Just venting again...

Crohn's Disease Forum

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Joined
Dec 8, 2011
Messages
678
Location
Penryn, Cornwall UK
Well basically I have been doing ping pong back and forth the hospital with appointments for different things as well as my Crohn's. I am really frustrated :ymad: I am having another flare up right now have been for 4 months :ybatty:, I'm still waiting to have another app sent through for when I am next seeing my gastro :voodoo: even though he doesn't do anything about what I am telling he just sits me down listens to what I have to say then just sends me out again :angry-banghead:, it's like I'm wasting his time or something! :ymad:.

I'm really not having a good time on this Crohn's rollercoaster :( every time I've eaten something it always hurts afterwards, I'm not passing any proper stool just a blob of mucus and blood, my stomach hurts all over, I feel dizzy all the time :yfaint:, I have foul smelling gas :stinks:, I'm constantly tired and I just feel like rubbish all the time :yrolleyes: :yfrown: I don't want to do anything I just want to hide away and never come out :ack::cry::runaway: No one else around me understands because I don't anyone else around me who has crown's the only person who I actually talk to is my best friend she is the only person who actually puts aside time to listen to me and to try and help me.

:sign0085: I just feel like I can't cope any longer with Crohn's any longer and all my other appointments that I got coming up :(

Sorry for the rant I just needed to let it out :(
 
It sounds like you're really having a hard time :( and you really, really need to change your doctor if all he does is send you away when you go to see him. He shouldn't be dismissing you without offering you a solution!

I'm lucky in that I have an excellent gastro specialist who lets me blither at him about what's wrong with me THIS time then offers a solution. You need to tell your gastro to actually listen to you - or threaten to sue him for malpractice because his lack of action is making you sick. Write a long list of all your symptoms, shove it under his nose at your next appointment and say 'this is what's wrong with me, if you don't make me better I'm going to lodge a complaint'. Then see what he says.

I note you're in the UK - if you can afford it, get seen by a private specialist and get off the NHS. It'll be better for you in the long run.

Big hug.
 

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