to go down hill. I cant believe it started again so soon after last op. I just delt with being so sick for over a year.. Now I'm totally depressed and stressed out. I don't want to be around family with the exception of my mom. I've isolated myself from friends and extended family. Last family function i went to my uncle told me I looked like a crackhead because I was so thin and my grandparents wouldn't stop telling me to eat more. I wish they would get what I'm goin thru and leave me alone when it comes to food.
I'm so tired of dealing with the pain. The 10+ trips a day to can. The docs the tests the hospitals and now I've developed arthritis in my wrists and lower back. I've been dealing with this since I was 13 and just want to have a normal life. My brother and sister are both sucessful in their lives and here I am. Unable to hold a job. Unable to go to school. No desire to even be in a relationship. I don't understand why they don't just open me up again. and get it over with. I'm on a ton of opiates and now dependent on them to function. I just don't get it. If it's goin to be like this for the rest of my life what's the point? I used to be very social very active now I'm prety much stuck in the house and don't have a life. I just wanna be "normal" again
Anyway. It's kinda late so goin to end this and try to sleep. Glad there's a place like this were one can vent
Feel free to send a msg. Wouldnt mind chatting to those who understand what this is like..
Thanks for reading
Mikey...
have had crohns since I was 13 now 32. I've had 4 resections and now having my fith major flair.
My last operation was last year. After the surgery the doc came in and said "we took out 9 inches but left in another section that we think can be brought under control with drugs". I was kinda worried about that since my track record with drugs has been shotty at best. The steroids gave me psychosis the remicade caused a really bad reaction ( couldn't breathe and broke out in hives all over my body) Imuran caused a horrible infection that caused me to get part of my finger cut off and nothing else seemed all that effective.. I'm so frustrated. I'm not usually one 4 pity parties but when do I get a break. I wish the doc cut out everything that didn't look good. When I had operations in the past I'd be some what ok for about 4 years before I'd start to have major issues. This time i was good for 4 months before things started to go down hill. I cant believe it started again so soon after last op. I just delt with being so sick for over a year.. Now I'm totally depressed and stressed out. I don't want to be around family with the exception of my mom. I've isolated myself from friends and extended family. Last family function i went to my uncle told me I looked like a crackhead because I was so thin and my grandparents wouldn't stop telling me to eat more. I wish they would get what I'm goin thru and leave me alone when it comes to food.
I'm so tired of dealing with the pain. The 10+ trips a day to can. The docs the tests the hospitals and now I've developed arthritis in my wrists and lower back. I've been dealing with this since I was 13 and just want to have a normal life. My brother and sister are both sucessful in their lives and here I am. Unable to hold a job. Unable to go to school. No desire to even be in a relationship. I don't understand why they don't just open me up again. and get it over with. I'm on a ton of opiates and now dependent on them to function. I just don't get it. If it's goin to be like this for the rest of my life what's the point? I used to be very social very active now I'm prety much stuck in the house and don't have a life. I just wanna be "normal" again
Anyway. It's kinda late so goin to end this and try to sleep. Glad there's a place like this were one can vent
Feel free to send a msg. Wouldnt mind chatting to those who understand what this is like..
Thanks for reading
Mikey...
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